Recent content by Vicki3116

Hey! I’ve read through some of your posts on here and you yourself describe things in a wonderful way! I know what you mean about renewed resolve, some days feel like simply getting to the next moment of hope that occurs because everything both in and outside ourselves is a chaotic blur, but...

Hi everyone, it’s been a while! Thought I’d stop by and see how everyone is doing. I’m not really sure what to say about my own situation, just that somehow things continue to get easier. Of course my brain is still ringing but I’ve noticed that the choice to be bothered about that is mine...

Hey, I’m doing ok I think, getting loads of rest and taking it a day at a time. I’m having a bit of time off work too. How are things with you? xxx

Thank you all so much for your kind words. Life really does throw us some curve balls, doesn’t it. It’s been an interesting time for sure. It appears there’s a lot of similarities between grief and suffering from tinnitus... the shock, the fear, the rumination, the uncertainty about the...

Hey, I guess that’s what it comes down to, yes, despite the enormous variations and fluctuations in the noises. I had to consciously choose to not be afraid because I was going downhill pretty fast.

Hi guys, thought I’d check in and see how everyone is? I really hope you’re all doing ok and managing to find some peace. As usual, it’s been wild. The last couple of weeks have tested me beyond anything I’ve ever known, waking up in a panic, literally shaking, I didn’t eat for 5 days, couldn’t...

Billie you are a true hero. What amazes me about you is your ability to separate an uncontrollable physical ailment from your core being as a person. The recognition that what happens to us happens, but there is still a life to live and it’s up to us to find as much joy as we can, whatever state...

Oh no, this was never about being cured. It’s more that it was at a level where it didn’t bother me so much and it didn’t consume my life. I accepted it. That took two years. And now it’s appreciably worse. I know that people say it’s about perception but times like this you realise that’s not...

Hey everyone, I hope you’re doing alright. I thought I’d give a quick update on the situation... Last weekend I woke up and couldn’t hear out my left ear but I had SCREAMING tinnitus. I ignored it for a little while because when you’re used to putting up with stupid hearing problems you can...

Hey, nice to hear from you. How are you doing now? I know that feeling of struggling through a train of thought. Sometimes I feel like I’ve been blown in to a million pieces and at any given moment, I can’t put all the pieces together. My thoughts are all jumbled, my emotions don’t match the...

Hey, thank you for your reply, you’re so very kind. I’m so glad you’re doing better now, I still find it alarming how tinnitus can devastate a person and how close it pushes people to the edge. I’m glad you had the courage and strength to see it through. Have you found any positives from having...

Hey, I’ve never read a Charlotte Brontë book I’m ashamed to say! I may have to give that a go. I read When Breath Becomes Air, an account of a neurosurgeon who suddenly found himself a patient in his own hospital and some of the realisations and challenges he discovered through this. I found it...

I have that sporadically, and I think the honest answer is... you live with it. You live with it the same way that others live with other conditions that they would rather not have. I work at the hospital and every day I see people in horrific pain, some acute conditions, some that are terminal...

Hey, that’s a lovely thing to say, thank you. It’s been a while since I’ve been on here and things are ok. Am I cured? No. Do I care? Not really. Have I heard silence? Yes. Was it amazing? Yes. Can I live without it? Yes. Do I feel like I’d saw my own leg off to have permanent silence? Most...

Hey, so sorry for the mega slow reply. No, there’s no difference with a whole head or IAM scan, the images will be the same but the IAM will cover a smaller area. The radiologist report will cover everything available so in my opinion, a whole head is better as it gives more information. Yeah...