Recent content by brummygirl

Hi Greg You’re wonderful. I’m popping back to DM. Will post there.

Time for an update. It has been confirmed that my son has hyper mobile EDS, which helps to explain the neck injury. But not to treat it, sadly, as there is no ‘cure’. We found a very lovely pain specialist who seems genuinely interested in our case, so now we have another person who wishes to...

We saw the specialist yesterday. He was excellent. Over the years of searching for a way to get rid of this tinnitus, I spent many months trying to find someone to give a pain block so that we could get more effective and intensive physio. I didn't manage to do this. People backed out or...

Hi all Some of you may remember me. My son developed severe and distressing tinnitus and neck pain following lifting a kettlebell incorrectly. We have followed all sorts of leads, seen all sorts of people and had all sorts of tests in the nearly three years since. No MRI or x-Ray showed any...

Serves me right for being dozy. Should have woken up and realised it wasn’t your story @just1morething ... I’ll go back to sleep now...

@just1morething that is such good news! I am absolutely delighted for you. I will let my son with tinnitus know. He is working on this too. :beeranimation:

@Lane Apologies for butting in to your conversation with Greg, but my son also has a whiplash-type tinnitus. We are currently looking in to the worth of upright MRIs on the CCJ and cervical spine (mixed opinions) but have considered this Atlas work before. We have also, incidentally, picked up a...

Hi @Coyotesheaven Did you ever have Botox? We are considering it in the neck muscles would be interested to hear of your decision. Kind regards Shirley

I just realised that I never came back to finish this thread. Unfortunately, after dental work with an appliance to reduce the stress at the jaw, there has been no improvement in the tinnitus. I must say that the dentist involved was very kind and professional and really spent a long time...

@kelpiemsp thanks so much for keeping us posted on this!

Just to check back in. Two months on the keto diet (<20g carbs daily) but no change to tinnitus, although not really expected as my son's tinnitus is likely due to muscle strain. Also, comprehensive blood tests have never shown any deficiencies that could be remedied by diet. However, a nice...

I received the email too. We are in the U.K. and so won't be volunteering to go at this stage. Clicked through, though, and I see that to date 75 people have volunteered. I am a little surprised the number is so low but it is early days yet, I guess.

@Markku @kelpiemsp Brilliant. Thanks very much. This is spot on where my interest lies for my son.

@kelpiemsp thank you so much for posting the diagram above. Extremely interesting. Did you put it together or can we see it in situ somewhere else?

Yes, we went through a rollercoaster of expectation and disappointment with TRT. It put my son off talking therapy in general in a big way, unfortunately.