Recent content by Luisa

  1. Luisa

    Major Rumbling... Most Invasive... I Need Your Help.

    How nice of you Karen to send such a nice letter. I seem to be quite experienced in all kinds of Tinnitus as I understand your pulsatile Tinnitus. Glad to hear its not as troublesome for you as it can be. Im going to look for the open MRI. Ive had so many in the past year, it would be nice to...
  2. Luisa

    Major Rumbling... Most Invasive... I Need Your Help.

    Hi all, Ive written before, but still need to share whats going on, as I HAVE to find out if there are others experiencing some of this...Ive spent weeks with a Neuro-surgeon and had Cerebral Angiogram....as they felt I had an Arterio-venous Fistula in my head making this noise that could...
  3. Luisa

    I Need Someone's Kind Help

    Thank you so much Gary. Friends who understand is what I need for sure. I wish there was a way to form a local "in-person" support group. All the best....Luisa
  4. Luisa

    I Need Someone's Kind Help

    Hi everyone, I am having a difficult time understanding how this site works and connecting with someone. Because I had regular T for many years, this past whole year, where major new sounds and hummings were set off led me to Neuro radiologists who did a big cerebral angioram saying I had a...
  5. Luisa

    7 Straight Months of High-Level "Squealing"

    I would so Love to stay in touch with you! Im very confused by this site so Im going to send you my email and we can write that way. Much less confusing. Your hatred of your doctor...do I have a s tory...a Neurosurgeon put me thru brain surgery thinking my noise was a fistula that could...
  6. Luisa

    7 Straight Months of High-Level "Squealing"

    I had a strange thing in Oct that 3 teeth had trouble at the same time. I did have root canal however, the noise suddenly became to this maddening change before the root canals but after the teeth started. Ive had Tinnitus for 25 years frankly. It was always troubling, I always needed sound...
  7. Luisa

    7 Straight Months of High-Level "Squealing"

    How I'd love for some of us to get together. I see Chiropractors 3 times a week...I try to keep everything in alignment....your examples of car and truck are quite endearing. For years I had T in one ear, and had to always have a fan or some sort of noise on even on vacation. Suddenly in...
  8. Luisa

    7 Straight Months of High-Level "Squealing"

    Im so not used to
  9. Luisa

    7 Straight Months of High-Level "Squealing"

    Golly I don't know where to private message you. My dr Maksim Shapiro is renowned for working with tinnitus
  10. Luisa

    7 Straight Months of High-Level "Squealing"

    Having had T for so long, and knowing its ups and downs, I was never prepared for what began last October. Suddenly it became a level so loud there's no getting away from it. There seems to be no accustoming myself to it and it doesn't ever change. I visited a very famous doctor at NYU Langone...
  11. Luisa

    Eardrum Vibration? Tensor Tympani Myoclonus?

    My dear Eric...After suffering for so long with true Tinnitus in my right ear...learning to live with it...A MOTORBOAT developed in my left ear which never had any noise before. I liken it to a motorboat running and the engine skips as its vibrating...I can feel the vibration as well as hear it...
  12. Luisa

    I Am Reaching Out to My Fellow Friends Here

    My Tinnitus journey is only growing in most disturbing way, and thought to ask you all out there if anyone (since major neurologists dont know) if you've experienced anything to this level. My right ear has the very loud tinnitus and pulsatile has developed as well. I have forced myself after...
  13. Luisa

    Am I So Different Than All of You? I Only Have Loud Days...

    Take the step with the MRI..its really nothing...and I"ll be my house it will be normal results..and wont that make you feel better!....best of luck
  14. Luisa

    Am I So Different Than All of You? I Only Have Loud Days...

    Thanks!! Im going to do that right now..thanks for the referral...
  15. Luisa

    Am I So Different Than All of You? I Only Have Loud Days...

    Golly..Im sorry...I hate to see young people resorting to so much medication. If possible, please go to a good health food store and look at all the products available in Homeopathic remedies for sleep and rest...Im so surprised that they actually do work...without all the side effects we worry...