Recent content by billy43

So sorry that your PT is still causing you so much distress. Do not give up in trying to find a cure. If possible take your scans to other specialists. If you haven't already check out Whooshers.com.There are some success stories of PT sufferers who were able to get help after years of trying...

Hi Jane.Sorry that you now have to deal with Pulsatile Tinnitus following such a serious surgery. I have PT . I get by fine but the first 2 years were an extreme struggle. I saw several specialists. Dr Shapiro was by far the best. He's a nice person.Extremely knowledgeable with PT. Will take the...

Yes you can habituate to pulsatile tinnitus. I have pulsatile tinnitus. Over 4 years now. Crazy hissing noise 24 /7 in sync with my pulse. First year was absolute hell. Things got better and better over time. Once or twice a day it may distract me but over all I'm doing great and thank God for...

Hi Ann. Just some encouragement. I have Pulsatile Tinnitus as well as tinnitus.All kinds of crazy sounds.Im just past the 4 year mark.Check some of my first couple of post and you will see how bad I was hurting early on.I literally thought my life was over. Here's the good news ; It took a good...

AGAG.Hello.i read your post as and I'm sorry your suffering so much at the present time.Quick story .3 &1/2 years ago I came down with pulsatile tinnitus.loud hissing noise in sync with my heart beep.Fast forward .I still have this crazy disruptive noise.3&1/2 years later. I know what is like...

Hi James.There is a doctor in New York city .Maksim Shapiro out of NYU.He's a specialist with Pulsatile Tinnitus .I believe ,for a fee ,he will look at your scans to see if any thing was missed.I saw this doctor in person a couple of years ago.He seemed extremely knowledgeable with PT.Also very...

Hi James.Yes I have PT.just over 3 years.Early on I had several tests/scans.MRI,MRA CT.The one I didnt have done is called a Cerebral Angiogram.One specialist recommended it and two others strongly recommended not having it done.It's invasive and there's a small risk of a stroke and some other...

Hi James.there are some other test you can have done .One of which is very invasive and has some risk of complications.Is your Pulsatile Tinnitus Objective?That is That a doctor can hear it by placing his stethoscope in the area of the ear in which you hear your PT.Also I did hear of a center in...

Awesome post Michael.perfectly said .post like that is what makes TT a great forum.just being able to support each other as best as possible.Happy Thanksgiving to you also and God bless you!

hello Worker.im so sorry you are not doing well at this time with your PT.Please do not feel alone with this maddening condition.i cant tell you how many times I said to myself :HOW CAN ANYBODY LIVE WITH THIS #&$%#*.What caused my PT?I don't know and will never know.IT may have been caused by a...

hello worker.i also have somatic PT mixed with reg.T.Mine is also loud.In the morning im talking really LOUD.mine is a hissing that changes with anything I do .and I mean ANYTHING.chewing,bending over .head, neck jaw tongue,you name it.when i exercise?louder than my mp3 player at its...

hi Stephanie.very sorry that your PT seems to be getting worse with time.I also have PT.in my research in some cases the patients who were able to quiet there PT by pressing on their jugular vein were also the lucky few who eventually found a doctor who was able to find a cure for them.usually...

hello Sergio.i also have a pulsatile tinnitus mixed in with reg.t. Ive had it for around 19 months.for me time has definitely helped.the first 4 or 5 months were absolutely horrible.but im happy to say im doing a lot better and lead a fairly good life.there are several other tests that you can...

Hi Kathi.so glad you are doing well. I love your story because its so similar to mine.im 19 months in.still pay way to much attention to my T.But thank God also never experience that feeling of absolute terror that I went through the first 4 or 5 months.lLike you I also am so happy to say that I...

hi lily.the tinnitus you have is pulsatile tinnitus.i also have PT.only someone who has tinnitus and especially pulsatile tinnitus can understand how difficult it can be to deal with.the good news is in some cases pulsatile tinnitus is curable.also the fact that you developed PT while pregnant...