Recent content by Rojo

  1. Rojo

    Hyperacusis Severely Worsened to Unlivable Suicidal Levels. Should I Go to Hospital/Get Steroids?

    Has anyone had steroids help with hyperacusis spikes and/or have them reduce the pain and sensitivity? I'm literally in pain from every single noise. My hyperacusis has worsened severely over the past two weeks. I don't even know how I could get to the hospital without even further destroying...
  2. Rojo

    I'm Literally on the Verge of Ending It. Please Give Me Hope I Can Get Better.

    I had digestive issues and GERD for 5 years - really badly for a year. Then Neomycin gave me tinnitus and hyperacusis that have just gotten progressively worse over the past 6 months from both noise and taking practically any medication. I went from just not being able to stand loud restaurants...
  3. Rojo

    Otonomy OTO-413 — Treatment of Hidden Hearing Loss

    I'm more interested in applying to be a part of this study... I have a great audiogram but horrific hyperacusis along with significant tinnitus, and definitely have the speech in noise and music distortion issues. This could be a total cure for me. I wrote in on their contact us page but if...
  4. Rojo

    DIY Low-Level Laser Therapy for Tinnitus on a Budget — LLLT Under 100,-

    I'm sorry I did a little browsing but didn't really see anything clearly laid out, if I'm on a relative budget but want to try LLLT for my hyperacusis, what sort of device would I look to get and what's the standard protocol for usage?
  5. Rojo

    Tingling Sensation on My Head — Normal for Pain Hyperacusis?

    All this talk of hyperacusis pain being tied to the trigeminal nerve, has anyone tried carbamazepine? I'm assuming it's super effective for the "vascular compression" kind of pain but not this. I don't know about anyone else but it is SUPER clear to me the link this lingering pain has to TTTS...
  6. Rojo

    Hospital ER for Steroid Injections?

    I used earplugs AND earmuffs. I've taken one dose of Gabapentin before, spiked my tinnitus with a new hissing tone. I'm thinking more that it was ototoxicity from the medications (particularly Lyrica, like Gabapentin it's actually a pretty harsh medication). Steroids are effective for that too...
  7. Rojo

    Hospital ER for Steroid Injections?

    My sound tolerance was very low (spending a minute outside three times a day, listening to one song on low volume, etc.) and last week I was then forced to drive hours to a mental hospital, then back and forth to their day hospital all week, sit in noisy rooms with people talking for group for...
  8. Rojo

    Anyone Live in Maryland, USA and Could Help with Temporary Housing? I'm Desperate

    Please, is there nobody who can help me at all... I don't want my life destroyed because I don't have anywhere to go...
  9. Rojo

    Anyone Live in Maryland, USA and Could Help with Temporary Housing? I'm Desperate

    I have taken them in the past 24 hours but things still seem worse each day. Extremely sensitive, feel raw and open, facial neuralgia, what feels like fucking seizures from sound. Your profile says ototoxicity, did you get hyperacusis too or just tinnitus? From what drug? And did you feel...
  10. Rojo

    Anyone Live in Maryland, USA and Could Help with Temporary Housing? I'm Desperate

    This is a pretty desperate plea for help. I'm currently suffering tinnitus and severe hyperacusis, discomfort and burning pain from even low levels of noise and small sounds. I've been living with my parents but they are now convinced I just have an anxiety disorder and they are forcing me to do...
  11. Rojo

    Fix for Sound Induced Pain — Stellate Ganglion Block?

    I don't know, I often feel like this is the case when I'm "feeling good" or when my ativan is really kicked into gear, I feel like my sound tolerance is better than usual but if I do a lot with it, it seems to catch up with me later. At this point though I would be happy without taking enough...
  12. Rojo

    Where Can You Buy Sound Generators Directly?

    I'm seeing an audiologist and need to do sound therapy with noise generators, however when sold through the audiologist they are like $1900. I swear I've seen websites you can buy noise generators for like $300-$400. Does anyone know where you might be able to buy these directly, and if they...
  13. Rojo

    Anyone with Facial/Trigeminal Nerve Pain and/or TTTS Tried Carbamazepine?

    I'm basically being forced to try psych meds for my "anxiety" so I'm trying to figure out what meds might actually help me, most antidepressants have gone poorly (citolopram, paxil, amitriptyline, remeron) the only one maybe left to try is nortriptyline. Taking suggestions there. For nerve...
  14. Rojo

    Anyone with Bad Tinnitus/Hyperacusis Have Experience with Buspirone?

    Seriously, so much anxiety around T/H and benzos are bad news, nobody has tried Buspar?
  15. Rojo

    Anyone with Bad Tinnitus/Hyperacusis Have Experience with Buspirone?

    My tinnitus is mid-moderate and my hyperacusis is severe (housebound), I'm starting a taper off of Ativan and it's already going poorly. I feel like I need help controlling my anxiety and my brain, I'm wary to try more drugs (they've all gone pretty bad for me almost immediately) and I'm also...