RishRamsey
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  • It feels weird, me trying to hold on, to get a few more years under my belt before my inevitable early death.
    Steph1710
    <3 sorry you feel this way @RishRamsey. Feel free to inbox me if you want someone to talk to/rant at.
    And I am only going backwards. God please give me the strength to go on for a few more years. Don't want to go before my Mom does.
    RishRamsey
    Yeaaah man. I wonder how do people who have this for years manage. In the fb group, a lot of people have it for a lot longer. I am tired and defeated in just months.
    Julien87
    Hang in there dudes. Don't let this fucking signal rule you
    L
    To answer your question: undiminished will to live. One very valuable piece of advice: keep exercising or you'll run into new problems.
    How much I pray each day to get a fatal disease, that'll just take me out in a few years. God, please give me the bloody cancer!
    H is just not getting better. Bounces b/w severe and extreme.
    L
    @RishRamsey 8 months ago basically anything. Running water, opening doors, walking, and even chewing induced symptoms or setbacks (and this was while I was wearing plugs and muffs). Now, I can walk through my home with only plugs and I can eat, open doors, take a bath, walk, and whisper a bit without pain.
    RishRamsey
    @Labyrinthine Same here. Literally anything triggers the symptoms.
    One thing - when you wore the muffs for too long, did it create the pressure in your ears?
    Like whenever i remove the muff, there is always some kind of pressure.
    RishRamsey
    So I have to pop my ears continuously to relieve some of it. Maybe I am removing them too fast so that creates some kind of vaccuum?
    As if severe H and moderate T wasn't enough, I am seeing floaters now. Hate my life!
    RishRamsey
    @TheDanishGirl - I am really sorry to hear that :( I also read about eye flashes and retinal detachment, that shit sounds scarier than hyperacusis.
    RishRamsey
    @TheDanishGirl - People are telling me to look for eye flashes, but i don't know how they look. like what to look for? Do you have any idea? Like my vision seems a bit off, like I was looking at the washing machine right now and it seemed a bit off, like something was in b/w my eyes and the very dark colored washing machine.
    RishRamsey
    Can they be floaters, obstructing my vision, if I couldn't see them properly while looking at the washing machine? Or was it something else?
    Scared to get out of home, to office, once the lockdown gets over - which is in a week :(
    TheDanishGirl
    I feel ya. My workplace is luckily locked down the rest of april, maybe longer (it is an activity center for the elderly, so to risky opening it just yet). I also fear going back eventually as my H is quite troubling these days.
    O
    Same for me. Shelter in place in effect until May 3rd for us, dreading going back as my H doesn't seem to be easing up despite being home in a quiet environment :(
    Reading at all the posts here, it's like I don't relate with anyone. H is such a different beast than T.
    C
    • C

      Capstan

    I feel the same way, Rish. I am so sorry you have so much pain.

    I think we all have a multitude of symptoms and complexities making it a unique personal struggle. I am very envious of those with just T. I read all day looking for those that have the same, but haven't found anyone exactly the same.

    I hope relief comes soon to you.
    O
    Agree 100%.
    It just hurts and hurts and hurts, and burns and burns and burns. Pure torture. Such a traumatic experience.
    OnceUponaTime
    :( So sorry you're going through this, Rish. Have you tried applying cold compressions around your ear? That used to help me. I hope you get better from hyperacusis.
    Don't wear muffs in silence, it makes things worse. Your commute to work sound stressful and damaging. Perhaps with C.Virus you can work from home. Or take an absence from work? Like I said, H shut me down...full stop. Good luck
    RishRamsey
    I am working from home as much as I can, but I don't know how to remove muffs at home. Everything is so loud and hurts :'(
    RishRamsey
    It's been bad for more than 4 months now, with really no signs of improvement :(
    More than 4 months since this increased H. 0 improvements. I have pain even in silence wearing my muffs and every fucking thing hurts!
    H shut down my job. Absence of noise helped me to get better over time. Sounds like you need to plan to do this, yes? Can you lean on your family?
    RishRamsey
    Not really @Daniel Lion. My job isn't really loud, but commute is hard. I travel from my own car with 30db earplugs and earmuffs, and it still hurts.
    RishRamsey
    And I have been in silence mostly. But literally no improvements whatsoever.
    RishRamsey
    Like closing the door in the other room even with my muffs hurt.
    I was doing a bit better H wise the last few days. Now back to everything hurts phase, can't even talk without being in severe pain.
    I hate my loud city, I hate my loud country, and I hate everyone here. Things I'd give to be born in a developed nation. :(
    RishRamsey
    @Candy, we do. But I can't enjoy it because my house is a corner one (next to a main road with constant traffic and horns). It's a quiet neighborhood, all the other homes are pretty quiet but just the fact that mine is the corner one, with a road that connects to the main road is hell for someone with H.
    RishRamsey
    I really envy all my friends who have houses in the middle or end of the neighborhood. It's so quiet, but no, not mine because of this stupid road which everyone has to take to go to main road. And it's hell from 8 AM - 11 PM. FML! Would need to soundproof my fucking home!
    RishRamsey
    And the fun fact, people actually pay more to be in a corner house, because it gets 3 sides open, and a bit bigger than the middle houses. lol. And I'd pay a ton more to move into one of the middle one's, just to get away from this road.
    Let's accept it. My H is never gonna improve, not unless I leave this hell of a noisy city or literally leave my job and stay indoors.
    And my girlfriend is leaving me (I can just fee it). Good lord!
    RishRamsey
    @Horrorpopz Thanks bro, but I don't blame her. She deserves to be with someone who's fit. Not someone crippled by H.
    OnceUponaTime
    Sorry, Rish. When people leave us when we are at our worst, it is not true love. It is best to let them go.
    RishRamsey
    Thanks, @OnceUponaTime . Really hard to let her go. She's been a constant support through all this, but I know I'd have to let her go. Just preparing myself mentally in these last few days with her.
    Please god, either make my Hyperacusis better or give me a fatal disease. Anything to make this pain stop :(
    LukeYoung
    I sometimes wish a car would just run me over walking to and from work and such
    Artemis2K
    Have you tried any of the popular anti-inflammatory supplements?
    RishRamsey
    I have @Artemis2K - Mg, Turmeric, B12 - don't really do anything for my H.
    H is killing me. Will really need to leave my job. Can't even talk to people without plugs. Please tell me it gets better :'(
    TheDanishGirl
    I feel ya pain. Hope it gets better for you.
    Horrorpopz
    I know quitting the job sucks, but sometimes we need to step back to be able to walk further later bro...
    Sharing this pain with you
    Colleague coughed so hard the entire work day, H spiking. Can't even watch a video on volume one let alone call my gf and talk...
    My right ear is on fire and super sensitive. I've had the usual fullness that comes and goes when around noises but this is different
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