Recent content by Gstar2020

Thanks for your kind replies. Sorry to anyone that is going through this as well. I honestly wouldn’t wish it upon anyone. I personally think I’d handle the situation slightly better if I at least knew exactly what was causing my issues but the not knowing is half of the battle. I’ve now...

My pulsing tinnitus began last year in February. It was there every day but I did get moments of silence. Over the months I felt it was getting slightly better as I was having days of silence rather than the odd moments. However, over the past month or so things have got bad again. The...

Hi, Please can someone give me some advice and guidance on where I need to go from here? Any suggestions are welcomed at this stage because I’m at my wits’ end. I will try to keep this post as short as possible but please bare with me. I am a 37-year-old mum that lives in the UK. No...

Hi Andrea, Thank you for your post. Your symptoms sound a little like mine. Just a quick question for you please? Is your ringing tinnitus also linked to the SSCD? I’ve seen quite a few GPs, ENT consultants and a Neuro surgeon but I still don’t have a clear certain diagnosis. I developed...

Hi, Thanks for your post. I was wondering the exact same thing because I’ve noticed that my tinnitus is bad during my period too. Very loud. I was wondering if my pill (Norgeston) was the cause to my issues but my GP doesn’t think so. I wish I knew the reason behind my onset. Steph, your...

Hi, Are stents permanent or do they need replacing eventually? I’m so happy that you have been diagnosed and have had some treatment. I still haven’t had any answers or diagnosis myself yet. I had a lumber puncture but my levels were all normal apparently so I’m still none the wiser as what’s...

Congratulations. That’s amazing. I’m very happy for you :-)

Hi, I had the lumbar puncture done as I’ve been suffering from pulsatile tinnitus and regular tinnitus for months and it was suspected I had a raised ICP level. I regret having it done now as I feel worse than I did before. The tinnitus is louder and more invasive and my head feels like it...

Hi all, I had a lumbar puncture done last week but have had really bad worsening of tinnitus ever since. It’s even louder than before and the tones are now mixed and keep changing. I’m concerned that this huge spike is now permanent and I can honestly say that I regret having the lumbar...

I’m located in the UK. I think I possibly have IIH especially because of the eye symptoms. This has been mentioned by the consultant but nothing has been confirmed yet as I haven’t had any of the tests done. An angiogram and lumbar puncture are both what have been suggested. Regards.

Thanks. There’s only one doctor I know of over here that can perform one. It’s the risk of a stroke that bothers me. Do you know if the angiogram can make the tinnitus any worse? I asked if I could just have the lumbar puncture done but he said no and that he would only do the lumbar...

Hi. Can anyone please share their experiences with their cerebral angiogram? I’m curious to know about the procedure and how you felt during and after etc? I’m awaiting an appointment to have one done but keep worrying about the risks as I’ve heard there is a risk of stroke. My consultant...

Are you in the UK? I think stents sound promising but I don’t know too much about the procedure itself at the moment. I’m very worried about the angiogram as the procedure sounds a little scary. But I guess it’s worth having done if it means a diagnosis and hopefully a treatment. Please keep...

Hi @Taneisha Have you had an angiogram done at all? I have pulsatile tinnitus and am awaiting an angiogram. I’ve been told it’s possible that I will need to have a stent too. I’m also awaiting a lumber puncture test. Hope you get some answers soon. Regards

Thank you:-) I will take a look. So I wonder if your normal tinnitus will subside once your pulsing tinnitus is rectified as the blood flow should hopefully then return back to normal. Fingers crossed. Regards.