Josh-mh's latest activity
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JJosh-mh reacted to DimLeb's post in the thread New University of Michigan Tinnitus Discovery — Signal Timing with.
This thread should really stop having the word "New" in the title... -
JJosh-mh reacted to LovableGamer's post in the thread Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration with.Do you know if there are any updates on Dr. Chen? I know he worked on a gene therapy that helped children. Is there any news about the...
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JBen Shapiro Award: UCL Ear Institute study awarded UK prize for tinnitus research | Brain Sciences - UCL – University College London
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JSo there were multiple researchers looking into this, and they discovered that the risk of tinnitus increases with noise exposure? o_O A prime...
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JJosh-mh reacted to ColinUK's post in the thread New University of Michigan Tinnitus Discovery — Signal Timing with.I am sorry, but with this one, I do not see how the FDA can be blamed. After more than a quarter of a century of research, the company that is...
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JJosh-mh reacted to Nick47's post in the thread New University of Michigan Tinnitus Discovery — Signal Timing with.The more the community gets behind Tinnitus Quest, the more time we will be able to dedicate to this work. Trust me, there are board members who...
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JJosh-mh replied to the thread First Major Spike After Six Years — Hoping for Improvement.Yes, it has been approximately two months and ten days. I feel like I have good and bad days. I am trying to get booked in for an ABR to see if I...
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JJosh-mh replied to the thread First Major Spike After Six Years — Hoping for Improvement.Hey, the tinnitus is back to baseline, but I still have ear fullness and muffled hearing in my left ear. My hearing test is unchanged compared to...
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JJosh-mh reacted to Muggumbo's post in the thread Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration with.I went back and checked. It took three days. I used the info@cilcare.com address.
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JJosh-mh replied to the thread Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration.Thank you for checking - hopefully their slow response is because they are busy setting up their clinical trials 🤞🏻
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JJosh-mh reacted to withintention's post in the thread New University of Michigan Tinnitus Discovery — Signal Timing with.You only get one chance to launch a new product. I have been at five startups, and we always wished we could take more time to get things right...
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JJosh-mh reacted to LovableGamer's post in the thread Complete Restoration of Hearing Loss and Cochlear Synaptopathy with.I’m in need of some hope. I have sensorineural hearing loss and am hoping that a treatment will come out soon so I can hear normally again. Who is...
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JJosh-mh reacted to lymebite's post in the thread New University of Michigan Tinnitus Discovery — Signal Timing with.I think that is a good idea, but from what I have gathered through discussions in patient support groups, the delay does not seem to be with the...
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JJosh-mh reacted to Nick47's post in the thread New University of Michigan Tinnitus Discovery — Signal Timing with.This is the most sensible comment I have read on this thread in a long time. The trial ended three years ago. Think about that, or focus on...
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JJosh-mh replied to the thread Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration.How long did it take them to reply? I sent a similar email a little over a week ago, but I have not received a response yet.
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JJosh-mh reacted to Muggumbo's post in the thread Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration with.I did reach out to Cilcare about clinical trials for tinnitus. They did not provide much new information, but here is their response: If you live...
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JHopefully I will see you there! Can anyone truly be sure whether their hearing damage is due to hair cells or nerves? It is almost always likely...
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JI’m keeping a close eye on this. If it progresses to the stage where it’s established as safe, and they just need a larger trial with people who...
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JJosh-mh reacted to Justin Mills's post in the thread Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration with.Tinnitus is caused by cochlear synaptopathy. For example, if you go to a club without earplugs, the loud music can damage cochlear synapses...
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JJosh-mh reacted to Scruffiey's post in the thread Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration with.If there’s one in the UK, what have I got to lose? Another 10 to 20 years as a hermit with an aching, hissing ear while I wait for it to come to...
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JJosh-mh reacted to Bob3382's post in the thread New University of Michigan Tinnitus Discovery — Signal Timing with.For almost a year, I was checking these sites every Monday, looking for a device by Auricle. If you simply click “search,” it will list all of the...
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JJosh-mh reacted to BadNeighbors's post in the thread New University of Michigan Tinnitus Discovery — Signal Timing with.Look, we are all suffering from tinnitus. There is no reason to come here looking for political arguments. When I visit this thread, it usually...
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JNail on the head, @Scruffiey! Even before my first tinnitus onset, I had to live with very sensitive hearing. After I developed tinnitus, my...
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JJosh-mh reacted to Fields's post in the thread Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration with.I personally thought this was a little funny: Imagine going from hearing loss and tinnitus on one end of the scale to not being able to sleep...
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JJosh-mh reacted to Watasha's post in the thread New University of Michigan Tinnitus Discovery — Signal Timing with.Let’s not get hysterical. The US is in serious trouble due to its current fiscal situation, including deficit spending and national debt. However...
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JJosh-mh replied to the thread Rinri Therapeutics.I really hope this is successful. The hearing loss is starting to stress me out even more than my tinnitus.
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JJosh-mh reacted to Fightthearmy's post in the thread New University of Michigan Tinnitus Discovery — Signal Timing with.I don't see how there's a connection to tinnitus...
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JJosh-mh reacted to SafeMusicFan's post in the thread Research on the Origins of Hyperacusis and Potential Future Cochlear Imaging with.This is incredible. The ability to “collect images of the cochlea in awake animals for the first time” is a major breakthrough. If this can be...
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JJosh-mh replied to the thread New University of Michigan Tinnitus Discovery — Signal Timing.Remember, everyone—one day at a time! Each day that passes brings us one step closer to the device becoming available!
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JJosh-mh reacted to Pixelito's post in the thread New University of Michigan Tinnitus Discovery — Signal Timing with.FDA rehires staff to its medical devices division after mass layoffs The Trump administration is reinstating some employees in the Food and Drug...
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JJosh-mh reacted to Frédéric's post in the thread Injectable Polyplex-Loaded Glycol Chitosan Thermogel for Efficient and Safe Inner Ear Gene Delivery with.Yet another team is trying to solve the inner ear delivery issue. Injectable polyplex-loaded glycol chitosan thermogel for efficient and safe...
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JJosh-mh posted the thread First Major Spike After Six Years — Hoping for Improvement in Introduce Yourself.Hello, everyone! Tinnitus sufferer since 2019 here. I’m currently going through my first major spike—it’s been ongoing for four weeks and two...