Karolina

Karolina

Member 24 From Poland
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  • Karolina
    This is death sentence
    Utdmad89
    Yep. And no one gives a shit or wants to hear it. I'm sorry you're going through this.
    L along the way
    Sorry.. it feels like our nervous systems gotten through such harsh stresses, pfff.. praying for the possibility of restoration with time..
    Karolina
    I used to make music. Now I will never be able to listen to it again :((
    View previous comments…
    Sammy0225
    As the loudness H got better so did everything else that's only thing I can say. The reactive T bullshit goes hand in hand with loudness H. It's some midsole ear bullshit. I still have it all I just learned what my limits are @Karolina
    Sammy0225
    Also I was 24/7 living in my closet with muffs and eventually my shit calmed down enough for me too tolerate some sounds and I stopped living in my closet worst year of my fukin life
    Zigs
    @Sammy0225 sorry to bother you but when you say you were living in a closet, do you literally mean you spoke to nobody in that time? How did you start coming out or that phase? If you could share some more details of how bad you were and how you began making progress I'd be so so grateful! I've looked back through your posts but can't find anything on this
    Karolina
    So scared rn, extreme t, extremel h, extreme phonophobia, waiting for my room to be soundproofed, I cannot just worsen forever :((
    View previous comments…
    _Shoto_
    Oh I understand you completely! My neighbor is screaming slurs very loudly after 11 pm almost daily, and his dog barks almost daily. Also, the new family moved into the building in front of mine. They have 2 loud dogs that bark on the balcony every morning at 5 am. I'm trying to soundproof my room as much as I can
    _Shoto_
    I also have a very loud HVAC unit right below my window. It shows 60-75 decibels in my room with window closed. I found a very heavy and thick sound dampening blanket on Amazon and I hope it will help me block some noise. Unfortunately, this means I won't have any sunlight in my bedroom. Right now I sleep in small walk-in closet. It's quiet in there but hard to breathe :c
    _Shoto_
    Just like you I developed phonophobia and party agoraphobia. The world is just too loud. Funny how I didn't notice it before getting T and H. And funny how my apartment building is right in front of a highway in the middle of the city...right by the biggest hospital in my area... with 7(!) different emergency rooms. Yes. Sleeping more than 3 hours per night is already a bliss lmao
    4Grace
    You said something in a thread that I relate to. You think you hit rock bottom then it gets worse and worse. I also do not have spikes. I keep getting worse. Never better. Never a calm day. Like being allergic to air. I agree and often said that,,, My heart is with you. This condition sucks.
    Karolina
    Just what the fuck did I do to deserve this
    L along the way
    I feel the same way.. how can life be so unfair. I find it not understandable why life is unfair.. my mantra nowadays is.. don't look too far in the future.. just try to go day by day.. finding anything that improves sense of calm and wellbeing
    streifzug
    noone deserves this :(
    Karolina
    My ears burned immediately, t went through the roof, I had double pro, but so what? Fuck why this shit doesn't allow me to live anymore (3)
    Karolina
    Travelling by car was already a struggle with my h, but it was just 20 miles ride. And then 2 loudest motorcycles in the world passed by (2)
    Karolina
    So I rented a summer house for a couple of days to escape from loud neighbors, loud family, loud trucks driving by my window (1)
    Karolina
    This isn't life anymore, this is survival, I've been running away from sounds for a month now, god help me I'm not strong enough for this
    View previous comments…
    4Grace
    H should go away. Very good chance.
    Karolina
    It won't. I did dumb mistakes bc of lack of knowledge and horrible advice, I exposed myself too much to sounds at the beginning and now I'm overprotecting. I had very mild h, now I cannot even shower anymore
    Karolina
    I also live with a family that is quite noisy, there is no sound insulation in the apartament and I have the loudest neighbors in the world. I am just doomed I guess
    Karolina
    so once tinnitus is catastrophic all that i can do is to die huh
    View previous comments…
    Jammer
    While waiting to die, you can work on accepting that your tinnitus is now your constant companion that will be with you on your journey.

    I have and life goes on.
    Christiaan
    @Jammer is right. Given the alternatives (or lack thereof), all you can do is accept the new normal.

    On a side note, we're probably living in a crucial period during which new technologies and treatments are being developed for tinnitus. Perhaps we'll be one of the first people who may receive ''real' treatment for this ailment.
    Utdmad89
    Some have more than tinnitus to deal with. There isn't any treatment for H/N coming.
    Karolina
    Trying to find a quiet apartment, but everywhere is too loud. I'm losing tolerance to sound. I feel so hopeless.
    View previous comments…
    MadeleineHope
    I forgot to mention that ear muffs can also be helpful. But you'll want to guard against overusing these because using them for long periods of time can cause TMJ and/or trigeminal nerve issues.
    Juliane
    Juliane
    I wear them a lot. Can they cause neck issues?
    Karolina
    I want to go back in time
    Kiyomi
    My T was my own fault but I somehow don't think about the accident that often anymore.
    My symptoms don't seem to be as bad as yours, so I'm able to not fall into the "what if xyz" - phase too often.
    Kiyomi
    So I hope your symptoms get better to a point where you can think about something else, even if it's just for 30min.
    crescentsky
    same. ideally a few years back and I'll buy a place with acres of land away from crazy people&ambulance.
    Karolina
    I am damaged beyond repair
    L along the way
    I've felt/feel this way too.. however.. it's not over till it's over i tell myself. Life will end someday anyhow... sometimes it feels like i just have to endure now, and my best hope is that with a natural lifestyle.. things may heal in time
    Karolina
    I lost my mind
    Juliane
    Sorry @Karolina. Is anything at all bringing you relief?
    Karolina
    I am worsening daily now, I don't think I can be helped anymore
    L along the way
    Sorry to read.. the thing i tell myself is.. i want the t to be over.. but i have no control over that.. somehow i have to endure for now.. i need to have patience.. hoping and praying for better days.. giving it time..
    Karolina
    I need some quiet safe space, I don't have any, walls are thin like paper, cars are deafeningly loud, neighbours are loud, family is loud
    4Grace
    Do you have loud T? I cannot survive silence and all noises hurt my ears. Silence is by far the worst for me.. again sound hurts my ears!! BS!
    Karolina
    It's quite loud and it's very reactive, but it's the quietest in silence, the tones are also more soft and less bothersome. My h is so bad that I cannot stand most sounds, I'd rather stay in silence
    4Grace
    @Karolina - I wish you better days. I know it's not easy. The fraise "quietest in silence" is one I wish I understood. It is foreign to me. My T is very reactive and has always been loudest in silence.
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