Recent content by Chelles

@3mmalee, I take Baclofen. It’s hard to tell if it helps with my MEM or not since it comes and goes but it does help with my muscle spasms outside of my ear. What has your doctor told you?

@3mmalee, I take Tegretol and muscle relaxers but they were prescribed before my recent flare of MEM. I also take marijuana pills and that helps relax the muscles. In order for me to get some sleep while my ear is twitching I have to put the fan right next to me so it can mask the sound and...

@3mmalee, I take muscle relaxers for my spasms in my outer ear, it seems to work. Maybe you can find a doctor that can prescribe you some or even Magnesium is good for muscle spasms.

Does anyone here take anticonvulsants for MEM? Back when I was first dx'd with MEM, I was told I can take anticonvulsants. At that time I declined but, fast forward a few years and after a few different medical conditions, I find myself taking these kinds of meds. Recently my MEM began to...

@sdotosull, I did in the past. I went to a doctor in Philadelphia but since mine is caused by MS I don’t think surgery would help me. How about you?

Hello @3mmalee, like you, I suffer from different spasms in my ears. It started in one ear and moved to the other. I also suffer from eye twitches and I feel twitches behind my nose (if that makes sense) and outside my ears too. It’s super aggravating. I’m sorry you have to go thru this too.

Hey everyone. I haven’t been here in years but like you, I suffer from MEM. It started back in 2015 and it was so bad I was suicidal at one point. The only thing that helped me sleep was sleeping with an earplug, kind of like if I was sticking my finger in my ear. I suffered for about a...

Hello everyone. I figured I'd stop by and give an update. My MEM got much better for a period of about two years (I still got the daily thumps after every burp and yawn) but it didn't linger until this past week I feel like my ear is starting back up like it did when I first got it so of...

@Mojo were you able to find a doctor to inject you with botox?

@japongus my ENT diagnosed me with myoclonus you need to find a neuro-otologist they are more familiar with this condition. I found a doctor who does the surgery without cutting into your ear she goes in endoscopic through the nose so its less invasive. I think ive read the posts you are...

I think we just saw a perfect example of why he wants to leave this negativity behind him. I wish you well and hopefully you wont have to come back cuz ur t will be gone!

@Amy Cutler loke you i also have thyroid issues (graves disease) and my goiter is exactly like yours bigger on the right side. My right ear is the worst one now im wondering if theres a connection. I have MEM in both ears but my right ear is always the worst!!! That whole side of my face and...

@japongus what are your symptoms? I have myoclonus however it was diagnosed based on symptoms because the doctor cant see the muscles unless they cut your eardrum. My spasms are a loud thump that usually comes w every yawn, burp, hiccup or sometimes it can happen by itself. I hear the spasms...

@Beste according to ENT i dont have hearing loss my test results were perfect. My T started on left ear then moved to both ears same sound abd same frequency. I personally think i have hearing loss because i can barely understand the tv i need captions on, but then again my ears are horrible...

Maybe you can get maskers with cricket sounds. My t can sometimes go away w certain noises the tv makes its weird.