BlueMoon86
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Apr 30, 2024 at 9:23 PM
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Location:
UK

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BlueMoon86

Member, Female, from UK

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I would sacrifice all natural hearing to get rid of this, and I took enormous comfort in my own favourite sounds all my life. Apr 29, 2024 at 2:51 PM

BlueMoon86 was last seen:
Apr 30, 2024 at 9:23 PM
    1. BlueMoon86
      BlueMoon86
      I would sacrifice all natural hearing to get rid of this, and I took enormous comfort in my own favourite sounds all my life.
      Apr 29, 2024 at 2:51 PM
      1. gameover, 4Grace, tpj and 1 other person like this.
    2. BlueMoon86
      BlueMoon86
      If I walk 20-30ft I get 20x volume for about 10 minutes. If I go for a 10 minute walk I'll spend the next 2 hours trying to calm it down.
      Apr 29, 2024 at 2:50 PM
      1. gameover and 4Grace like this.
      2. gameover
        gameover
        For me it has been mild, usually 1h walk in woods would only mildly spike me. Now it seems to be getting worse. This is fucking unbeliveable.
        Apr 30, 2024 at 5:48 AM
    3. BlueMoon86
      BlueMoon86
      If I move my head, I get 20x volume for 10-20 seconds. If I stand up, I get 20x volume for about a minute.
      Apr 29, 2024 at 2:48 PM
      1. 4Grace likes this.
    4. BlueMoon86
      BlueMoon86
      My Tinnitus is not spiked or made worse by noise. You might think that makes me lucky, but I'm not. It's spiked by MY OWN BODY MOVEMENT.
      Apr 29, 2024 at 2:47 PM
      1. gameover and Kiyomi like this.
      2. View previous comments...
      3. BlueMoon86
        BlueMoon86
        My T is usually at it's quietest when I wake up and I always lie on the bad ear. As soon as I wake up and start doing anything it ramps up. I used to have about an hour of reduced volume in the morning, not anymore tho.
        Apr 30, 2024 at 12:09 AM
        Kiyomi likes this.
      4. 4Grace
        4Grace
        @BlueMoon86 - I have the same. If I press on the right side of my head. Move my neck. Stench my neck. Clenching my teeth just slightly. All of it send my T screaming. Do you have pain or are you impacted by food. I have major impact with foods. It’s the worst part.
        Apr 30, 2024 at 3:48 AM
      5. BlueMoon86
        BlueMoon86
        I can't modulate my T by pressing or stretching or anything. I know that if I stand, move my head, exercise or even swallow something it's going to ramp up. I don't have any pain and I try to stay away from too much salt and sugar.
        Apr 30, 2024 at 11:07 AM
    5. BlueMoon86
      BlueMoon86
      I don't really want to die. I just want it to stop. I'm thinking private cochlear implant. If that doesn't work, then suicide.
      Apr 22, 2024
      1. Juliane likes this.
      2. 4Grace
        4Grace
        I would take out my ears. Both of them today.
        Apr 24, 2024
        BlueMoon86 likes this.
    6. BlueMoon86
      BlueMoon86
      My mum broke down in tears today and begged me not to do it. She locked the door and wouldn't let me go out. I want to die.
      Apr 22, 2024
      1. 4Grace, gameover and Juliane like this.
      2. 4Grace
        4Grace
        This breaks my heart. You are not alone. For what it is worth you are not alone. Hope for a better day is all we have. Hope!!!
        Apr 24, 2024
        tpj likes this.
    7. BlueMoon86
      BlueMoon86
      My whole head reverberates and hums with it. Every cell in my body is recoiling from it. My ear is dying.
      Apr 22, 2024
      2. 4Grace
        4Grace
        I feel this. So sorry. This is insane. I would never have imagined this happening. Had no idea this existed.
        Apr 24, 2024
    8. BlueMoon86
      BlueMoon86
      This low frequency shit is another level. I can hear it over a vacuum cleaner, hairdryer, car. It's so loud and deep and low.
      Apr 22, 2024
      1. SharonBell and 4Grace like this.
    9. BlueMoon86
      BlueMoon86
      I wish I had high frequency tinnitus and hearing loss, I really do.
      Apr 22, 2024
      1. 4Grace likes this.
      2. Utdmad89
        Utdmad89
        You don't, you wish you didn't have T
        Apr 22, 2024
    10. BlueMoon86
      BlueMoon86
      How do people with Meniere's/Otosclerosis get any help with their hearing loss?
      Apr 12, 2024
    11. BlueMoon86
      BlueMoon86
      I am trialling a hearing aid and it is UTTERLY FUCKING USELESS MY GOD. I'd rather be deaf than have amplified bad sound.
      Apr 12, 2024
      1. Manny and Juliane like this.
      2. RunningMan
        RunningMan
        I haven't seen many people report any benefit as far as tinnitus. Sometimes the masking sounds is just more noise on top of the tinnitus or can worsen reactive tinnitus. And then, the amplified noise can be bad for hyperacusis.
        Apr 12, 2024
      3. MiaVIL
        MiaVIL
        My FIL has tremendous benefit with a hearing aid. He had T very bad and now can go 2 weeks without putting them in and during this time he has no T. He claims it was hard at first but the sound lowered to a manageable level then disappeared. The only reason why he wears them now is to prevent it from returning. My mom’s friend’s husband wore hearing aids for 6 months and his T is basically non existent.
        Apr 13, 2024
    12. BlueMoon86
      BlueMoon86
      And why do I have a new high pitched hissing tone since last week?
      Apr 1, 2024
    13. BlueMoon86
      BlueMoon86
      Had a ENT appointment this morning. Slightly better than last time (still a moderate loss overall) so why tf my original T so loud?
      Apr 1, 2024
      2. Jammer
        Jammer
        That's how T rolls. Fuck you loud one day and louder the next, for no apparent reason.
        Apr 1, 2024
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  • About

    Gender:
    Female
    Location:
    UK
    Tinnitus Since:
    12/2023
    Cause of Tinnitus:
    Sudden Hearing Loss

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