Search results for query: *

It is, I know I can't change the whole system overnight, but even little contributions are something! I'm planning on working on a little booklet that contains beautifully presented, hopeful, and useful information for new tinnitus patients. I'm hoping to work with all the involved stakeholder...

You didn't ramble at all! This is so interesting, I was talking to someone at the ATA last week who said they know a community member who spends a good deal of her spare time visiting her local ENT offices and talking to them about tinnitus. I know it sounds like a small act, but to me, even if...

Thank you @jimH This is incredibly helpful! I really appreciate your insights!

I'm more interested in appealing to the people who happen to also be physicians rather than adding more science to the plate. It's not that I don't think that is critical, I do, but I know it's not the most useful way for me personally to add to helping this problem. I'd like to find a way to...

@Starthrower and @attheedgeofscience have either of you read this? I just became aware of this myself and am curious on others' thoughts. It's the clinical guidelines for ENTs for tinnitus: http://journals.sagepub.com/doi/pdf/10.1177/0194599814545325

@Markku That's a great thought. I had considered the key to it being meaningful quotes of positivity/success from patients and perhaps also doctors if I could get them on board. @glynis I agree, if I can find a way to collaborate with ATA/BTA/doctors/TT etc. in a way that everyone felt...

@Bill Bauer & @derpytia thank you for your thoughts. I agree, @Bill Bauer that it's very unlikely that even a deeply empathetic doctor would be able to post/share/sanction advice with the freedom many might here, and I don't blame them for that, but thank you for sharing your post. It's...

Hi Bill! I think there are ways we could work with doctors. Would every one - probably not. But doctors put all kinds of pamphlets in their offices. I think I have the ability to work with a few in NYC. Assuming someone were to allow it in their space - what are your thoughts? What would have...

@glynis @linearb @Zug @Markku @Steve @derpytia - I'm tagging a few opinionated thoughtful people I can think of - I would really love feedback <3

Hello there everyone! You may have spied some of my research requests on the forum. In speaking with some of the fine people of TT and Tinnitus patients not on the forum, I've been trying to find a way I might add something positive to the lives of those with tinnitus. I noticed that while not...

@foliefortuna please don't give up. I'm just a few months away from my T-anniversary (April 13th) and when I was a year or two in I was still on the fence about whether or not I could live with this. As someone else said, it does take time. It's normal and okay to feel like there's no end in...

Right now it's exploratory. I want to find out what less-obvious unserved needs might be something I can contribute to. So I'm just having conversations, nothing crazy/long and it's all confidential, I'm only sharing broad insights (as you can see no names or individuals identified on the...

Hey Everyone (and @Markku and @Steve especially since you helped me to promote this survey!) I just wanted to let you all know what came of the research you contributed to. It was for those with chronic conditions (including but not limited to tinnitus) and their supporters. I know that often...

Will do, thank you!

Oh, thank you so much! I will DM you :)

Thank you for the support @linearb <3 I could also talk to anyone who maybe didn't have T cause by acoustic trauma but is concerned about loud noise in public spaces - anyone fitting that category willing to have a short chat? Thank you so much!

Hello TT - just giving this a bump - any other one person out there who has noise induced T who would be willing to speak with me for 15 minutes or so? It's all completely confidential, I won't be sharing anything but broad findings with anyone and no names or personal details. Thank you! <3

Thank you SO much @linearb

Hello dear TT community, That said, I'm presently in graduate school starting the initial stages of a potential thesis project. I need to speak with (at least) two of our community who have chronic tinnitus from acoustic trauma. Would anyone be willing to speak with me this weekend over a...

Hi there! This survey is actually coming after a lot of other research, so it was based off of prior input, but it is not a flawless survey and could have been worded better in some places, we are graduate students (and humans) so we're also learning a bit as we go, but the feedback is very much...

Hi @Kste Adams We very much appreciate your thoughtful feedback! We did not want/feel the need to require specific health information for this particular survey for a number of reasons, but most respondents did volunteer the names of their conditions, so we are able to sift in that way for most...

Hi Stakovic, I'm sorry you feel that way. The data is really useful and important to us in helping to build a case to our audience. Progress can feel slow and surveys are useless if you don't do anything with the information, but we have been putting in months of work around this; one step at a...

Hi Greg, That is a very good point. We had reasons for not having added it, but I think we should have anyway. I don't want to change it at present to keep some level of uniformity, but I will definitely keep that in mind for future surveys and I will add a "comments" section to our current one...

Hello TT! I'm a long-time member, former staff member, former lurker of Tinnitus Talk and owner and operator of a life with tinnitus. My path to growth from the very dark place I began when I got tinnitus has lead to working with the service design and research tools I have at my professional...

Another bump :)

Just giving this a little * bump * all - I'd love to have some individual(s) with tinnitus involved with our project to spread the word about this chronic condition.

Dearest Tinnitus Talk Community, I haven't been around these parts for a while, but used to be a staff member, supporter, and supportee here on TT. I was admitted to graduate school, and I'm working on research to help support better care and experiences for people with chronic health...

Hey everyone (and @Markku and @Steve ), I just wanted to update everyone who took the survey I put out last year. I used some of the data as work in my portfolio to apply for graduate school and am now in a program working in interaction and product design. I'm hoping to use the data to create...

Hello everyone (and @Markku and @Steve). I just wanted to say thank you so much for so many of you taking the time to fill out this little survey, I've learned so much from you feedback and while I can't promise a fast turn-around per se as I still have a full-time job etc., I am definitely...

Hi MrBonk, I completely hear you re: carrying a good dB meter. I generally just use earplugs unless its pretty quiet, just to be safe. That said, I had a time where even quiet places made me fear it was too loud, because my sensitivity was wonky from the acoustic trauma. It could be 30dB and...

Hi Andunwoody, I completely respect your point of view, that's why I'm doing the survey; right now I'm just assessing need. If the survey said "hey this sounds like crap I don't want it" then I'd just stop the project there. I have tinnitus myself and the whole idea for this came from my own...

Thank you so much to everyone taking this survey, having evidence of need and the plight of those with tinnitus will enable me to do more work on our behalf as sufferers. I want to help us not only through devices, but through advocacy and awareness, so the more evidence (survey takers) the...

Hey there @Zeneth I'm so sorry that this happened to you, but I would try as hard as you can to enjoy the rest of your vacation. If you're nervous about noise, they do have swimmer's earplugs I think that may not get rid of all the noise if you're in the water, but they'll help a little bit and...

Hey, I would consider myself completely habituated at present. I do not think your numbness is a symptom of not being habituated, it is, as others have said, possibly depression. It doesn't matter what brought that on (T or anything else/combination of many things, or nothing), but you can treat...

I have bose noise cancelling headphones and use them on my commute occasionally when I want to listen to music. I like that they're not IN my ear and I don't have to listen to music very loudly to hear it over a roaring bus or subway. Keep in mind that these headphones do cut out lower...

I got T when I was 25 so I thought a lot of the same thoughts you wrote here. I couldn't sleep in silence, I wondered how I would date or marry or hold a job or finish school. It took a while, but one year in I was back in school, two and a half years and I was sleeping in silence again and...

Hey there. So, we've talked about this in PMs already, and I hope you know you and your well-being are cared about here. For that reason, I feel like a tough love truth bomb needs to be laid out. If you're asking me, or anyone, if programming or coding with tinnitus or hearing loss or both (or...

I know I wrote before about my own experience (went well), but if it helps at all and you wanted to get general anesthesia, I had that not long ago for another procedure and it did not affect my T at all. Glad to hear you're getting it out and I hope everything goes smoothly for you :)

Hey, Try not to take the tough love the wrong way - people all care about you here, but it can be frustrating to not be able to help someone you want to help. You need to go seek out a therapist or professional to talk about your feelings. Being depressed with T and hearing loss etc.'s onset is...

I know I'm just echoing what others here have said, but you are not a failure at all. I've said similar words myself in the past, having dealt with depression a number of times throughout my life. It's very hard, but try to recognize that the monologue you're telling yourself in a depressed...

Eric, I actually didn't refute my own argument - I was just noting that I hadn't set out to be paleo for the sake of being paleo. I live in New York and it's quite a fad. I just meant that in looking to be healthy, not just buying into a fad, I had arrived at a diet quite similar (though not...

Agreed and well said! I have a couple of other health issues besides tinnitus and have spent a lot of time with doctors and a lot of time making sure my diet is (give or take a few minor differences) paleo. Though I'd like to note I never set out to be paleo, I set out to eat as healthily as...

If it's any consolation to anyone who felt the need to have answered "coma," I would have picked that easily three years ago. Anyway, my point is the great thing about being alive with tinnitus is that you're experiencing time, and experiences change over time. Humans have an amazing ability to...

Hi Marie, I saw you're going to go talk to the oral surgeon - that's great. I'm not a dentist, but mine told me that they generally can't diagnose anything/offer treatment without an x-ray. I'm sure if your wisdom tooth root is wrapped around a nerve they would see and and make appropriate...

I would not worry. I have noise-induced T and have had a filling since - it was very small, but did require a drill and local anesthetic, but my T was not changed at all. The drill is a stressful sound, but I really, really doubt it's going to damage you in the amount of time they'll need it to...

I would agree with @Alue, I started to really habituate once I "gave up" on trying to make it better, but I would rather look at that as something that will later feel less like giving up and more like acceptance. I really think it will grow into the latter. I also think it's important to try...

Hey there, I'm glad you found TT, but I'm so sorry you're experiencing this - I think you'll find most people here know how you feel. I was 25 when I got T, also from loud music exposure - I also deal with depression and anxiety (before T as well), and experienced a lot of what you say you have...

I don't really notice if it does anything for my T, but it helps my sleep though - 10 minutes later I'm pleasantly super-sleepy :)

Hi JD, I pm'd you, so we can chat there as well - but you should go see a psychiatrist - they are MD doctors and they will spend at least 45 mintues talking with you along with being able to prescribe the appropriate medication. My psychiatrist absolutely saved me - he helped me manage the...

JD, I am so sorry that you are going through this, truly. I got T and hearing loss in my 20s - 25 I think if I'm remembering correctly. I said and thought all of the things you're saying and thinking. We are not the same, but I also left my job and coursework for months, contemplated (very...

I think we all know the feeling, on some level, of wanting to give up. Don't go there yet, it's still early for you and I'll bet that better days are ahead, even if it might not seem that way right now. Keep in mind that medication affects different bodies in different ways. Just talk to your...

@derpytia I don't know that there's much I can say to "help," but I do have a few suggestions if you're not already doing these things: 1. Talk to your psychiatrist about medication. It might not be the right option for you, but it might be worth exploring. As others have said, it can help a...

I used quite a bit of extra sound (not in-ear) when I was habituating. I had an app on my phone (Relax Melodies - or something like that) and played sounds from that, as well as a life-saving little noisemaker thing that played pretty realistic cricket noises when I slept. Personally, I don't...

Hi there Stuart. I'm sorry you're experiencing tinnitus, but I'm very glad you found us! So, while you should certainly keep in mind that I am not a doctor, and this is a better question to ask your physician, from what I've read and learned from my own doctors about ototoxicity, drugs and...

Hi Brittany, I know it's very frustrating to not know what the cause is, or to not have anything you can really address/fix, but it really is a good thing that nothing showed up on your MRI. On the bright side, you can address the insulin resistance and that might make you feel much, much better...

I think @LadyDi just said it quite well, it really does get better for most people and it seems as if you are meeting T with some hope in your heart, despite the difficulty we all know. At least to me, after writing with many on TT over the years, I think that is a sign of better times to come...

Hi Artmuzz, I would be extremely surprised if your filling were the cause of your tinnitus and discomfort, especially if it was very small. I actually just had a similar bit of work done yesterday and had a metallic taste afterward, but that was because I had a little bit of trauma to my gum...

Ichigo, please know that you can absolutely still go to movies, see and play music with tinnitus. I go to movies as do many, many other people with T, you just wear earplugs. My family members and friends even wear them there now, and they're amazed they can still hear the movie just as well. Do...

A lot of people feel this way. Tinnitus is a traumatic event for many, and those kind of events change us. It's not an easy thing to go through, so you should be patient with yourself. Please do be careful at the loud event, Ichigo. There are lots of ways to enjoy music without putting...

Hi Ichigo, No one can say what the chances are that your T will go away or not. I think the best way to think about it that you really can be okay and have a good life with or without T. Certainly, we all wish our T would go away, but most people get to a point where their tinnitus isn't very...