Karolina

Yeah, I kinda knew how good it was, but I now really do.

I remember 1 month before t that I was thinking in my bed 'damn I'm glad that I don't have any serious disease or chronic pain', I felt so grateful to be alive then :(

Musical tinnitus. A rare form.

Yep. And no one gives a shit or wants to hear it. I'm sorry you're going through this.

Sorry.. it feels like our nervous systems gotten through such harsh stresses, pfff.. praying for the possibility of restoration with time..

@crescentsky maybe there would be hope for me if I never went to doctors. hearing tests, mri, meds destroyed my ears. It was absolutely mild at the beginning, now I am just surviving

What meds did you take?

I went to orthodontist at the beginning bc i thought my t is related to my tmj, he prescribed me naproxen which made my t more unstable (I didn't know anything about ototoxicity), then predonisone made it even worse, it gave me more tones and dysacusis

With a fucking passion.

if I wasn't such a law abiding person, I would be making global headlines.

Oh I understand you completely! My neighbor is screaming slurs very loudly after 11 pm almost daily, and his dog barks almost daily. Also, the new family moved into the building in front of mine. They have 2 loud dogs that bark on the balcony every morning at 5 am. I'm trying to soundproof my room as much as I can

I also have a very loud HVAC unit right below my window. It shows 60-75 decibels in my room with window closed. I found a very heavy and thick sound dampening blanket on Amazon and I hope it will help me block some noise. Unfortunately, this means I won't have any sunlight in my bedroom. Right now I sleep in small walk-in closet. It's quiet in there but hard to breathe :c

Just like you I developed phonophobia and party agoraphobia. The world is just too loud. Funny how I didn't notice it before getting T and H. And funny how my apartment building is right in front of a highway in the middle of the city...right by the biggest hospital in my area... with 7(!) different emergency rooms. Yes. Sleeping more than 3 hours per night is already a bliss lmao

I feel the same way.. how can life be so unfair. I find it not understandable why life is unfair.. my mantra nowadays is.. don't look too far in the future.. just try to go day by day.. finding anything that improves sense of calm and wellbeing

noone deserves this :(

H should go away. Very good chance.

It won't. I did dumb mistakes bc of lack of knowledge and horrible advice, I exposed myself too much to sounds at the beginning and now I'm overprotecting. I had very mild h, now I cannot even shower anymore

I also live with a family that is quite noisy, there is no sound insulation in the apartament and I have the loudest neighbors in the world. I am just doomed I guess

While waiting to die, you can work on accepting that your tinnitus is now your constant companion that will be with you on your journey.

I have and life goes on.

@Jammer is right. Given the alternatives (or lack thereof), all you can do is accept the new normal.

On a side note, we're probably living in a crucial period during which new technologies and treatments are being developed for tinnitus. Perhaps we'll be one of the first people who may receive ''real' treatment for this ailment.

Some have more than tinnitus to deal with. There isn't any treatment for H/N coming.

Feel the same way. Nothing matters anymore. This stupid sound follows me around, I want to kill it so badly

I don't think those things will help me

@Karolina Why do you think that?

Too much damage. Also, I don't think Susan Shore device will help people with multitonnal reactive tinnitus and severe hyperacusis (i'm also slowly develping nox, unfortunately)

Hope that it is possible is what keeps me alive

I think I did too much damage, my body doesn't want to heal

I also damaged my body by living unhealthy for years.. the thing i say to you and to myself is.. live a healthy lifestyle with plenty of rest, and give yourself time.. who knows..

I forgot to mention that ear muffs can also be helpful. But you'll want to guard against overusing these because using them for long periods of time can cause TMJ and/or trigeminal nerve issues.

@MadeleineHope How can ear muffs cause issues?

I wear them a lot. Can they cause neck issues?

I feel like you do. You are young. Please keep the hope for a better day.

My T was my own fault but I somehow don't think about the accident that often anymore.
My symptoms don't seem to be as bad as yours, so I'm able to not fall into the "what if xyz" - phase too often.

So I hope your symptoms get better to a point where you can think about something else, even if it's just for 30min.

same. ideally a few years back and I'll buy a place with acres of land away from crazy people&ambulance.

I've felt/feel this way too.. however.. it's not over till it's over i tell myself. Life will end someday anyhow... sometimes it feels like i just have to endure now, and my best hope is that with a natural lifestyle.. things may heal in time

Sorry @Karolina. Is anything at all bringing you relief?

I am worsening daily now, I don't think I can be helped anymore

Sorry to read.. the thing i tell myself is.. i want the t to be over.. but i have no control over that.. somehow i have to endure for now.. i need to have patience.. hoping and praying for better days.. giving it time..

I have the same problem.

Do you have loud T? I cannot survive silence and all noises hurt my ears. Silence is by far the worst for me.. again sound hurts my ears!! BS!

It's quite loud and it's very reactive, but it's the quietest in silence, the tones are also more soft and less bothersome. My h is so bad that I cannot stand most sounds, I'd rather stay in silence

@Karolina - I wish you better days. I know it’s not easy. The fraise “quietest in silence” is one I wish I understood. It is foreign to me. My T is very reactive and has always been loudest in silence.