Melike

Melike

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Member From Istanbul, Turkey
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  • Melike
    Regular T is nothing compared to this Typewriter Evil T. You can't mask it, you can't habituate. Thank god it is not always existent.
    Bill Bauer
    Do you have any ideas of what might have caused this new type of T for you?

    In an earlier post, you mentioned that your boyfriend had developed T several months after you got T. How is he doing?
    Melike
    @Bill Bauer I have so many ideas and there are so many theories outside, it makes me feel stressed actually. Btw, this typewriter T is not new at all, it started 2 months after the regular T onset but it is never always present, but when it is, it sometimes takes 1 -2 months to go away / reduce again.
    Melike
    @Bill Bauer Actually he is doing okay. By personality he is just the guy who never cares about what has been going on in his body unless there is EXTREME pain. And he is also a workaholic and %95 of the time thinks about his art so he habituated to it just like that. Lucky bastard :/
    Melike
    At least I am grateful for my two wisdom teeth removal with no complications so far. I'll get rid of the remaining two on 21st of Feb!
    Melike
    TMJ MRI revealed that I have a noduler lesion in my parotid gland (very close to T ear).I am freaking out and unexpectedly suicidal tonight.
    View previous comments…
    Melike
    @MuffinMan serious clicking & locking on the T side and a TMJ specialist examined my jaw movements and said there is definitely something wrong. But my TMJ MRI says everything is fine, so I am confused a little. I wonder if we still can have TMJD even if the MRI results seem fine.
    Bill Bauer
    It seems to me that it is too much of a coincidence for you to have that lesion AND T. The doctors who say that it can't cause T are likely wrong. Consider looking into getting that lesion treated...
    Melike
    Will consult a few more ENTs...Will keep you updated about the situation @Bill Bauer
    Melike
    Had 2 wisdom teeth removal today. Little pain so far. 2 more to go on the T side. Hope it will be the same for them too.
    View previous comments…
    MuffinMan
    I have removed 3 wisdom teeth, I lower left was a night because it was impacted, I got sick for 2 weeks from infect, I still have the lower right to remove, and it's on the side of my T ear.
    Zeneth
    my sister had all 4 of hers out at once with no problems
    Melike
    @Zeneth hmm, strange...I felt sad for her, she probably had difficulty with eating for a few weeks :/
    Melike
    My sisters intermittent T is gone on the right and reduced significantly on left after bilateral wisdom teeth removal. DOCTORS ARE CLUELESS.
    Melike
    Had a dental procedure today ( cleaning + one filling on the T side). No spike so far ! 1 filling + 4 wisdom teeth removal coming soon :(
    Melike
    I got a middle ear infection in my T ear(due to flu).Regular T is not affected that much, but my intermittent morse code went thru the roof.
    Tinker Bell
    Sorry to hear that! I hate how getting sick affects my ears more than it ever did before hearing loss. Hope you're feeling better soon!
    Melike
    Thank you so much @Tinker Bell! Actually I know how you got your T and you and your story were always on my mind this week. I have to take antibiotics but there is nothing else I can do to prevent a possible spread to inner ear.. :/
    Tinker Bell
    It's frightening. We worry so much about noise exposure but can overlook the danger of viruses. It sounds like you're doing a great job of being proactive and doing what you can to quickly recover. I use Flonase and Claritin now at the first sign of a cold and they seem to help dry out my nasal passages. Eww, I know, but necessary for me. Keep me posted on your recovery!
    L
    I used to have exploding head syndrome too. It sucked sooo bad. I'm always afraid it'll come back but I try to not think about it.
    L
    Hi! I have a lot of your symptoms. Did your visual snow/floaters/other visual stuff get better?
    Melike
    Hey @Layla23. I still don't know if I have VS or not. The only thing that I know is I see flickering when I focus on busy dark patterns like the surface of my carpet. But it is absolutely dark with zero texture when I close my eyes. So, I don't know about the VS
    Melike
    @Layla23 I still have lots of light floaters and blue field enthopthic phenomenon(which I believe almost everyone experiences). Exploding head sensation is gone for good thank god. It is so strange that here are lots of mysterious sensations that come with T, some of them leave some of them stay.
    Melike
    I think my T volume never went down for real. I just got better at masking it all the time with other sounds. Sad truth.
    View previous comments…
    Shera
    Well at least you know masking works and can get some relief that way.
    Melike
    @Shera how are you doing? :(
    Shera
    A little off. I thought I was starting to habituate, but I've been a bit off the rails lately. The intensity is killing me.
    jjflyman
    How is your T doing? I'm 21 months in and I had a little spike (small acoustic shock), but it went back to my baseline (mild T) in a couple days.
    So even after this long spikes can still happen. My overall T has decreased a lot, and I'm still hopeful for a full recovery,(it continues to SLOWLY fade) but it may take another 6-12 months
    View previous comments…
    Melike
    @jjflyman Thanks ! I really hope it is a sign of full recovery :)
    dpdx
    How are you Melike? is it better now?
    Melike
    @dpdx No, its been really spiky for a few weeks for some reason but I tell you what, nobody's T journey is the same so it is probably healthier for you to not check out for other people's progress and compare. I'm assuming you are doing this because I've been there too and it did not do any good. No offense please, just sharing my experience.
    Melike
    Hi all.Today is my 1 year anniversary with T and I am experiencing the most silent days of this year nowadays. It really gets better :)
    View previous comments…
    dpdx
    any update Melike?
    Melike
    @dpdx unfortunately my T has been a little louder than its normal level for the past 2 months. Don't know why.
    dpdx
    I been dealing with intrusive tinnitus since January, before that I had mild tinnitus. Hyperacusis is also bad. Life sucks now.
    Melike
    I def feel better but considring the volume of T throughout 10 months.Maybe %10 decrease? :( Is it normal to see major imprvmnt after a year
    View previous comments…
    Melike
    @dpdx It is so sad that the song is all about misfortune, doom and gloom
    dpdx
    that is why i chose it
    Shera
    @Melike I get what you mean. By my first 3 months my T was almost gone. Then when my jaw got reticked the T just kept getting worse and worse. I know there's been some improvement now, but it's still so intense. The healing/improvements seem so small. My brain is so exhausted.
    Melike
    Its 04.20 am here and cant sleep because of my loud screaming T plus morse code. I am exhausted.
    Melike
    I'm approaching my 10th monh mark. I am happy to say that I'm mostly out of darkness but sometimes it just makes me want to die. Today.
    TheDanishGirl
    Glad to hear you are doing better. I think bad days will still come sometimes, but as long as we can move forward, better days will come again
    Melike
    Despite the relatively rare occasions that T bothers me A LOT, like today, I am happy to say after 9 months, I am %90 back to my old life.
    View previous comments…
    Melike
    @jjflyman But also I sometimes realize that I dont hear my tone in places where I previously would. I really don't know, it is quite hard to distinguish. Being T free would be too good to be true but I still believe that I will keep improving. 9 months is still the early stages for this monster, right?
    jjflyman
    @Melike Yes, 9 months is still early. Progress is so slow. I read someplace (from an ENT report) that 1-2 years is a typical time frame for recovery. IMO, we are both on track. I hope to see both our success stories here next year.
    Shera
    I'm glad to hear you're doing so well. I hope I get to where you are and keep making progress.
    Melike
    I had a major spike yesterday night. Seriously, it was horrifying. But it made me realize how much I've improved since the onset. A lot.
    View previous comments…
    Melike
    It still can subside. Hold on there. We are this >> . close to overcoming this shit. @Shera
    dpdx
    I hope you are doing well Melike?
    Melike
    @dpdx hey. I had better days, actually. My T is a bit loud for some reason nowadays but I'm coping better compared to the first few months after the onset.
    Melike
    It is so strange that first my boyfriend, then my sister and recently my mother developed T too. It all happened it just 2 months! So weird.
    View previous comments…
    Melike
    @Equalizer Can you just f-off? I am better. I don't talk about my T at all. Why the hell they keep telling me about their T then? why do they lie for no reason? Don't comment on my posts again.
    Melike
    @JurgenG I would say chronic stress. We all have been going through really difficult times in terms of financials, family issues etc. No, we all live in different cities but they spent a considerable time in my house of course.
    Melike
    @khushbu Thanks. No, it did not. It is strong as hell. Still can stop it by pressing my TMJ but I am not able to afford a treatment for my jaw at the moment. My T is not that loud, not noticeable during day time (%90), only annoying at home and night thankfully.
    Melike
    I now have a job ! A pretty good one indeed.
    View previous comments…
    Melike
    @victoria9273 thanks victoria :) I still have bad days where the volume of my T is pretty high, but I am so busy that I can't even think about it. Nighttimes become a torture at that times. On my good days, I don't hear my T during the daytime and I manage to sleep the whole night without waking up
    Melike
    dpdx
    why not Melike?
    Melike
    In a much better place despite my loud new secondary tone. Thank you my dear over-demanding and merciless school.
    TheDanishGirl
    Wow, how do you maintain such a calm demeanor? :p, Im envious of that....I would have been in great despair if I developed a loud new tone
    Melike
    @TheDanishGirlKD I am sick and tired of being a mess over and over again. I think I finally learnt how to say 'fuck you' to every trouble that comes with T. My sister, my boyfriend and recently my mother developed T in the last 2 months, that helped me to think that I am not alone, to be honest.
    TheDanishGirl
    As much as I am sad that your family members has also developed T, I do understand you! It helps to be around people in the same situation, who understands you. I am beginning to become habiatuated but I am not quite their yet.
    Melike
    I need someone from Canada to get in touch with me asap.If you are currently in a job searching process, thats better. I have some questions
    sanj100
    Hey there. Hope you're well. I read that you had rTMS done and that it helped you, but from your recent messages it sounds like you are still suffering from tinnitus. Did the rTMS only work short term?
    Melike
    @sanj100 hey, the short answer is yes. But it is still unclear if my T was brought by a disorder in my left TMJ. rTMS wouldn't work anyways if it was.
    Melike
    I am officially diagnosed with TMJD on my T side today. I don't know what to think.
    View previous comments…
    Casper
    Hey @Melike, thanks for your reply. I hope this is the beginning of some real improvement for you. If you don't mind me asking, what kind of treatment is he suggesting?
    Melike
    @Casper he said that we need to get an MRI of my temporomandibular joint before we choose any kind of treatment method.
    Shera
    Keep us posted! I'm very curious what he will have you do.

    Also, did he advise you to sleep on your back if you're a side sleeper?
    Melike
    Menstruation + a BIG HEAVY flu gave me the worst morse code+high pitch ever. Still waiting for it to fade a little bit.
    Melike
    Lidocain eliminated my T almost completely. Silence is so beautiful.
    View previous comments…
    John G
    Maybe I will try some in my morning coffee haha
    @Melike curious if your T will completely go away after you get your wisdom teeth pulled.
    Sonic17
    So, you have Tinnitus due to an impacted wisdom tooth?
    Melike
    @John G hahah, me too !

    @ABakos we still don't know that. A dozen of dental expert think that they are not related. A neurologist on the other hand thinks that it is certainly because of that.
    Melike
    Now my boyfriend has a brand new tinnitus. We are the T family. YAAAAAAY.
    View previous comments…
    Melike
    @jjflyman Thats unclear. Probably working with loud equipment without ear protection. He is a musician also. I warned him several times but....
    jjflyman
    Hopefully he will protect his ears from now on, and his T will fade.
    Doga
    Congratz! I feel strangely awkward for saying that. Lol :)
    Doga
    Selam, benzer sorunları paylaşıyoruz. Hatta ben de Ahmet Şirin'e muayene oldum. Erken süreçte olduğu için bana r-TMS uygulamadı hatta FMRI'a bile girmedim ilaç tedavisiyle geçiceği yönünde umudu vardı ama 7 haftadır bir değişme olmadı malesef. Okuduğum bölüm yüzünden ilerleyen günlerde daha da kötü olacağına eminim hatta. Sana birkaç soru sorsam?
    Melike
    Selam. Olur tabi. Ama mesaj atsan daha iyi sanki, atabiliyo musun?
    Melike
    yorumunu sildim ki mailin görülmesin :) @Doga
    Melike
    Going through the same old hell again. Morse code + loud scream on the left. I hate these swings.
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