Recent content by Roserosie

@aot - I tried Amitriptyline and it made my VSS (static, palinopsia flashes etc) worse. Not sure on how it differs from Nortriptyline. I don't want to discourage you from taking something that may help you though. I think there is a paper on a man who had a remission of visual snow from...

Hi @Aaron91. So sorry you are still in pain and having a rough time. Hyperacusis is AWFUL! How am I going - to be honest I feel like I have been inhabiting some alternate plane of half existence for the past few months. I was having a lot of problems with derealisation (where the world seems...

So I am now on Mirtizipine (Avanza, Remeron) and finally getting some sleep. Hooray! But ever since starting it (I was amiltripyline for 1 week wasn't helping me sleep very much but I did feel calmer at night) my tinnitus has been the loudest it has ever been. By evening now it is like an alarm...

Hi Jason - I think you may be onto something. My thyriod is fine - but the psychiatrist wants me to see an endocrinologist as I have galactorrhea - which could be from stress but could also be a sign of some hormone dysregulation. I have started on Amiltriptyline. 10mg first day then 20mg. Feel...

@Orions Pain Yes I do do a lot of exercise the other week I went skiing for 5 days (still hardly any sleep - but since the nthe onset of the VS) and I do a bush walk everyday but I suppose I could do more cardio. Hard when you feel like you have been run over. I have tried Melatonin 300microg...

I asked the psychiatrist about Amitripyline but he said he doesn't think it would work...!!?? I would like to try it at least as it is a drug that I have taken in the past and I think it has even been used to treat VS. Unfortunately its going to take me 2 weeks to see a GP to try and get a...

I think Benadryl is similar to phenergan? Both antihistamines?

Gosh I wish I was writing some success story here but things are going from bad to much worse for me and I am at my wits' end. Seem to have developed visual snow syndrome (the afterimages and flickering vision and closed eyed visuals are the most disturbing. Saw a neuro-ophthalmologist - nothing...

This is really helpful to know!

Marko how did you go on the Mirtz? I was told by my Dr that I cannot take it intermittently.

Hi @Paul674 - did you end up going on Mirtazapine?

Hi Johan, How are you going? Sorry I don’t think I can be of much help - I just wanted to tell you I am going through the same thing. I go to bed, listen to a meditation or hypnosis feel ok and then every time I feel myself drifting off the sleep I feel dizzy and start having heart palpitations...

Anyone able to help me interpret the decibel reading?

Some drove in my partner’s Diesel Land Cruiser today for about an hour. I had custom silicone muffs under Peltor X5As. My tinnitus was screaming with the ear plugs and muffs and getting louder and louder. I was getting more and more anxious. The car is very vibratory and we had to drive 40 mins...

How is this going for you?