Please know that I am already disabled beyond hyperacusis. Watching TV was the only safe activity I had. It was also the only activity my SO and I still had in common.
Tinnitus Talk Support Forum
You understand the importance of distractions, new hobbies, and coping mechanisms for healing. Well, as a disabled person where the hell is mine?!
I know everyone thinks they are unique when they aren't really. But when doctors shrug at my health problems and tell me to go to a university (economically poor btw) it does make me feel alone.
I have had chronic pain for 3 years and guess what. It never got better. I never regained any quality of life. How can I expect hyperacusis to be different when so many people have it for decades/lifetime?
You're right. People here should count their blessings. They whine and whine but unlike me they can still type, play video games, watch TV, listen to music, hang out with friends, read and write.
I'm not saying T isn't awful and it isn't mentally damaging. But there is not a physical barrier the way there is with physical disabilities. And guess what! I have both!
I want someone to tell me there's a future for me because right now... I'm not seeing it
Hope you guys are all happy with your 50% T reduction. I'll still be here suffering because there's nothing in development for H.
Hope you guys are all happy with your 50% T reduction. I'll still be here suffering because there's nothing in development for H.
End rant. @AZeurotuner
I appears that, based on your posting history, your version of "over-protection" is simply avoiding noise as best as you can. The problem with that is it, well, that it is impossible, so when you are exposed, you probably aren't ready for it. H triggers can be different, you'll have so folks with extreme H who can still shower without earplugs or drive for example.
Your H being atypical doesn't mean it can't be treated, I'm not convinced that you've made a proper effort to combat it.
Remember, H must be treated very slowly and carefully, you won't get better by simply not protecting.
@AZeurotuner Well! I would -love- to have more sound therapy in my home. But sound machines are triggering so I am at a loss. I would -love- to do more things with my SO but there is nothing I can think of or has been suggested that he likes.
I don't avoid noise as much as you think. I am standing here working retail on Christmas Eve. I just would rather not go to restaurants for example if I have to plug up.
I've been on my own. That is incredibly hard. Everyone gives up on helping me when they see how all encompassing the sum of my health problems are.
End.
I have tried making my H better with proper sound exposure - not too much, not too little.....using common sense, for the last 1½ years but overall my H is still pretty bad 70-80% of the time.....I am convinced that no matter what I do, I will never get fully healed of it......some people just don't.
But I can get by as long as I get some better days like the one I had today and yesterday......then I can gather strength for the bad H days
@TheDanishGirl To be quite fravn
*frank your posting history can be contradictory, you have posts where you claim not to over protect, but others that indicate that you do. I'm done here, do what you want folks...
@AZeurotuner I am not closing myself off to ideas or help or trying to make more of an effort. I was hoping you'd have something to say about my last post. Certainly I do need help but no one has been able to help me. No one offers suggestions or advice or if they do it doesn't apply to my situation. I can't use a sound machine without pain. That's not an excuse that is a cry for help.