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H
Hey, I am in klonopin withdrawal, 15 months along. My tinnitus is pretty bad the past few days. I have about 8 tones altogether, but some days are a lot better and I it seems more like 3/4 tones. Hang in there… I have an 8 year old and an 8 month old. You seem really scared.
vilebubbles
I am very scared. Thank you for your encouragement.
BrOKeN_1
This current spike is gradually and expertly eroding the layers of psychological defense I built over the last few years. Tinnitus is just Evil. Plain and Simple.
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kingsfan
Samsies... Nearly 4 and half years ago when this all started, I thought I'd just have to turn my music down, get used to it, and that would be that. I wish it had been that simple.
Tryn2BHopeful
I definitely feel that. I keep a card my daughter made for me that says "You got this!" On my dresser and read it every morning. It keeps me going
BrOKeN_1
@Tryn2BHopeful I love that for you. I live for my kids! They a great motivator to fight on.
vilebubbles
My tinnitus got bad after SSRI withdrawal and benzo wd. Do you think I should take b1? Will it
Matter?
BB23
nothing will fix it.
b6 will def. worsen it.
i dont know about b1. It's been a long time ago since i did research on these. Don't remember much.
but if you ask me, i'd say dont take anything at all.
BellaMia
Hello everyone 👋 I'm back with an update. My T is still there and spikes have become less and less. I am living life more normally despite this noise..it's still annoying most days but I'm pushing through. Reactivity is wayyyyy down but still there....nothing like it was though. Hyperacusis is about 95% gone. I'm just reaching 2 years into this.
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Tryn2BHopeful
Went to my daughter's xmas orchestra concert. Seemed fine at the time not to loud. Few days later increased T loudness, sensitivity, and distortions. Been terrible since. Rarely have a ok day now.
Stayinghopeful
Love that you've seen improvments and long may that continue!
henkess
95% gone is real good =)
E
On Monday, I had a visit at the dentist where they used a high speed rotationary tool. The tinnitus got more noticable today.
dude
HI

Did you personally take dexamethasone ?
any side effects ?
pls advise tku
vilebubbles
How are you doing? My taper is going so so bad.
streifzug
I am a little better despite it all. You have not been on the benzos for long. That is really good I think! I hope you'll get better!
vilebubbles
That's great. Did you stay on clon or taper it?
S
Feel like the first person to ever have a positive ENT trip... didn't change matters, but he agreed with my self-diagnosis, told me to protect as much as possible and was honest that an MRI would be too noisy and probably not find much that would change matters.
Plus I got to look up my nose just for fun.
DamagedJoe
Exactly 4 months ago I woke up wishing it was a nightmare. The last month has really sucked. I definitely very often have the feeling that absolutely nothing has improved. It's this malignant certainty that it will stay like this for the rest of my life. When I use earplugs, it still throws me into a depressive phase because all I hear is the ringing. I want silence back so much.
Tryn2BHopeful
Why is T so fricken variable?... one day its ok, the next is pure hell. Ugh... what did we do to deserve this?!
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Tryn2BHopeful
I hear you, and I know your right. However its just hard to feel that way. I was so close to getting over the hump... and I screwed up. I am tired, stressed and I just don't know how to find my way back again. I need to stop blaming myself and move forward, easier said than done. As always I appreciate your comments.
MindOverMatter
I know the feeling @Tryn2BHopeful I came out from a long lasting spike recently. It took about 2 months to normalize again. But once I was to take a step back and shift my focus again, I started afirming to myself that I'll be okay. I've been here so many times before, and I've done it before.
MindOverMatter
The storm you are in at the moment won't last you forever. You will rise again. Keep your head up mate - you'll get there. One day at a time.
delta784
hey kdmg do you have tinnitus alongside with nox h? and do you have visual snow thx
Andrei88
Have had very bad T and pain H for about 14 years now, it still sucks and robbed me of things I used to be able to do and enjoy. Typing this with raging T and pain. It only ends in my dreams. Waking up feels like a bomb went off in my head every morning.
vilebubbles
You're strong. I've only been dealing with this 5 months and I'm ready to throw in the towel.
Pinhead
Getting a tooth extracted on Wednesday. Considering the universe is malign and evil, I am guessing my torturous screaming brain will become worse.
Sodlin
Had no "spike" after doing all that work on the car yesterday but today its a little bit elevated (more hissy). Think i have been abit stressed under the night and tensed myself. Will see how it goes.
MindOverMatter
To me spikes usually comes 24-72 hours after incidents. If it will occur at all. You might get lucky and not get any prolonged spike. Eventually it will go down again, at one point, if not. You will be fine - stay positive and try to keep occupied and your stress levels down.
Sodlin
Yes. It so hard to be trying to live your life and not get tinnitus get in your way or just stop doing everything becuase of the tinnitus. its a very hard life to navigate in. My main issue is that always freak out over these thing that it "might have been to loud" then i get nervous and stressed out.
MindOverMatter
It is difficult to navigate through, no doubt about that. The "might have" and "what ifs" is pure fuel for this condition. They are like reminders for the brain. Reminding about the trauma many of us had after getting this, or getting worse at one point. Therefore I think positive affirmations is an important tool to use to navigate life with this, and not give the fear too much space.
Sodlin
Any car mechanics in the group? I hade to change wheelbearing in my old car and i was force to use alot of "hammering" to get it out. I was wearing both Earplugs 35 DB AND Peltor 35 DB. Just looking for some reasurance because it was abit uncomfortable when there was metal on metal hit. I also manage to drop a giant ironbar when i remove the earmuffts (still earplugs in tho thank god........
ZFire
You're good. You took great precaution (double protection) beforehand
Sodlin
@ZFire The thing i dont understand is that i got in from the garage and the tinnitus actually felt more silent then normal and i had no earfullness after that event. The day after i woke up (after being very worried earlier after what ive done) to a bit more "hissy" tone. and today after 2 days of worrying its very "hissy" in my ears. It must be a spike from worrying or am i wrong?
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