Recent content by AnnaW

  1. AnnaW

    Meniere's Disease

    Yes my meniere's began with just tinnitus. The vertigo then happened some six months after. And then the deafness. I get pulsatile tinnitus.especially after stress. I'm starting to realise that Hughes syndrome or anti phospholipid syndrome runs in my family and wonder if this causes vascular...
  2. AnnaW

    The Positivity Thread

    Was about to post this as a separate thread but saw the positivity thread and thought it might be better placed in here . So this is for anyone who, like me, may have experienced anxiety as a result of having tinnitus...
  3. AnnaW

    Meniere's Disease

    I should also add that menieres spontaneously goes into remission for yrs and yrs. I had that experience myself (I'm 18 yrs in). My own hearing still fluctuates, I've been over 90db deaf in left ear for at least 15 yrs. But every now and again I can hear the shower water in it. If I had been...
  4. AnnaW

    Meniere's Disease

    i contacted her too and attempted to buy a laser but the sellers website looked so dodgy i was really put off. i was also worried about safety, as it seems an unregulated market
  5. AnnaW

    Meniere's Disease

    sorry your ears are not having a great time Glynis. :( Surf the wave, it will blow over soon. Are you able to do anything to take your mind off it? How deaf are you? Can you listen to the radio? Or is that uncomfortable? Sometime I just want peace and quiet.
  6. AnnaW

    Meniere's Disease

    just wanted to share the above story lady had gentamycin to treat infection and it destroyed her vestibular system she had permanent vertigo a neuroscientist designed a tongue electrical sort of prosthetic vestibular organ - amazing results i would like to this used in menieres ppl, both during...
  7. AnnaW

    Myoclonus and Diet

    hi i havent attempted keto since the above post. the myoclonus is really bad at times. i spoke with ent last week and he said if it wernt for the fact i am single sided deaf they would just go in and the muscles, but as i have only one functioning ear the risk is too high. on another note, he...
  8. AnnaW

    Zostavax and Meniere's

    Hi Has anyone had Zostavax (shingles vaccine) and did it affect your (menieres or tinnitus) symptoms in anyway? thanks
  9. AnnaW

    Tinnitus and Dizziness

    when you have a constant dizziness like that it could inidcate labrynthitis. i would push for 2nd and 3rd opinions from ENTS and try antivirals and or antibiotics. Just throw drugs at it while you still have your hearing. look up that golfer who went dizzy, he was dx with labyr... and had full...
  10. AnnaW

    Myoclonus and Diet

    well it'sbeen about 4 days of low carb high fat with plentiful coconut milk. but I'm sad to say my tinnitus and myoclonus has been absolutely awful. on positive note I have loads of energy despite the usual sleep deprivation. on goes the search. why does . it seem to go through these phases??? I...
  11. AnnaW

    Myoclonus and Diet

    Well after doing a test of eating more and more carbs gradually over a few days the tinnitus is heavier louder and the myoclonus began again. So I'm going to go back to keto/high fat low carb diet and will see how long (and if at all) it can help with the myoclonus and tinnitus. Both of these...
  12. AnnaW

    Myoclonus and Diet

    It is where you obtain most of your energy from fat as oppose to carbs. So you have low to moderate protein, very low carbs and lots of fat. It can be used in childrena nd adults to help with epilepsy where medication has failed. It is also popular in paleo food communities and in self treatment...
  13. AnnaW

    Myoclonus and Diet

    Hi Thanks for replying. I am also beginning to think that ketones and short and medium chain fatty acids (S/MCFA) are beneficial. But I need to give it more time. I have been eating a low carb high fat diet (HFLC) with loads of coconut milk as according to wikipedia (I don't have time to...
  14. AnnaW

    Meniere's Disease

    I developed menieres age 17 and my Dad developed it n his 60s. I presented completely differently to him and and there are other possible causes for mine. His was completely idiopthic - no infection, no head trauma. Mine was age 17, a few years previous I had a concussion head innjury with...
  15. AnnaW

    Meniere's Disease

    http://www.financialexpress.com/article/lifestyle/health/anti-seasickness-device-comes-closer-to-reality/131251/ just seen this, couldbe useful for us oneday