New profile posts

I always type detailed lists of my symptoms and then print them out before every medical appointment. It's become a pointless exercise because the doctors never know how to help me. I may as well put a new header on the top of my list that says, "Dear Santa, here's a list of my symptoms. For Christmas, please make all of them go away. I've been a very good girl this year."

The way I see it, Santa has an equal or better chance of helping me, and there won't be any insurance copays or deductibles involved. It couldn't hurt to ask.

It's that time of year again :--)

Merry Christmas to all my tinni pals, and a special shoutout to @tpj

2026; a new year, new prospects, and we keep moving forward.

Much love to you all X

A simple hearing test made my T &H symptoms much worse. Almost 3 weeks now and ears still burn, constant sensations on skull and in my face. Will try to get my hands on Otalgan in the Netherlands. Maybe this can give me some relief.

Have been feeling pretty good lately. Hyperacusis is my main issue now. I can mentally block out the tinnitus sound. Today we were on a meeting and i decided to try it after 20 minutes without earplugs because i was sitting far away from the speaker. Everyone (around 35 people) started laughing LOUDLY so i sent them back in again. Sadly a little spike from it but i hope its just temporary.

basically gotta live like a hermit til there's a treatment/cure - nice

Hey mate how are you doing these days?

hey, Joe. I am also Jo. nice to meet you. I see you are struggling very much with your tinnitus. Let me tell you, the first habituation process is the hardest. ngl. You don't know how it feels like and therefore it is an endless cascade. It took me 3 years to get better. I am a very anxious person, because of childhood trauma. It will get better with time. First 1,5 years was hell. like torture. endless days. little to no sleep. nothing i could think about other than the sounds. People like me need a lot longer to habituate. So don't give up. I never thought i would habituate, but i did. I never thought i would habituate after my worsening and the drone hum.. but i did.. We don't know what the future has in store for us.

Hi Delta. How are you feeling today? Has the Clomipramine helped at all? How well are you managing your relationships? Hope I'm not too intrusive. These are all things I think about. Well wishes.

Restless legs has decided to join in now. Took a zopiclone 2 nights ago as tinnitus was raging. It didn't help much and gave me 1 hour sleep. Last night I got 2 hours broken sleep and restless legs not helping. but tinnitus was mild during the day as long as Im not around any noise other than natural sounds. Panicking again that this is how it will be forever. Trying to remember that I've had it disappear for a few hours on two occassions last week. So if it can disappear then then perhaps it can again. I don't think pills will help as I just get too anxious about side effects.

it is so crazy to me that i habe failed out of habituation two times now.. my energy is so low.. it was such a shitty year.. also landlord wants to get rid of us. i will not find a quiet place like this again..

We are all in hell. I am in hell. And i do not feel anything anymore. I am not afraid anymore. I am just exhausted. It eats away your energy. Why does this exist...

you were one of the quarterstones in my 2nd worsening. Without you... well.. don't want to think about it. Sammy, you are a machine and i know, that you fought for this so hard. I am glad, that you are doing well better now.

I just started Wellbutrin, I've been feeling so depressed and suicidal. I read that it made your tinnitus worse. I hope it's not the same for me.

okay, i know now that i have reactive tinnitus.. i need to get my head around it and don't want to make it anything worse. artifical noise is not good for me, so i need to listen to my t all the time, but since it is quieter it is okayish. Time to dig forums..

My T is bad

Hey mate. how are things nowadays? Any major improvements?

My beautiful dog, who I picked out at the shelter when I was 13, died on Dec 9th. It was sudden and I had to make the worst decision of my life. She had a tumor rupture in her abdomen and was bleeding out internally. They said this cancer is undetectable until it's too late. I couldn't save her. The grief is making my anxiety about my tinnitus horrific. I guess that's normal? I don't know. I miss my angel. I had her for 12 years and 2 days.

Well, how have things been? Any changes in your condition or life in general?

I'm rough. This setback is hitting me hard. ttts, waking up after 3 hours with it blasting and not being able to get back to sleep. Unstable - hissing/static - metallic shrill stuff that breaks me down. Loudness hyperacusis around 70db.

Hi I was wondering if you are still experiencing low humming/vibrating tinnitus? I've been experiencing this for the past week. I've had tinnitus for 9 months, but this new rumbling, vibrating head sensation is new. Wondering how you've been doing?

Been a few months since I've seen you post, just wondering how you're coping?

Just Cut The Nerve (Dr. Pulec).

Hey mate did you recover from the recent SSHL? Looking to hear back from you

was outside the WHOLE day, hard to deal with in winter, but what can you do. But.. it was really silent, as i was entering my house and i was overjoyed. Now it is getting louder again.. is this some kind of h going on? I know, that i am hearing a lot of "artifical noise is not good." i am trying to play and have twitch open beside that. Try to really focus on the words of the commentator. But it is really getting louder in the background again and soonish it was so loud as the commentator. can someone tell me? Is this h? reactive tinnitus? just artifical noises? I dont wear headphones since this this started in 2017.

Tinitus since 2023 from a 140db alarm a few seconds exposure still suffering from tinitus

spikes spikes spikes. They just don't seem to stop coming. At what point does a spike just become the new normal I wonder? And why did tinnitus magically switch off 3 nights ago. It was so blissful that I didn't sleep much. I just lay there enjoying proper peace and quiet, too scared to move in case the tinnitus started up again. Then I did sleep for the usual 3 hours and when I woke up it was still away and I just enjoyed lying there too for an hour or so but then it eventually started up again. The following night it disappeared too but it did it whilst I was asleep. I wonder if tinnitus always disappears when we sleep and that's how sleep helps as it gives out brains a rest from the ringing for a bit.

i dont know how i fall out of habituation always and always.

the severe anxiety is making my life miserable. i forgot how the sleep felt. always bad Dreams, always constant on edge.. Hum is also back.. how do you deal with that? i am currently unemployed.. so a lot of time.

Having the flu just takes this shit to a whole different level.

Don't know why, but couple of days in a row my ears have felt very good. I don't complain!

...
In October a smoke alarm caused a 5 week setback. In early November I wore a headset for a zoom meeting, then he'll broke loose again. I feel to blame at times, however was my behaviour reckless to the population at large? Since then I've been mainly homebound with loudness hyperacusis, ttts, Mem and crazy reactivity like we both experienced a couple of years ago. I'm guessing you are okay as you've not been on here for a few months.

Nick