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delta784
how your dysacusis improved can you give me update thx i am only 29 y.o
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delta784
yes @BB23 is it possible to go back in time ? if yes i can go back to 22 sept and fix everything.
BB23
@delta784 take me with you if you find a way.
delta784
Thank you for your kind answers. Hopefully my dysacusis improves like yours over the year. That bothers me a lot taking my coping ability from tinnitus. Because its morse code beeps over TV even.
delta784
Hello how is your distortions
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TheCapybara
It has calmed down for sure over the last two years, I used to hear a lot more beeps and other weird sounds from daily noises but that's all mostly gotten better.
delta784
Thank you so much i have severe t on my right ear also also moderate t left ear. Only 29 years old have a lovely family and girlfriend my question is can i live a happy life? like i used to before.
TheCapybara
I think you can, absolutely. It'll just take a lot of time and healing to adjust. If you have the support of your family and girlfriend to help you through it, you'll be alright.
delta784
my morse code nonstop in right ear
Chezten
Mine also. Both ears, or sort of above the ears.
What the he'll is doing this?
Feel like my head will explode.
Only thing that helps, is hot shower on my head.
delta784
@Chezten i am only 29 how can i live like this? i have severe tinnitus in my right ear for no reason my tinnitus medication induced
Nes
Huuuge mold issue in my room. It explains why my nose felt stuffed. Might have something to do with the slightly increased tinnitus of those past
2 days. At least I hope.
delta784
Hey dude how loud is your tinnitus mine is 14.000 khz very high pitch unmaskable since 1 week can this get better?
Tweaker
Mine is crazy loud these days. I have multiple frequencies, like an electrical storm. Crickets are the closest thing to masking but nothing works that well tbh. Left ear is worse. Trying to stay calm is key but this can be difficult.
K
Hi Erika - nice to meet you! Wondering if I could ask you some questions about your lumomed experience? I just finished 20 sessions myself and like you, it really spiked the worst / reactive tone I have and hasn't gone back down. Wanted to see if that ended up levelling out for you (and how long it took). Thanks!
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ErikaS
@k9 the exacerbation from the LumoMed specifically was short lived but it is so hard to say exactly because I had/have very reactive tinnitus and driving, traveling, etc all effected that.
K
Thanks @ErikaS and sorry for my slow reply. It had died down from the insane levels using the laser but since doing the therapy, I've got more sounds in my head and some more sensitivity in my ears, though in fairness, the reactive component has relaxed some. So at least there's that.
K
I'm told you need to let the nerves heal 3-4 months before saying yay or nay on improvement and it's only been a month since starting, so will see. hope you're doing ok, and now that you're home and can let your ears rest more I hope you see some much-deserved improvement.
Ace
I drive many hours a day for work. For years I was doing it with earplugs in the majority of the day but nowadays I'll drive most of a 12 hour day without them in and it doesn't effect me at all 👍
kingsfan
I've been trying to get to this point, but haven't been successful yet.
Ace
@kingsfan to make a driving pun, no need to race to it. One day years ago I had a big spike after driving without earplugs, so I attributed my spike to just that, but I've had similar spikes on days when I was earplugged up. Still my reluctance to drive long without earplugs remained for years. It's fine, take your time with it.
Ace
Maybe if you have custom plugs, you can order weaker filters and incrementally swap them out over time. Or just try going for a short time without earplugs and slowly increasing the amount of time you do that per day over however long you need until you're more comfortable.
HighleyTall
Never thought I would need a peltor to fill the coffee machine with coffee beans. Yes, I drink coffee. Coffee is great with a Belgian waffle, at least there is still something I can enjoy.
L
how's it going? Seeing you have tried a lot. Can you recommend anything for fullness and tinnitus with feeling of bad hearing but good hearing test. Thanks
M
Had 4 months of very mild H, to the point I had forgotten how much it takes out of you. Now I'm back to... everything hurts. Anyone have any strategies for success, aside from hearing aids? They make my ears worse.
HighleyTall
Throw away those hearing aids, they probably make it worse in the long run.
W
I am selling my Konftec laser with 660nm and 808nm… I used it for three months last year but don't attribute any improvements to it.
haha ear go eeee
Hi there, I hope this finds you well. My apologies for bringing up this sensitive topic, but I just wanted to ask if you were friends with David Craig Muller and if he had Hyperacusis?
dan
Sorry I dont remember, if he had H...
Supersix
Hey ECP! I hope you're having a fantastic day! How's everything on your end?
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Supersix
I receive roughly the same amount of sleep and tend to wake up a couple of times during the night.
ECP
I hope your sleep improves. 💙
Supersix
I found the perfect combination of meds in a minimal dose that helps me fall asleep every evening. It's so tiny that it could be the placebo effect. I'll never have to worry about going through a withdrawal if I back off.
Supersix
I haven't posted in a while How is everything in T Land?
BrOKeN_1
Long time no see. Hope that mean good things on your end.
Supersix
I have improved mentally and learned not to fear tinnitus or medication. I'm willing to try anything that could enhance my quality of life, which has made a significant difference. I don't fear noise, either. If you have an, I dont Give an F-K attitude; it will improve your mental health. I'm not going to let Tinnitus control me im in control now.
marqualler
Went to a Timberwolves game and stayed for the whole thing for the first time in months. Wore heavy duty plugs, didn't have any serious after-effects. Feels good.
N
How are you @Cmspgran ? Still expirementing with the patches? How is your life outside of work? Gym? Running? Dating? Family etc?
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Yellowblue44
@Cmspgran hello! I wondered if I can ask you a couple of questions please. As I think we have something similar that's really bothering me. So mine started 6 months ago due to loud noise exposures. However 3 months ago I my symptoms worsened and I've seen no improvement whatsoever. When I go for walks now I hear like a heavy white noise . Part 1 of 2
Yellowblue44
@Cmspgran Even in an empty park I hear this. I also hear something similar when I watch tv on low volume. It's a like a white noise. Has this improved for you? The whole thing has made me housebound and I'm worried that I've seen no improvement in my loudness H or Reactive T. Part 2 of 2
Cmspgran
My dysacusis has improved but my reactive tinnitus and general tinnitus has gotten worse sadly. What was your acoustic trauma?
L along the way
I have been able to sleep a lot lately. Im grateful for that. Sleep is a basic need, and it has been an issue for long sadly enough. A good night's rest is very valuable.
Pinhead
It's a limitless universe. Anything can happen. Like you or me getting catastrophic, life-ending tinnitus.
orenge01
It's unfortunate to get a bad roll of the universe's dice :grumpy:
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