New profile posts

hi, i saw a post where you mentioned trying pregabalin, i was wondering what your experience was like? did it increase the T? did it help with the hyperacusis ?
Hello! Little updates. Found out my thyroid went through a random hyper phase (I have Hoshimotos hypothyroid), so adjusting meds and hoping that helps T. Yes, thyroid issues can very much exacerbate or even cause T. Also, switched back to Ativan from Clonazepam. Clonazepam is a heavy hitter and gave me side affects like memory loss and bad depression that I do not experience on Ativan at all...
ErikaS
Clonazepam did not provide any better or more relief to my tinnitus or reactivity, so after 3 1/2 weeks of trying it, I switched back to Ativan with no issues. Still .5mg in AM and .5mg in PM.
Did you end up taking Prednisone at any point? If so, how did that go?

Also, do you have experience with other medications, like Gabapentin? If you do, I'd love to hear how they effected your tinnitus. Thanks!
De-stigmatizing T takes a lot of its destructive power away. I think it's an essential part of the habituation process.
Barry098
@lukex26 I haven't found Prednisone to be helpful for treating tinnitus. Theoretically it helps protect your ears against the inflammation that your body creates post injury, but I have found that it actually tends to make my ears ring louder when I am on it.
Barry098
@lukex26 I would certainly take it though if I experienced significant sudden hearing loss. My brother lost hearing in one ear and Prednisone saved him and restored most of his hearing in that ear.
Barry098
@lukex26 as far as de-stigmatizing goes. I find that sharing my experience with others allows them to open up about their own experience with tinnitus. You will discover that there are very few people who are unaffected by it. My own tinnitus issues are on the extreme side of the spectrum but somehow the recognition that this problem is utterly commonplace helps me to cope with it better.
I keep disappointing other people in my life. Would be so much better if I was not here anymore.
L along the way
For me, socializing can be nice sometimes.. but it depens a lot.. about with who, and in general i try to focus more on my own wellbeing.. i don't think that's egocentric, it's trying to meet your own needs first. Take it easy Juliane
4Grace
Julian - all I can say is that you are not alone. I can try to do things and it's not fun to have me around. So, I get in trouble. If I isolate due to pain and worsening I am mentally ill. Can you believe my family still thinks I'm exaggerating. I am getting grief for not going to my families Christmas party. 26 people. They say in need to compromise.
U
Other people's perceived disappointment is their issue. I just disappointed my wife. Tough shit. Are you feeling any better now?
Fellow T and H sufferers: how are you handling Christmas? (If you celebrate) Will you run the risk and join family gatherings or self-isolate? Not sure what I will do. All seems impossible rn.
Ears are really loud tonight but the sound is not actually unpleasant…just sounds like TV static…this is a new one for me
Last year in December I thought I had it bad. This shit just get worse and worse with no end in sight. I will quit my job in the beginning of 2025.
4Grace
It's true. It's seems it keeps getting worse no matter what I do.
We are all different. But for me, thinking positively and becoming hopeful tends to destroy all progress. I need to get back into being constantly depressed and fearful and isolated. All that matters is protecting my ears. All else is worthless.
Yesterday was 2 years with T. It's been making me anxious again lately. IDK if it's actually any worse or if I'm just more aware of it. But for the most part I handled my T much better this year than the last. Hoping each year is easier. Hang in there guys <3
My tinnitus has introduced a new horrible screeching sound on top of the usual sound torture. I knew it could of course always become worse but this is beyond horrific. I might need to quit my job now.
TheCapybara
I'm sorry you're not doing well lately Juliane. Did the worsening happen out of nowhere or was it another accoustic trauma?
Juliane
@TheCapybara I am not sure. I think I have made the classic mistake: become more complacent after a brief period of more manageable tinnitus. Accepting too many invitations for socializing. Nothing crazy, just lunches and coffee basically. But even minor socializing is off limits it seems. I am devastated.
Hey Mirador! Read your post about your benzo taper. How's it going now? What's your current taper rate? I'm thinking of starting a taper soon. I think my pain H may be due to tolerance withdrawal and I also have very erratic T. Hope everything is going as smoothly as is possible during a taper.
I wasn't ignoring you, I didn't even know messages could be on the profile. Just happened across them. Truth is, I don't remember. Been a while now and I only come here every once in a while. It was less than a month though for sure. The chantix was longer (@6 months), and I continue on the valsartan to this day.
Hi, and forgive the protracted response time, as I didn't even know messages could be left on a profile and just happened to see your message tonight. I honestly do not know what your particular results would be. Chantix acts differently that nicotine patches, as it binds to nicotine receptors, telling them they are "already engaged". I would say try and see. Beware of possible side effects though.
I think I am starting to understand the transformative power of tinnitus. It demands the deepest level of submission to and acceptance of what is vs. what could be.
Juliane
That is an accurate description. There is no "try and see how it goes" with tinnitus. Trying and seeing how something goes (e.g. doing normal things like meeting a friend for lunch) could mean that the rest of my life is ruined. Those are tough odds. It's not a scenario most people have to face, even with health issues. Some even think I am lying. I hate this condition so much.
dreamer16
Can't accept injustice.
Barry098
Right…I have to plan out all activities like a military campaign to avoid injury
Good night's sleep last night...that was my first since re-injuring my ears almost 2 weeks ago.
Juliane
Congratulations!

How did you manage?
Barry098
Not sure…might have just been luck…and being utterly exhausted
Woah…not gonna sugar coat it…today was brutal yet there was also a really beautiful moment…what a bizarre experience it is to be human!
Took 20 mgs of prednisone this morning...subsequently having a brutal morning...feels kind of like having terminal cancer at the moment except that unfortunately there is no end in sight!
How long did you take the blood thinner and vasodilator (Hydralazine) for? It would be very helpful to know if this needs to be long term or can be short term. Thanks for this information as it help steer me in what could be the right direction to avoid any further harm to my ears, or possible reverse any damage that has already occured.
Sometimes I wonder if T occurs to slow life down.
Juliane
It definitely does. Mostly, when all my work and obligations are done with a lot of suffering, only more suffering awaits during my "free time". I am not sure I would call that a life. It slows down everything.
Propranolol is really helping me cope BTW. Seems like it should be a first line of defense for new tinnitus sufferers.
I want to try and do this tinnitus experience differently…going to try and keep my focus on acceptance.
Juliane
I hope you can do it. It would be for the best for sure. I am unable to ever accept this torture.
Hello, as far as I can see, your tinnitus also started with headphones. Is yours severe and 24/7? How would you describe your level?
2049v
mine is so severe, suicidal level since it started 7 months ago
orenge01
I feel bad for you man. I wish you could find some relief from it, it truly is awful. :(
Sodlin
"Sometimes it can suddenly jump to a 7-8 but that usually lasts 30 seconds or something like that." had this a TON when my TT were new. Pretty sure its a stress/muscle thing. Even healthy people get it :)
How are you holding up?
aab
My H still severe.
My T changes everyday.
I am homebound.
Yesterday (26th December) someone used fireworks near my house.
How are you doing?
adpolandam
I'm sorry. How old are you? I'm depressed.
aab
I am middle-aged.