Diesel
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  • 24-Hours after receiving the first Pfizer COVID-19 vaccine. No change whatsoever in hearing / tinnitus / hyperacusis.
    Thank you for all of your input on the FX-322 thread over all this time. We all need to keep cheering science on, even as it stumbles. I look forward to our "alumni gathering," as you say, WHEN we are better.
    Diesel
    @Keith Handy, appreciate the kind words. Science can be unpredictable. The FX-322 project is an attempt to make the body do something it has not done in human evolution. I continue to be optimistic that we are at the tipping point for treating SNHL. Once we've all had our dose of FX-322, I'd be happy to host an Alumni get together. Music will be at a responsible volume, and the foods will be low in sodium.
    Welp. Got my covid vaccine scheduled for 4-16. Couldn't put it off any longer. Will report back on any complications.
    Zugzug
    Curious if you had a preference, regarding tinnitus and hyperacusis. I couldn't conclude one way or another, as tinnitus is a real side effect that's not super common. My instinct was that J&J was slightly higher risk.
    Diesel
    @Zugzug - My parents both got Pfizer. Both have tinnitus (Noise-Induced), both had no issues re: tinnitus. My order in preference is Pfizer, J&J, Moderna.
    Shelbylynn
    I did both moderna and so far it was fine
    Been kicking around the idea of finding a job that is 100% remote work. Thoughts?
    Diesel
    I've currently been 100% remote since my firm shut down in March from covid. At first it took some adjustment, but now it's working out well. My current job req's a ton of communication, which I do well remotely. I def don't miss the commute, put about 100 miles on my truck since march, 2020. There are talks about "everyone coming back" .. not sure I'm feeling it.
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      buttercake

    I agree with @ajc . It's probably a double edged sword. At the moment I am living in a country which is not my own and we are "strongly encouraged" to work from home, so I am completely isolated. I think I would have confronted my tinnitus better if I had my old routines of going to the office and meeting few colleagues...
    twa
    Even though I am somewhat reserved, I'm finding that I miss the camaraderie of working with people and being part of a team. Ironically, most of my career I was on a team and hated it. My husband went back to his office about 2 months ago and it has helped him mentally. He said he is more productive in the office without the distractions of home. He is asking his staff to return in June.
    Had food poisoning for the past 2 days, yet my tinnitus has never been quieter.
    Kriszti
    Rushing to eat something nasty. No, bad jokes aside, get well soon and fingers crossed your T remains quiet.
    Jack Straw
    Very interesting! Sorry about the food poisoning though. That really sucks!
    twa
    Interesting, people with inflammatory conditions tend to feel better (joint and pain wise) when they have food poisoning. Inflammation goes down in the absence of inflammatory foods, maybe?
    Years ago, I realized I "see music" in my head. I also "see digits" when doing math. Today I was asked if I "see my T?" The answer is yes.
    twa
    You're a visual learner. :-D
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      buttercake

    What do you mean by "see digits"?
    Welp. Made it about 14-min into Sound of Metal before bailing out... Maybe something a little lighter for movie night tonite...
    Steph1710
    Even the trailer for the film made me well up. I will attempt to watch it soon. Hope you found something nice to watch in the end.
    twa
    It sounds way to heavy for me. Ironically, I saw A Star is Born about a year before my acoustic trauma. The depiction of his hearing loss is pretty spot on.
    Mister Muso
    It wasn't an easy watch but was good to be able to tell my other half about how relatable some of it was as she watched it with me.
    You've reached T veteran status when you're "cool" with certain tones and "not cool" with other.
    twa
    For three years I had very faint cicadas. I heard someone say recently their T sounds like angry cicadas. I never knew my faint cicadas could change, they never changed and never came into my consciousness unless I listened intently. Now I also have morse code in the ear that experienced the acoustic trauma.
    LilSass
    Hi @twa! Was yours originally cause by an acoustic trauma? Mine was caused by meds but I'm concerned that it will get worse - that is my biggest fear. 1.5 years in and it is the same, not better but not worse.
    twa
    @LilSass Hi! I'm not exactly sure what caused my original T. I had a back injury 5 years ago and I was prescribed several meds. I also had an MRI which I remember the tech said the ear plug doesn't fit in your left ear. She continued with the MRI w/o any protection and I thought she would tell me if it wasn't safe. I remembered the very faint cicadas started after I did a micro-taper of Clonazepam.
    Alright. I'm taking a break. Shout out to @FGG and @Zugzug for being cool and thoughtful when shit hit the fan.
    ajc
    See ya in 6 hours. ;-)
    Drachen
    I know it's already been said, but it can't be said enough: you have performed a considerable service to the forum. Please take whatever time you need.
    FGG
    My turn for a break...
    Where did we land on a day full of Fleeting Tinnitus episodes? Stress? Diet? No recent noise exposure or spikes.
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      buttercake

    FT is another mistery to unravel. I wish it was a mathematical problem.
    Diesel
    @buttercake it blows my mind. I got weeks, WEEKS without fleeting T. Then suddenly, I'll have days were they are random throughout the day, back to back in sequence. Always the same pitch, always the same-ish duration. I saw some people mention ETD.. but I dont know if its related? Or what I would experience with ETD?
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      buttercake

    @Diesel same here. During the Christmas break I had a shitload of episodes, several/day. Three weeks ago I had one that lasted 30 minutes. Last two weeks nothing.
    Breaking out some old school computer games to keep me distracted this week.
    asey20
    I read that as "breaking some old school computer games" and though why would you do that. I was shook. I missed the out part. lol
    L
    What old school computer games are you talking about?
    Diesel
    Quest for Glory
    Alright. I'm going to take a break from TTalk until those 90-day results come out. Talk to you all then.
    Bold Prediction: We're going to learn in the near future that Fleeting Tinnitus isn't just "nothing."
    FGG
    @Diesel, I read a journal article that possibly linked fleeting T to dynorphins stimulating NMDA receptors.
    Bill Bauer
    Yes, it is likely your body re-calibrating itself, in an attempt to get rid of your T.
    Kicking back with a nice big glass of kava, and reading about cochlear drug delivery ... the Friday night I never knew I wanted.
    Nice. Just learned cicada Brood X is going to heavily emerge in my area. Guess I'll be hanging out indoors for an extra 6 weeks.
    I hope that some day we can have a TinnitusTalk "Alumni" gathering when we no longer have this condition.
    NAC seems to help. Taking it daily for 6-mo. Recent T+H spikes less severe + faster recovery to baseline.
    Need to better ease into all the positive hearing loss treatment news happening this week ... don't want to shock the system in 2021.
    Once these hearing meds are on the market, how many will find out they were misled, and all they have is garden-variety acquired SNHL?
    I continue to be surprised how uninformed the general public is about hearing loss, especially people who already have been living with it.
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