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Well, how have things been? Any changes in your condition or life in general?

I'm rough. This setback is hitting me hard. ttts, waking up after 3 hours with it blasting and not being able to get back to sleep. Unstable - hissing/static - metallic shrill stuff that breaks me down. Loudness hyperacusis around 70db.
Hi I was wondering if you are still experiencing low humming/vibrating tinnitus? I've been experiencing this for the past week. I've had tinnitus for 9 months, but this new rumbling, vibrating head sensation is new. Wondering how you've been doing?
was outside the WHOLE day, hard to deal with in winter, but what can you do. But.. it was really silent, as i was entering my house and i was overjoyed. Now it is getting louder again.. is this some kind of h going on? I know, that i am hearing a lot of "artifical noise is not good." i am trying to play and have twitch open beside that. Try to really focus on the words of the commentator. But it is really getting louder in the background again and soonish it was so loud as the commentator. can someone tell me? Is this h? reactive tinnitus? just artifical noises? I dont wear headphones since this this started in 2017.
Tinitus since 2023 from a 140db alarm a few seconds exposure still suffering from tinitus
zeukin
That's terrible, as I read your post, I thought to myself what sort of alarm needs to reach such high decibel levels? That should straight up be illegal, it's not safe for anyone's ears. What alarm was it in your case?
spikes spikes spikes. They just don't seem to stop coming. At what point does a spike just become the new normal I wonder? And why did tinnitus magically switch off 3 nights ago. It was so blissful that I didn't sleep much. I just lay there enjoying proper peace and quiet, too scared to move in case the tinnitus started up again. Then I did sleep for the usual 3 hours and when I woke up it was still away and I just enjoyed lying there too for an hour or so but then it eventually started up again. The following night it disappeared too but it did it whilst I was asleep. I wonder if tinnitus always disappears when we sleep and that's how sleep helps as it gives out brains a rest from the ringing for a bit.
S
Sleep is intrinsically tied to tinnitus, but I do know that when mine first started it was so loud I was hearing it in my dreams as car alarms etc. so I wouldn't like to say it totally turns off.
In a way I envy your tinnitus turning off, in an other, it sounds like a torturer unlocking the door and pretending to let you go before starting up again.
I would take it as a positive sign though, that does mean after all this time your brain is still capable of filtering it out.
the severe anxiety is making my life miserable. i forgot how the sleep felt. always bad Dreams, always constant on edge.. Hum is also back.. how do you deal with that? i am currently unemployed.. so a lot of time.
Don't know why, but couple of days in a row my ears have felt very good. I don't complain!
kingsfan
Must have given it to me because mine has been terrible the past couple of days 😂😫
...
In October a smoke alarm caused a 5 week setback. In early November I wore a headset for a zoom meeting, then he'll broke loose again. I feel to blame at times, however was my behaviour reckless to the population at large? Since then I've been mainly homebound with loudness hyperacusis, ttts, Mem and crazy reactivity like we both experienced a couple of years ago. I'm guessing you are okay as you've not been on here for a few months.

Nick
Hi @ErikaS Just thought I would update you, as I have been reading some of your old posts. From March - September this year I had the best period since things got incredibly difficult in February 2022. I recovered from the night out in September 2024, and the reactivity disappeared for the first time in 3 years. I had habituated by May 2025.
Hi Danny, thank you for the encouragement from 12 years ago, I'm glad to report I'm still around, but I would have to say very tough going. A few weeks ago I ended up in a too noisy of a car and I've got another tinnitus spike.

It is just so frustrating that I was doing well and now I've got this ridiculous spike to contend with, it's just I'm kind of struggling and down a bit, is all, which I know no one wants to hear someone else is down, I'm not prone to depression, I'm actually normally a cheerful person, just from being able to experience everything I have, living in Canada, having access to education, all sorts of things most of the rest of the world can't even dream of, and here I am.

/ paul m. - sault ste. marie, ontario, and it's cold out.
getting T was so easily avoidable (for me). and then it worsening, and worsening, and worsening, was so easily avoidable. but nope, it all had to happen didn't it. with all kinds of physical pain now too. safe to say i did NOT handle T well.
streifzug
i made a ton of mistakes, too :( i just didn't know any better...
tobyharrixon
my biggest mistake was taking antidepressants, and I had already read about how problematic they can be for T, but got convinced that it was just a few people that had a bad time sharing their experience online. So I did know better, but got blinded by wanting more sleep and less anxiety. Safe to say the opposite happened right when I needed things to settle down.
5 year trophy... is that so. Thanks tinnitus talk. If only that calmed this atrocious spike. And so it goes. Hope some of my friends here are doing ok. I don't pop in much anymore.
i hate the fact that i am falling out of habituation again and again. It is so exhausting. It is so troublesome. I know i must conquer this, but i have no idea how. I don't know, if i can habituate again, when i know, i can get this again and again and again. Habituation is not a fix, it is like a placebo, so the millions will not get into good studies. It is so fucked up.
mandyc
it does feel worse when you keep on coming out of habituation. The tinnitus seems much worse as I feel if I've had a couple of reasonable days and then it comes roaring back for no reason. You just wonder when or if it'll ever end.
What makes it frustrating is that I can expose to sounds no problem, and then a few hours after or even in the morning I'll know if it was too much and if I'll spike or have a hyperacusis warning. Makes it SUPER hard to know how and when exposure is successful
I've talked to my psychiatrist. What i'm going to do is take clonazepam a bit more frequently for 1 month (0.25mg or 0.5mg every 3-4 days for a month). Since it works well on my tinnitus and hyperacusis, he suspects that clonazepam might calm my nerves enough to allow me to wean off protections and make my ears used to sounds again.
and.. just a reminder for myself. I habituated to all of that shit, even to the hum. I don't know, why my brain is so good in that, but he really got this. 2025 was a really fucked up year for me with a lot of other mental problems. I have gastritis for 3 months now, which is based on helicobacter pylori and the thing that i have little nutrition it the cause of my spike, i guess. I really, really struggle with it because i was not in a good place before. But what can we do? I try not to think about it, but it is basically unbearable. It is comforting that the sounds were like that 2024, because i forgot. I don't know, when i was getting better or what have i done for it. I think just one day it dropped in volume. And i was fine again. For almost a year. No spikes this summer. But now..
it is actually crazy that i forgot all of it from 2024. And that i have had H, like now. We must battle this shit. There is no way that we can let this win. ever.
loud T since six days. I cope really badly with it. I even have H again. It sucks so much. But i forgot that i have had a very long episode of a spike here. I need to do the right things now. I am so glad, that this forum still exists. Please, if you want to tell me something, share it.
Yesterday was a great day I had almost 0 pain and tinnitus was very low. I over did with digital audio it and today it's spiking badly. I am genuinely fed up with this, my life felt so normal and great yesterday, just for it to be bad again the next day. I don't care if the tinnitus gets worse, I just want to be able to not wear protection 24/7 and go outside. I want to play video games with sound again. I want to be able to speak with my friends over the phone. Just give me that and I'll be happy
That's it I'm fed up with hyperacusis. Tomorrow I'll ask my psychiatrist to put me on Clomipramine.
delta784
pain or loudness?
Nes
@delta784 loudness and pain if I expose too much to sounds (I get fullness, nausea, headache, sore and dull pain in the ears)
Sigh. Another ear problem. My hearing dropped again, but when I plug both ears, my voice sounds the same in both. What is this?
kingsfan
Even the tiniest bit of fluid in your eustachian tube can drop hearing quite a bit. Perhaps the dry winter air, allergies, or very slight illness?
I really hate how those hearing drop out/tinnitus episodes we've all likely experienced throughout life now last so much longer... Always spikes my anxiety when it lasts longer than 30 seconds that this time it's not going to end. Plus they always make my ear feel crap afterwards now.
delta784
you mean fleeting tinnitus?
S
@delta784 Yes except I now go a lot more deaf than when I used to experience it.
S
@kingsfan Thankfully that stopped happening after the 6th month mark, just one every month or two now.

Edit: Did you put a curse on me or something, this morning I've woken up and had two drop outs within 15 minutes of each other :LOL:
I've been producing music everyday for nearly a whole month now, just on my laptop speakers, mostly quiet. i used to produce a lot of music before in headphones (and never got T from that). Anyway, it's the only thing that makes me not wanna die and I don't hear the T during it, I helps me forget my reality. That's the beauty of music. But overall I think it's making my T worse so I need to take it easy :(
tobyharrixon
kingsfan
@tobyharrixon It's been years. I was signed to a Universal imprint label for a while, then played in the hardcore scene in San Diego—shared a practice space with Lower Definition and some of the guys from Of Mice & Men—then did some live session work in Los Angeles with an up-and-coming Warner Records artist before settling down with a family. Anything after that has been just messing around, playing covers, etc. I can't really play at all anymore, even unplugged, with hyperacusis/noxacusis troubles.
S
@tobyharrixon Don't have to keep the session as a whole short, just take lots of breaks to give your ears a bit of a rest.