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orenge01
The effects of these conditions seem downplayed. I don't feel it's talked about, taken seriously enough because, I mean the damage is permanent ffs. Most docs are like just learn to live with it. Not so helpful advice. I guess only those who have it actually know the severity of it. The true effects of damage just haven't been talked/warned about it seems. It's frustrating to say the least. :grumpy:
LukeYoung
Tinnitus talk can be great for connecting us who experience the same feelings and problems. you can feel somewhat HEARD. It's a terrible disorder, and very down played, but you're right. No one will understand unless they have it. It's like that for many things i guess.
dreamer16
''don't look for it and you won't find it''. Works perfectly when it's mild. But when it's worse, I just can't ''not hear it'' even when I'm not listening for it. Sorry just needed to vent.
orenge01
No need to be sorry, it's perfectly fine. I agree with what you said. It's an awful condition, all we can do is keep waiting for a cure, and distracting ourselves from the noise. Even if you can hear it, not thinking about it is probably the best thing you can do :/
Barry098
Interesting that I've been through this so many times and yet each time is still so traumatic. I'm not a very good student apparently…lol
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LukeYoung
@Barry098 it's never an easy injury to begin with, and the anxiety because you know what can happen after injury doesn't help.
Juliane
That's because it's a new situation every time it worsens. So we cannot really use our past experiences as the shitshow starts all over again. It's a loser's game. The strongest man or woman in this world would not be able to cope, as it's not even about coping.
Barry098
@Juliane Agree…there is no real reference or baseline to measure against. Each new experience brings about a whole different set of variables.
Juliane
Happy first Sunday of Advent. My day will be spent in bed suffering and crying
L along the way
Love sister, i understand you. I don't know why life has to be like this now.. i also don't have any real answers.. hope for a better day.. but sometimes that also doesn't work. I hope you find relief, that things may be well some day please.. i think we are doing the best we can in this ridiculous situation.. pff.. love & healing
LukeYoung
Sending love and healing to you, i find being in nature, around local parks with people, dogs, children, the breeze, they can help lift spirits a little.
Juliane
I have had some relatively good weeks prior to this but as always in my life, good times (or now, relatively good times) will be punished with horrible times. Back to square one. Starting over, feeling defeated and without hope again. It does not help that I have accumulated other chronic health issues, probably due to the T ruining my nervous and digestive system with its relentless torture. Terrified of the future.
R
Im 5 and a half years in. Not sure your history but ill let you know, spikes suck and are scary, but they do pass. I've had spikes in various degrees of terrible and scary, but they always tend to calm back to baseline. Eventually you start to go oh, dang, and then you just move on and ride it out knowing it will pass. I know it doesn't seem that way but, you'll get through
R
I had a terrible spike that lasted a few days, really loud. That was due to noise. I had a spike last a month due to nasal spray. But they all passed.
Juliane
I cannot do this. Feeling Suicidal again due to horrible spike.
LukeYoung
You can do this, you've gotten through it before! Stay strong, keep distracted, it' will be hard to not focus on it, but you must try
Barry098
Theoretically, it will give me the ability to be present with the tinnitus without constantly panicking which might just create the environment to begin the habituation process once again. I am going to keep taking propranolol and I will report back how it goes.
Barry098
The more I think about it, the more I think Propranolol might be the perfect habituation drug for tinnitus. Unlike alcohol or benzodiazepines it doesn't mask the sensation of the tinnitus but it does keep the body from physiologically responding in a fight or flight mode.
Barry098
Thought I was headed for a stroke or heart attack today when my BP hit 154/106 ( and that was after my "relaxing" bath). So I took an 80mg slow release Propranolol and that chilled me out enough to be able function again. Just wanted to share for those of you suffering panic attacks due to the tinnitus.
Juliane
I find it hard to describe my hate for this condition with new words. Feel like I used them all. It sucks life out of you and leaves you empty and bitter.
Juliane
Once again finding myself in a situation where I might need to cancel my participation in a close family member's birthday due to this shit. I know they will be disappointed and I feel like crap for cancelling. But this disease spares no one and could not care less about your life and happiness.
Barry098
Well, the next 2+ years are going to suck. I feel like a convict who keeps getting more time added to his sentence.
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L along the way
It's such a sad situation honestly... pff.. i've also been enduring a lot.. and recently sometimes i had thoughts about the option of euthenasia.. i'm not in any way seriously checking that out now.. but just the idea of it stopping somehow.. oh well.. but it does fluctuate, there are some moments when things seem to ease up a bit.. finding some joy, hope & sense of wellbeing..
L along the way
However overall it hasn't been nice at all sadly enough.. and it will all end some day anyways.. i just hope & pray we can heal from this awful affliction in this lifetime
Barry098
Hang in there @L along the way I totally hear you, but the truth is that you will eventually get better. You just have to wait it out. I have dealt with T for 8 years now and each onset is the same cycle. The trick is surviving the first year or so…after that it always gets easier.
twa
I went to see Wicked with 3 kids. I wore my earplugs and just Sony headphones. I didn't wear the headphones for most of the movie until the end. It was fun, no issues with being too loud except for one or two scenes. I just put the headphones on.
Barry098
Thank God for the many years of experience living with debilitating tinnitus…I'd be in real trouble right now if this was a new problem for me!
BrOKeN_1
It's crazy... I don't think I would have made it long in this life if I had it this severe early on. But who knows.
Barry098
Mine was super severe right from the initial onset 8 years ago…but I was pretty naive and very optimistic about life so I survived it…now I have real issues with PTSD and these kind of accidents throw me right back into the abyss
Dylan Blake
It has started up again, still on the Flavanoids, loud enough to be noticeable in the quiet, might be time to get a ear cleaning appointment.
Barry098
100 years from now (when tinnitus will be cured with some over-the-counter med) people will look back and wonder how people could ever manage to live with T during our era.
marqualler
Happy (USA) Thanksgiving, TT community! Learned from my dad today he has had tinnitus for several years and his got worse from Covid. Sure would have been nice to know from him several years ago 😂. Nice to have a family member who knows what it's like, though.
just1morething
A spine doctor that fused my back mentioned using DMSO for my tinnitus. It is liquid and I put some by my ear/ jaw area with a pad.
just1morething
I had one great day and seemed back to normal only to turn noisy again. No easy fix. I might try Cymbalta but hate side effects.
KaiT81
Hello Furetto,
I'm feeling a little better, although I still have a lot of ups and downs and I still hear my tinnitus a lot and it often bothers me. However, I have started my professional reintegration and have also started treatment with Dr Hubbard. I have also joined another forum in the meantime. That's why you haven't seen me here for many weeks. Regardless, I have always found contact with you nice and helpful!
orenge01
Man. It's just exhausting. It always seems to be: worry/stress about other stuff + this condition. The fucking cherry on top.
LukeYoung
Wax removal again, similar to last year, some distortions to sound and sound sensitivity. definitely Not half as bad. Two different techniques used.
Barry098
Was doing really great the last six months or so. Just had somebody scream in my ear (full volume) over the weekend. So my ears are ringing pretty loud again. Pretty frustrating to have this condition.
adpolandam
Hej. Jak tam twoje uszy?
orenge01
Hey thanks for asking! My ears are ok I guess no drastic changes that I've noticed. It's always a bit stressful though going outside. Especially because of the problem I mentioned earlier :/
orenge01
Quite a rowdy day, was around a lot of noise unfortunately, very close to some loud construction site. I had earplugs but yeah, constantly having to adjust them so they sit correctly is definitely a problem... Kind of debating if I should go back to the simple foam ones, at least they stay in my ears.
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