Recent content by awbw8

It is, I know I can't change the whole system overnight, but even little contributions are something! I'm planning on working on a little booklet that contains beautifully presented, hopeful, and useful information for new tinnitus patients. I'm hoping to work with all the involved stakeholder...

You didn't ramble at all! This is so interesting, I was talking to someone at the ATA last week who said they know a community member who spends a good deal of her spare time visiting her local ENT offices and talking to them about tinnitus. I know it sounds like a small act, but to me, even if...

Thank you @jimH This is incredibly helpful! I really appreciate your insights!

I'm more interested in appealing to the people who happen to also be physicians rather than adding more science to the plate. It's not that I don't think that is critical, I do, but I know it's not the most useful way for me personally to add to helping this problem. I'd like to find a way to...

@Starthrower and @attheedgeofscience have either of you read this? I just became aware of this myself and am curious on others' thoughts. It's the clinical guidelines for ENTs for tinnitus: http://journals.sagepub.com/doi/pdf/10.1177/0194599814545325

@Markku That's a great thought. I had considered the key to it being meaningful quotes of positivity/success from patients and perhaps also doctors if I could get them on board. @glynis I agree, if I can find a way to collaborate with ATA/BTA/doctors/TT etc. in a way that everyone felt...

@Bill Bauer & @derpytia thank you for your thoughts. I agree, @Bill Bauer that it's very unlikely that even a deeply empathetic doctor would be able to post/share/sanction advice with the freedom many might here, and I don't blame them for that, but thank you for sharing your post. It's...

Hi Bill! I think there are ways we could work with doctors. Would every one - probably not. But doctors put all kinds of pamphlets in their offices. I think I have the ability to work with a few in NYC. Assuming someone were to allow it in their space - what are your thoughts? What would have...

@glynis @linearb @Zug @Markku @Steve @derpytia - I'm tagging a few opinionated thoughtful people I can think of - I would really love feedback <3

Hello there everyone! You may have spied some of my research requests on the forum. In speaking with some of the fine people of TT and Tinnitus patients not on the forum, I've been trying to find a way I might add something positive to the lives of those with tinnitus. I noticed that while not...

@foliefortuna please don't give up. I'm just a few months away from my T-anniversary (April 13th) and when I was a year or two in I was still on the fence about whether or not I could live with this. As someone else said, it does take time. It's normal and okay to feel like there's no end in...

Right now it's exploratory. I want to find out what less-obvious unserved needs might be something I can contribute to. So I'm just having conversations, nothing crazy/long and it's all confidential, I'm only sharing broad insights (as you can see no names or individuals identified on the...

Hey Everyone (and @Markku and @Steve especially since you helped me to promote this survey!) I just wanted to let you all know what came of the research you contributed to. It was for those with chronic conditions (including but not limited to tinnitus) and their supporters. I know that often...

Will do, thank you!

Oh, thank you so much! I will DM you :)