BB23

But yea, with hearing pro inside my ears, the crackling is much quieter. It also depends on my posture and other things. I think those tubes equalize pressure?

@Kiyomi I feel some strange physical sensations when I swallow. Assume the Tensor tympani muscle is tugging on other stuff in weird ways inside the ear..

When I have incidents of TTTS fluttering in my left ear while listening to speaking, putting an earplug only in my right ear will stop it. I'm not sure earplugs help with the occasional TTTS thumps.

All the why's and what ifs doesn't serve any purpose @BB23 other than being counterintuitive for any chance of acceptance and habituation. We could all ask ourself that question, and I've been through it many times myself. Ive stopped asking those questions to myself long time ago as it will only make one miserable.

I was selective about people. For the most part I could ignore them. Now I can't because they invade me with their loud ways. Hate people 100x more now. This is extremely sad.

@gameover i dont want to interact with doctors or anyone, i hate interacting with people and now i am dependant on others to help me out...

Agree. I often wonder if this planet is indeed hell.

For the most part the world is a beautiful place. People are beautiful. Most people, even the poorest are happy. The poorest countries in the world experience the least anxiety and depression. Did you ever see kids playing in war torn countries. I don’t know. Outside of my soul everything looks like a dream.

Just a fact check: No one was getting 'nuked' before the industrial revolution.

I feel this. You are not alone.

Same :( narcissist got me caught up.

@BB23 - you are incredibly strong. Honestly. Much stronger than me.

I didnt realize I was being Narcissist absued till 35.. been stuck in fight or flight all my life. I think this is number one reason why I got this shit. Been taught to ignore gut

Welcome to the club. There's actually a very strong link between autism and tinnitus, we're far more sensitive to sounds and it seems easier to develop hearing issues through that.

Made you different. Has given to a different view of this life. Not worse. Not better. Just your own. No one here gave themselves tinnitus knowingly. Therefore NOONE is at fault.

Don't be too hard on yourself @BB23 Autism is a spectrum and that could make it difficult to get the right diagnosis and adequate help, but as of late there's luckily more public awareness about it and that also helps to make society more inclusive for people like us

The "floxies" awareness stuff online and them getting a black box warning on that stuff really saved my life. Almost every time I go to a doctor the very first thing they do is try to push fluoroquinolones on me.

When I tell them I won't be taking them without fail the doctards give me a dirty look and tell me "wtf are you crazy? you don't know what you're talking about fluoroquinolones are fine."

@Varda street dealers have the same mentality. they wouldnt tell you their products are bad.

Feels like.

I estimate within 6 months for me, possibly sooner.

Well, said @RunningMan

@RunningMan I hope it wasn't all for nothing or we get to continue in another form.

Nah. We're dead, we don't exist.

However how I have been treated since getting T, has made me lose all faith in doctors.

@Tryn2BHopeful if it were just the t, I'd be ok with it. There is a neurotoxicity page on facebook, my symptoms align with the things mentioned there...

I once had to go to a doctor for a simple broken bone and the idiot couldn't even manage to bolt it back together without cutting a huge nerve cord in the process.

@Tryn2BHopeful sleep and vision is fucked, have constant headaches. sleep especially fucked

Fuck the ignorant doctors!!! All they had to do was tell us time and quiet is our only survival tool!!!

I managed to avoid fluoroquinolones because of the "floxies" harm awareness and black box warning stuff. I think the same sorts of things should be done around azithromycin which I had thought was a "well tolerated antibiotic"

Muscle relaxants are all serotonergic, they might exacerbate your T or give you Visual Snow syndrome, I didn't try any. Those sensations are indicative of TTTS, on top of those my ears vibrate to loud sounds and touching my face. That's how I know I have TTTS.

People say magnesium helps them, some people on facebook support groups say antiepileptics help them... IDK.

I’m not sure if this will be of any hope or not, but for the most part my TTTS has settled. I’m actually having a bit of a flare up right now, which still happens every month or two for a weekish, but other than that it’s not there. I have seen other people say the same and when I was in the worst of it, I didn’t believe them. I still get anxious when it flares up. But it is possible it will get better for you!

Opposite for me right now, I’m stressing out and scrambling to find a way to get out for the summer since high temperature = my condition is much worse

It’s extremely hot where I live during the summer, I just want to escape and stay somewhere else

That sounds like major relief

Yeah, because raising awareness about T will surely deter 2nd amendment gun loving Americans from buying firearms. Not to mention the US military (army, Navy, Air Force specifically) already facing recruitment struggles for years now. Enlistments keep shrinking. But let’s blame T awareness…

When?!

Where?

Why?

Hey dude - so H before T for you as well after the 2004 incident? What has the trajectory of your injury been since then? Any improvement since '04 or would you say you're still the same?

@AverageJoe12

Are you sure it's the Mirtazapine that gave you T?

My T started about three weeks after my acoustic trauma. T onset is sometimes delayed.

@AverageJoe12 It's gone from bad to worse without exposing myself to noise or without over protecting. Maybe I should have over protected. If I could go back in time I would probably go for the round and oval window reinforcement. A mechanical protector. But it wasn't possible for me in Belgium. I think my T is too bad to do it now. It has become painnitus.

Not sure!

I dont even know what mild would be, if its what I got then damn! Been trying to get help to try to determine the level of T I have and a doctor to take me seriously for 6 months now. My only guess is maybe it has something to do with the range in which your T is.

Ok my doctor prescribed it for sleep to start with and then told me to take it for my anxiety, but I do sleep good when I take it. I’m just scared taking any kind of medicine. It’s hard to tell if my tinnitus gets worse because it’s always loud and and 24/7 so alot of things I eat make it louder, so it’s hard to tell about medicine.

@SharonBell It doesnt matter if it is an SSRI or SARI. They all cause the same damage. Serotonin is not supposed to be messed with at all. Go to survivingantidepressants.org for more info. I am one such victim so yeah what they say is true!

Fucking poison pills should be banned. Or at least come with big warning about tinnitus. But then 70% people would not take them, so no profit. Fucking medical industrial complex mafia.

I am so sorry :-( You should sue that doctor. Honestly

I have avoided doctors for years. So many examples of them causing or worsening illnesses. Biggest scam on earth that they heal people. I have never seen any examples

I've contacted a few lawyers and asked them if they would like to sue the doctor who gave me tinnitus. I asked if they could work on a contingency basis where their fees will be paid by the doctor when they win the case and none have bothered to write me back.

They don't know any better. It may or may not cause t. There are people who got it from tradozone. Messing with serotonin is risky.

Oh just saw you said you only take it sometimes. That is NOT recommended, they don't work like aspirin, if they aren't taken consistently, it might cause more harm than good, please go to surviving antidepressants.org to find out more...