I have been diagnosed with Cochlear Hydrops, but I'm unsure if my symptoms align with the condition. At this point, I'm reliant on steroids to maintain my hearing. When I stop taking them, my hearing deteriorates again.
In September 2021, I experienced a brief episode of low-frequency hearing loss and tinnitus. I took one course of steroids, which restored my hearing, but shortly after, I lost it again. Another course of steroids resolved the issue, and my hearing remained stable until March 2024, when everything worsened.
The symptoms began with low-frequency hearing loss. Each time I take Prednisone, my hearing improves, but when I taper below 5 mg or complete the course, the hearing loss returns, along with unbearable tinnitus.
Last night, I had my worst episode yet. I lost my low and most mid frequencies, and I experienced excruciating low- and high-pitched tinnitus, which felt like it was around 80-100 dB. In desperation, I took 60 mg of emergency Prednisone from the cupboard. Within two hours, my hearing returned, and the tinnitus subsided enough for me to sleep. This morning, there's barely any ringing or tinnitus at all.
Does this sound like Cochlear Hydrops to you? Aside from this, I believe I'm healthy. I had an MRI and blood tests, both of which came back normal, but I still have doubts about what's happening. I'm feeling desperate, as the only relief I get is from Prednisone, even at low doses.
In September 2021, I experienced a brief episode of low-frequency hearing loss and tinnitus. I took one course of steroids, which restored my hearing, but shortly after, I lost it again. Another course of steroids resolved the issue, and my hearing remained stable until March 2024, when everything worsened.
The symptoms began with low-frequency hearing loss. Each time I take Prednisone, my hearing improves, but when I taper below 5 mg or complete the course, the hearing loss returns, along with unbearable tinnitus.
Last night, I had my worst episode yet. I lost my low and most mid frequencies, and I experienced excruciating low- and high-pitched tinnitus, which felt like it was around 80-100 dB. In desperation, I took 60 mg of emergency Prednisone from the cupboard. Within two hours, my hearing returned, and the tinnitus subsided enough for me to sleep. This morning, there's barely any ringing or tinnitus at all.
Does this sound like Cochlear Hydrops to you? Aside from this, I believe I'm healthy. I had an MRI and blood tests, both of which came back normal, but I still have doubts about what's happening. I'm feeling desperate, as the only relief I get is from Prednisone, even at low doses.
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