Recent content by StayPositive

Got Tinnitus in Feb initially. This was only high-pitched static. I participated in the main trial and did not notice any changes at all. However, towards the very end of the trial timeline I noticed new lower tones in my ear. I then participated in the follow-up study. The lower toned...

Some of the additional tones I was hearing have somewhat subsided, but that may have been due to getting enough sleep for a change. My original T is the same.

At this point I think it's safe to say my Tinnitus has increased, though I am not *too* worried as this appears to be normal in the immediate aftermath of AM-101 injections. As I posted in another thread, recently I had noticed some new lower tones in my Tinnitus, but since receiving the AM-101...

Nope, but it's still early on in the follow-up study.

Yes it feels blocked, but it doesn't swish around like water might, and yes that's the sensation that takes 24 hours or more to clear sometimes.

Yes, the length that I could feel the fullness differed between ears too, and also differed from injection to injection. The first injection I received as part of the follow-up study didn't seem to make my ears feel too full at all. The second was different. And of course, I just received the...

To my knowledge, there are no placebos in the follow-up study that I'm currently in. I was told I received the AM-101 for sure this time around.

Got my second shots this morning. Ears feel fuller than previous shots, but no change in T so far.

Thanks Gebora, when you say you have multiple tones in your ears, does that mean some of them showed up after the initial onset and stuck around?

Whereas from February until just recently, my Tinnitus, as far as I was aware, was entirely very high pitched tones, a few days ago I noticed a low-pitched whistling, much like a pan-flute I would say, I was convinced for a while it was something outside of my head because I could only hear it...

After some delays I finally got in for the first round of injections in the follow-up study today. This time they did it in both ears. T might have spiked a little, but nothing serious, and nothing I haven't heard in a quiet room before. Nothing else to report for now, as usual, but I'll keep...

Yessir, that'd be me, but I'm done considering. I'm going ahead with it.

@gebora, yes it is definitely the drug this time

Went for another followup visit last week, no changes to report in Tinnitus volume. I agreed to participate in the followup study, starting 6 Aug.

I can't speak to long term side effects, but the following were reported in one of the previous studies, though these are specifically related to the injection itself: Very frequently reported (more than 10% of subjects reported) Tinnitus louder/worse Common/Frequently reported (1 to 10% of...