Recent content by Jason E

  1. Jason E

    Hey Momme, still very difficult, I've had better days then some worse days, the white noise...

    Hey Momme, still very difficult, I've had better days then some worse days, the white noise generator helps to an extent, but I find the pitch of my tinnitus really cuts through anything. I guess it's better than nothing at all.. I've also had ear pain and hyperacusis since too, been a rough...
  2. Jason E

    Lenire — Bimodal Stimulation Treatment by Neuromod

    They haven't mentioned any intention of coming to Australia. I put my name down for a waiting list in Germany that I'll never be able to afford. Sometimes it just feels like why bother. Hard to keep positive when it just feels like it's getting worse every day. We don't even have an official...
  3. Jason E

    First Time Trying White Noise Generator Hearing Aid for Tinnitus and Hyperacusis

    No problem at all mate, the twitching in your ear definitely sounds like a symptom consistent with TTTS. The noise distortion did return to normal for me eventually, as for the noise distortion as far as I'm aware it's basically your auditory gain has been turned up as a protective mechanism...
  4. Jason E

    First Time Trying White Noise Generator Hearing Aid for Tinnitus and Hyperacusis

    Hey mate, Sorry to hear of your affliction with t and hyperacusis, it can be definitely difficult to manage and for others to understand. When I first got tinnitus I too had noise distortion, hyperacusis and tinnitus, your symptoms sound very much like Tonic Tensor Tympani Syndrome, which is...
  5. Jason E

    First Time Trying White Noise Generator Hearing Aid for Tinnitus and Hyperacusis

    Yeah that's very interesting, I just had a read. Maybe the sound suppression capabaltiies are a lot higher on the device in this clinical trial, my hyperacusis was enough to make life generally uncomfortable, but it was generally all high end frequencies that bothered me the most, ironically my...
  6. Jason E

    First Time Trying White Noise Generator Hearing Aid for Tinnitus and Hyperacusis

    Hi there Selah, the hearing aid I've been prescribed is the Phonak Audeo Marvel M30. It's got Bluetooth capabilities so you can also connect it to your phone and use tinnitus masking sounds via the app, currently I'm just using the soft whitenoise broadband sound programmed by my audiologist.
  7. Jason E

    First Time Trying White Noise Generator Hearing Aid for Tinnitus and Hyperacusis

    Just thought I'd do a bit of an experience post here, so for the past 13 months I've had tinnitus, i had more or less habituated but needed anti anxiety medication to help me settle down. Anyhow over the last few weeks the tinnitus ramped up and I was getting desperate, I went to see a well...
  8. Jason E

    Thanks mate.. I sure hope so

    Thanks mate.. I sure hope so
  9. Jason E

    Just came on out of nowhere mate, can't think of any noise exposure I've had, but it's just like...

    Just came on out of nowhere mate, can't think of any noise exposure I've had, but it's just like it was at the initial onset of tinnitus, feels very much like acoustic shock, ear feels extemely sensitive, hyperacusis and T
  10. Jason E

    3 week spike, so high pitched i can feel the tingling sensation in my brain. I wish so much this...

    3 week spike, so high pitched i can feel the tingling sensation in my brain. I wish so much this would settle down.
  11. Jason E

    I don't honestly know if I can continue to deal with this level, to the medical community, We...

    I don't honestly know if I can continue to deal with this level, to the medical community, We are desperately hanging on.
  12. Jason E

    First Spike Out of Nowhere After 12 Months with Tinnitus — Been on Lorazepam for 12 Months

    I am clueless of what to do, I can't mask the sound because my ear pain is killing me, it's not hyperacusis because the pain is there with or without noise, the tinnitus is so extreme not even high dose benzodiazepines are relieving it at all. I am desperate and feel like I have no where to...
  13. Jason E

    Poll: How Long Do Your Tinnitus Spikes Usually Last?

    Currently two weeks in to a major spike, I have no idea how to deal with this shit. I hate the fact it takes so much joy away from life.
  14. Jason E

    I have absolutely no idea, came on out of the blue, I had felt like I was habituating now I feel...

    I have absolutely no idea, came on out of the blue, I had felt like I was habituating now I feel as though there's a needle of sound piercing through my ear with pain. Thanks very much, I'm really hoping it settles too. Hope you are managing also.
  15. Jason E

    First Spike Out of Nowhere After 12 Months with Tinnitus — Been on Lorazepam for 12 Months

    Hello Michael and thank you for your response, that is what I thought may be the case, I did on several days increase my dose "as an experiment" but to no avail, so I am going to be investing in something to mask the intensity for a little while and slowly try and taper off the lorazepam as soon...