I have a similar experience with my secondary endolymphatic hydrops.
I have to follow a low-salt, low-sugar diet, and I take prednisone when it flares up.
I’m hopeful that the new drug, SPI-1005, will help if it gets approved.
Maybe listening to sound stimulation at the same frequency as their tinnitus reduced their tinnitus level. When they added electrical pulses, it had an even greater effect.
My tinnitus spiked with each episode of sudden hearing loss in the left ear. The hearing loss recovered and tinnitus calmed back down each time. It happened 3 times in the last year and I got 3 injections 1 week apart each time. I was also put on high dose Prednisone each time. I think the key...
I had 10 intratympanic injections of Dexamethasome in my left ear over the last year, for sudden hearing loss due to Meniere's.
Each time they also gave me a couple shots of Lidocaine inside the ear canal about halfway in to numb it before the intratympanic injection. Sometimes they would give...
It’s disheartening knowing there is finally something that seems like it will help many of us sitting on a shelf collecting dust. I hope we don’t have to endure this same conversation for the next two or who knows how many years before we are able to get some real world feedback on this device.
I’m sorry. I am in the same situation with my twin 5 year olds. I feel the same way today. I guess all we can do is keep trying our best. Don’t be too hard on yourself. Your post made me feel not so alone. Thank you for that and I hope tomorrow brings a better day.