weehiru
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May 1, 2024 at 11:00 AM
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weehiru

Member, Male, from Australia

If the medical world wont listen to us, maybe Hollywood will and sensationalise it. Maybe then people will. Delusional thinking here though Apr 29, 2024 at 12:57 AM

weehiru was last seen:
Viewing thread Fleeting Deafness Instead of Fleeting Tinnitus?, May 1, 2024 at 11:00 AM
    1. weehiru
      weehiru
      If the medical world wont listen to us, maybe Hollywood will and sensationalise it. Maybe then people will. Delusional thinking here though
      1. ZFire likes this.
      2. Varda
        Varda
        They already made a movie about tinnitus:
        Baby Driver
        Apr 29, 2024 at 7:58 AM
        gameover likes this.
    2. weehiru
      weehiru
      I hope my film school training goes somewhere. Because I vow to you all I will make sure your stories and suffering is heard + portrayed
      1. tpj and ZFire like this.
    3. weehiru
      weehiru
      I read that it's 10% up to 20% of people worldwide that have T. Yet we are no closer to a treatment at all+non-sufferers taking it seriously
      1. tpj and RunningMan like this.
      2. RunningMan
        RunningMan
        Yeah, most of them are mild cases, just like mine was a few years ago, so it's brushed off by the public as "a little ringing sound" rather than the true suffering it really brings to the severe cases.
        Apr 28, 2024 at 12:54 AM
        Karolina, tpj and weehiru like this.
      3. crescentsky
        crescentsky
        maybe im remembering incorrectly but i read 90% of those cases go away. so we are the 10% that are stuck in this hell.
        Apr 28, 2024 at 1:33 AM
        weehiru and Ngo13 like this.
      4. Utdmad89
        Utdmad89
        It's 1 in 7 have chronic T. And 1 in 6 of those have it severe in the UK
        Apr 28, 2024 at 9:28 AM
        weehiru likes this.
    4. weehiru
      weehiru
      So many people have this ailment yet the awareness brought to this is absolutely fuck all. I can't wrap my head around it, sincerely
      1. weehiru
        weehiru
        Sound of Metal made people aware about noise induced hearing loss. Maybe it's time for Hollywood to address tinnitus in the same way, maybe then we'll get some funding for research+treatments
        Apr 28, 2024 at 1:20 AM
      2. Pinhead
        Pinhead
        I think a movie about an annoying, ever-present sound would include everything but the annoying, ever-present sound, unfortunately. It's astounding how alien this experience is to others. It can't really be communicated well.
        Apr 29, 2024 at 5:50 PM
    5. weehiru
      weehiru
      It's like I have a distorted rainshower in my head 24/7. Mic feedback. 2 or 3 tones at once. I can't even tell anymore man.
      1. L along the way and SumGuy like this.
    6. weehiru
      weehiru
      Every time I try and keep up my positivity, I just nosedive right back into feeling empty again with this. I hate the hissing. So much.
      1. Kiyomi, Sansa, tpj and 3 others like this.
    7. weehiru
      weehiru
      I just want people to know that I'm truly suffering, not brushed away with "you're strong, you'll get over it". I'm not. I'm empty rn.
      1. Pinhead, Pixelito, tpj and 1 other person like this.
      2. View previous comments...
      3. weehiru
        weehiru
        @gameover, I'm glad I have a space where people do understand :)
        Apr 25, 2024 at 10:07 AM
        tpj and gameover like this.
      4. Pixelito
        Pixelito
        I was there, man. It does get better. Protect your ears. Have faith. Our stories sound similar, you just need time. There is light at the end of this tunnel.
        Apr 25, 2024 at 4:06 PM
        weehiru likes this.
      5. weehiru
        weehiru
        I know and trust there is going to be brighter days with this eventually, just feeling helpless right now unfortunately. Thank you for your kind words @Pixelito
        Apr 26, 2024 at 1:53 AM
    8. weehiru
      weehiru
      I wish people around me understood it's not "just ringing". But it's only perceived as that. And now I'm isolated from my loved ones.
      1. Juliane, Ngo13, tpj and 1 other person like this.
    9. weehiru
      weehiru
      Is this typically just common 4 ppl with T for ear sensitivity? Or is this an indicator I might have hyperacusis? Because I hope I dont...
      1. View previous comments...
      2. Utdmad89
        Utdmad89
        What kind of pain is it?
        Apr 25, 2024 at 11:31 PM
      3. weehiru
        weehiru
        It's kind of like a throbbing in my ear, some sharp tingly pains. It doesn't happen always from loud noises though I've found, so maybe it is just normal pain from damage from acoustic exposure I've had
        Apr 26, 2024 at 1:57 AM
      4. weehiru
        weehiru
        Either way I'll monitor my symptoms for now. Cheers for this
        Apr 26, 2024 at 1:58 AM
        BrOKeN_1 likes this.
    10. weehiru
      weehiru
      I was sitting on my lunch break and some REALLY COOL GUY IM SURE decided to rev past on his motorbike Now my right ear is hurting and tingly
      1. gameover likes this.
      2. gameover
        gameover
        I am so sorry.
        Apr 25, 2024 at 5:43 AM
        tpj and weehiru like this.
      3. weehiru
        weehiru
        You weren't the moron on the dirtbike @gameover , no need to apologise :) But I know you are just being kind. Thank you
        Apr 26, 2024 at 2:32 AM
    11. SumGuy
      SumGuy
      Hi friend how are you doing so far?
      1. weehiru likes this.
      2. View previous comments...
      3. SumGuy
        SumGuy
        I've noticed it going down as well. Im not sure if im getting used to it, or not but I rarely hear it in my everyday life. Mostly when I sleep on my ear now. I hope a few more weeks will clear this up
        Apr 22, 2024
        weehiru likes this.
      4. weehiru
        weehiru
        That's great news to hear!! Rooting for you SumGuy
        Apr 23, 2024
        SumGuy likes this.
      5. SumGuy
        SumGuy
        thanks buddy, I hope yours goes away too!
        Apr 25, 2024 at 4:37 AM
        weehiru likes this.
    12. weehiru
      weehiru
      Solitude used to be bliss for me after a busy day. One day I have hope that it will be again soon :) Trying to stay positive & determined !
      1. L along the way, tpj and Sansa like this.
    13. weehiru
      weehiru
      Had a good day today. Out and about, lots of distractions for me from the hissing. But as soon as I'm home its all I hear and fixate on :(
      1. Sansa likes this.
    14. weehiru
      weehiru
      this sound for the first time doesn't exactly put me in the mood to celebrate. Grinning and bearing it though.
    15. weehiru
      weehiru
      Whirlwind of emotions. Trying to latch onto positivity as I have been but I'm getting exhausted. Tomorrow I turn 24 and a birthday stuck w/+
    16. weehiru
      weehiru
      Had a spike yesterday caused by nothing. In a quiet room. Venting with my housemate. Feeling devoid of all positivity right now.
      1. gameover and Kiyomi like this.
      2. weehiru
        weehiru
        I'm doing everything right. No headphones, no ototoxic medication, keeping away from loud noises, taking my vitamins. I'm doing what I'm supposed to do. And yet this shit is killing my soul, man. How am I meant to live with this for the next 50+ years?
        Apr 14, 2024
        gameover and Kiyomi like this.
      3. Pixelito
        Pixelito
        @weehiru It's going to take time. Random spikes are part of the game. Keep taking care of yourself, don't lose the hope and determination in your earlier updates.
        Apr 17, 2024
        weehiru likes this.
      4. weehiru
        weehiru
        @Pixelito Thank you mate. I'll keep holding on to the determination I have as much as I can despite the challenges :)
        Apr 17, 2024
    17. weehiru
      weehiru
      Been a shithouse day of realising my life is changed forever with this. Grieving the loss of music & being in the pit the most right now.
      1. Pinhead, tpj and Kiyomi like this.
      2. View previous comments...
      3. weehiru
        weehiru
        What black metal act was it?

        Right in front of the speakers for me. Like an idiot. Drunk & high and not thinking properly unfortunately.
        Apr 15, 2024
      4. Pinhead
        Pinhead
        It was Mizmor. Not a huge fan but a friend of mine is. Too doom-y.
        Sound peaked at 113Db. Earplugs weren’t enough. Total mistake.
        Apr 15, 2024
        weehiru likes this.
      5. weehiru
        weehiru
        @Pinhead Were you wearing earplugs? What SNR/NRR were they?
        Apr 26, 2024 at 2:34 AM
    18. weehiru
      weehiru
      No matter how and what level you categorise your T at, we all still suffer similarly. Be empathetic & kind today friends.
      1. Ngo13 and Tryn2BHopeful like this.
      2. weehiru
        weehiru
        Similarly and "the same" are not precisely synonymous.
        Apr 15, 2024
        Pinhead likes this.
    19. SumGuy
      SumGuy
      How are you doing friend? We got t around the saem time
      1. weehiru likes this.
      2. View previous comments...
      3. weehiru
        weehiru
        I can't imagine the frustration you're feeling right now then ! Fingers crossed for you SumGuy :)
        Apr 14, 2024
      4. SumGuy
        SumGuy
        today i woke up with really low t tho! I'm hoping it goes away soon.
        Apr 14, 2024
        weehiru likes this.
      5. weehiru
        weehiru
        Hey thats awesome to hear mate!!
        Apr 14, 2024
    20. weehiru
      weehiru
      Spiked again, but I am not rattled. Surprisingly. Slowly taking away the power this shit has over me. Just ringing.
      1. streifzug, Tryn2BHopeful and BrOKeN_1 like this.
    21. weehiru
      weehiru
      No anxiety. Just gratuity, hope and determination. I feel like my spirit is stronger despite the battle I'm facing. Life can't end for me.
      1. tpj, Pixelito, Ngo13 and 1 other person like this.
    22. weehiru
      weehiru
      Dealing with my first spike in this journey after seeing some progress. But I'm not letting it kill my spirit! I refuse to.
      1. weehiru
        weehiru
        Yesterday was really alarming for me as my right ear was blaring. But it's back to a hiss and high rain shower again. Little wins.
        Apr 10, 2024
    23. weehiru
      weehiru
      I'm either seeing major improvements in my perception of tinnitus, or that I am healing somewhat. The hissing isn't as loud.
      1. Sansa, Tryn2BHopeful, Ngo13 and 9 others like this.
      2. View previous comments...
      3. Utdmad89
        Utdmad89
        It was a misunderstanding. I didn't see your reply. And miss read your info. I was honestly trying to be reassuring
        Apr 13, 2024
      4. weehiru
        weehiru
        Misunderstandings can happen! In future though, just be wary about how your intention can come off. Because I didn't read it as reassuring and felt that it was no relevance when I was trying to be positive with my whole world being changed with this. :)
        Apr 14, 2024
      5. Utdmad89
        Utdmad89
        Tbf, I can't help the way you read it. Majority of people a month in to the start or a spike would like the reassurance.
        Apr 14, 2024
    24. weehiru
      weehiru
      it was an awful start to the day and I'm still awake now at 4:30 in the morning. But the anxiety isn't here. Just the ringing. I'm okay w/t
      1. aab likes this.
    25. weehiru
      weehiru
      I've noticed that the inside of my right ear hurts/is tender when I touch it... Confused right now.
    26. weehiru
      weehiru
      Its like I jinxed myself last night, tinnitus got worse again. I think I need to quit smoking bud as it makes it louder.
      1. LukeYoung likes this.
      2. LukeYoung
        LukeYoung
        Yeah I never went back to it for this reason, it would definitely increase the perceived noise of it I reckon
        Apr 1, 2024
        weehiru likes this.
      3. Jammer
        Jammer
        Bud is not good for tinnitus sufferers. The cannabinoids are linked to an increase in some users.
        Apr 2, 2024
        weehiru likes this.
      4. weehiru
        weehiru
        I definitely hear the increase. I'm pretty sad honestly, it was what I would use to get to sleep.
        Apr 2, 2024
    27. weehiru
      weehiru
      I have a concert lined up for Friday, as well as another concert the next day. I'm debating on whether I should go to the 2nd.
      1. View previous comments...
      2. LukeYoung
        LukeYoung
        It is very risky even with plugs in my opinion. Some concerts can be 120db plus. Db is LOUD even with plugs at that level because the higher you go the less you get a reduction with plugs. At 150db for example, you don’t get 25db reduction with 25db plugs
        Apr 2, 2024
      3. tpj
        tpj
        Love Iron Maiden. Wish I had seen them before all of this shit started. But even when I had mild, stable T, I knew it was too risky to see them.
        Apr 3, 2024
        ZFire and weehiru like this.
      4. weehiru
        weehiru
        Love them too mate. I'm having constructive hope for now.
        Apr 3, 2024
        tpj likes this.
    28. weehiru
      weehiru
      I've seen a major improvement in my tinnitus today, the ringing isn't as loud and neither is the hissing. Everything will be okay :)
      1. Ricardo1991
        Ricardo1991
        That’s great to hear and yes everything will be okay.
        Apr 1, 2024
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  • About

    Gender:
    Male
    Location:
    Australia
    Occupation:
    long haired yahoo
    Tinnitus Since:
    Diagnosed TMJ 2015, Suffering 03/2024
    Cause of Tinnitus:
    Noise Induced + TMJ