Recent content by lcho

@Markku Thank you so much for doing this; this will be really helpful for all of us, and especially those considering trying this as soon as we’ve had some real user experience from people on this site. Would you be able to tell us how many people have already signed up for the user experience...

I agree with you to an extent, but @kelpiemsp also makes the valid point that MML is also affected by the tone of your tinnitus. MML is a very particular measure, whereas THI is far more encompassing of overall suffering. I would argue that THI is the most holistic, and clinically relevant...

I think it depends on the sufferer too, but yes in general we’re all more interested in MML or TLM. The point of that post, however, was to address the repeated misinterpretation of Neuromod’s results regarding THI reductions vs CBT in this thread - it wasn’t to say that THI is the most...

I’ve seen repeated mentions on this thread since the slides were posted that this treatment isn’t more effective in reducing THI scores than CBT. I’m all for critically analysing the results, but this is incorrect - I would like to clear this up so people aren’t misinformed. CBT reduces THI...

In brief, these results show that for those who were compliant (those who completed at least 66% of the recommended 30 to 60 minute session every day for 10 weeks) achieved a reduction in TLM of 7.5dB, and an average reduction in MML of 9.7dB, after 10 weeks of use. These results were clinically...

While I agree with @Paulmanlike on questioning why they didn't present the MML/TLM scores, there are also positive highlights to take from the data analysis which I believe show that while this isn't a cure, it's an effective treatment - building upon his comments. 1. For hyperacusis sufferers...

Hey, I just started using Floradix magnesium to try and resolve Middle Ear Myoclonus - which it did mostly. However, it also seems to have coincided with a new tinnitus tone which also includes constant slight crackling too for 3 days now, although I'm not sure if that's from the magnesium or...

Thanks Rube and Marius, the new noise has been around for a few days now so hopefully it is just a spike or some sort of stage in the process of AM-101 hopefully doing it's work. And also Rube I only had the injections in my right ear

I'm not meaning to put you guys off taking part in the trial, maybe this is just a temporary change in the tinnitus, I'm not sure how it works exactly

So it's been 17 days since my first injection. At this point in time I can still hear the high pitched whistle in my right ear. However, now there seems to be a very loud low pitched hum constantly which seems to come from my head rather than my right ear, which was affected by the acoustic...

I'm currently partaking in the AM-101 trial, I'm about 15 days into it out of 90, however I've had no improvement in either my T or hyperacusis. However I can opt out of the trial whenever I want, and with the Autifony trial coming up, and me currently living in the UK, I'm considering leaving...

Okay so I had my 3rd injection yesterday and the high pitched aspect of my tinnitus has already decreased in volume, and the low frequency one seems to be on and off. It's a small improvement but it's definitely done something :)

There's still other options mate! You looked over at the retagabine thread?

Yeah I'm not sure whether the spike is because of the temporary hearing loss from the eardrum being perforated or not, but here's hoping I did get the actual drug! And I'll keep posting updates with my progress

2nd injection this morning, the feeling of fullness in my ear has increased and my tinnitus is at an all time high, although it should get worse before it gets better (if it's not the placebo)