Recent content by GrosBalou

  1. GrosBalou

    Noticing a Trend in My Habituation...

    I feel the same about my tinnitus... I'm more than 6 months in and everytime I think "wow I don't hear my tinnitus in that almost silent place, it must have went down" it obsiously didn't. And the same goes for the opposite : "woah, my tinnitus is so strong, how the fuck am I supposed to live...
  2. GrosBalou

    AM-101 Clinical Trial — Participants Updates and Discussion

    Are the 5% is related to the intratympanic injections done along AM-101 ? Is he doing follow-up visits as well ? Or is it more a general thing over perforated eardrums ? Quoting AM-101 phase 2 results (for the 227 patient which completed the study) : "In 93% of cases, the eardrum was already...
  3. GrosBalou

    AM-101 Clinical Trial — Participants Updates and Discussion

    Does someones knows how do they measure T loudness for TACTT3 ? Only through participants reports ? Or do they still do the loudness matching test / minimum noise masking level ? (as I read in some other post for TACTT2).
  4. GrosBalou

    AM-101 Clinical Trial — Participants Updates and Discussion

    The ENT responsible for the trial at my end told me that you don't have to fill the questionary every day. She told me that I would have to do it like a week or two before follow-up meetings. There may be a realtion between your T and your blood pressure in your case. I don't think that's a...
  5. GrosBalou

    New to This--Need Help

    Welcome on TT, At onset the T can be unstable, since yours is new you still have a chance for it to lower with time. Even if it does not, most people will habituate to their T, but this takes time (several months at least). You could try some supplements as well (Magnesium, Vitamin B12, NAC...
  6. GrosBalou

    AM-101 Clinical Trial — Participants Updates and Discussion

    I think that's the way to go ! Plus, you're helping science :) Good luck !
  7. GrosBalou

    AM-101 Clinical Trial — Participants Updates and Discussion

    You are partly right. Most countries in Europe (if not all) accept tinnitus up to 6 month old, but in some other countries the trial is limited to 3 months old tinnitus. Here's the link for UK : http://www.tinnitus-study.info/uk-the-study
  8. GrosBalou

    SF0034 — E-Mails to the White House?

    Hello Penate, This trial would only take place in America? Also, do you know if it would be dedicated to epilepsy? Or both epilepsy and tinnitus?
  9. GrosBalou

    Are Vasodilators Like Vinpocetine or Ginkgo Biloba Safe? Do They Help?

    There's already a thread for ginkbo biloba : https://www.tinnitustalk.com/threads/ginkgo-biloba.1686/ I personnally tried it but it didn't do much.
  10. GrosBalou

    AM-101 Clinical Trial — Participants Updates and Discussion

    I think it's because it is harder to measure the lowering of the T when it fluctuates. And because it's a clinical trial, what matters is not to cure everyone but to measure if the drug is effective or not. I believe that if the drug was out, you would have had access to it.
  11. GrosBalou

    Maybe a few times a week, I'm running low on pills ! Taking them on a daily basis made them way...

    Maybe a few times a week, I'm running low on pills ! Taking them on a daily basis made them way less efficient also. Concerning AM-101, I've had an encounter with an ENT (no phone call). She wanted to make sure my T was due to a trauma (acoustic, ear infection, ...) and which meds I'm using (as...
  12. GrosBalou

    Information from Auris Medical on AM-111

    I've read that AM-111 is being tested following acute acoustic trauma or sudden deafness within 48 hours from onset. I guess everyone here is far from that timeframe ! Also it only works for people with severe hearing loss (others seems to have recovered on their own). Whatever, that's really...
  13. GrosBalou

    Retigabine (Trobalt, Potiga) — General Discussion

    I think we would need more data on this, How many epileptic patients has a neurologist ? How many patients among these are taking trobalt ? Then again, only one in five of those is supposed to have tinnitus. Mild ? Moderate ? Loud ? Some of them who are having it mild to moderate could not...
  14. GrosBalou

    Will There Be a Cure Within the Next 20 Years, What Do You Really Think?

    How can you guys be so pessimistic ? Maybe I will be too after so many years of T :confused: Medicine isn't something straight but there are people working in order that we get better. I wish I had numbers which would say how much is being spent on research today compared to 10 years ago. I...
  15. GrosBalou

    Brivaracetam — KV3.1 Modulator

    This is supposed to be the last step before they receive the actual marketing authorisation. This comission gave a positive opinion uppon drug commercialization. So basically nothing should prevent this drug from reaching the market.
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