PortugalTheMan
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  • how about a worldwide demonstration in all capitals to speed up tinnitus research?
    Stacken77
    Would be good, but too much noise I'm afraid.
    Damocles
    Silent protest?

    us: "We refuse to make any noise until a cure for tinnitus is developed!"

    them: "Okay, we'll just carry on making noise and driving noisy vehicles then"
    OnceUponaTime
    "Okay, we'll just carry on making noise and driving noisy vehicles then" @Damocles this made me chuckled.
    I already suffer so much with my T, just knowing that Friday I'm going to do an MRI and that it could get worse is making me very low.
    I hear "crickets" in my ears. I already know that I have to live with this and nothing can be done. :( I'm not surprised anymore
    Farida
    Man you're still very early in just like me, if one's Tinnitus from SNHL can resolve, yours can and will too. Don't stress out.
    Every day I appreciate the food on the table For the privilege of not paying to breathe For the privilege of having and being able to give
    I'm going crazy, today I looked at the sky and saw the scheer phenomenon. I think our brain is losing all filters.
    Stacken77
    @PortugalTheMan Scheerer's phenomenon is very common. Many, normal people experience it. I've experienced it numerous times before tinnitus. They're white blood cells passing through arteries that, given the right circumstances, becomes visible in the sight. Kinda weird nonetheless.
    PortugalTheMan
    @Stacken77 Yes I know, I've been reading about it.
    strange to have never noticed this phenomenon before, if it's something so normal... but I got scared because it was the first time I saw it.
    Farida
    It looks like you might have some mild VSS, it,'s normal 4 ppl with T, I have it too, hell even my sister sees it too and she doesnt have any of those
    I was forced to take escitalopram, if I didn't they would force me to be interned. Will I get the worst tinnitus?
    PortugalTheMan
    @Stacken77 @buttercake they do this because they say they can't see me crying anymore when I wake up because I have T. The psychiatrist said that if I reject the medication my family could admit me under a doctors' law. my family says I'm crazy because a doctor wouldn't prescribe a medication that causes T or worse.
    Stacken77
    @PortugalTheMan Almost unbelievable... Sorry, but to be honest, that doesn't sound very supportive of your family. I'm so sorry you go through such a hard time.
    PortugalTheMan
    @Stacken77 I even showed this forum of many people reporting that they got worse with the drug and the answer was: "You believed in these people more than doctors who study for many years.". The psychiatrist said that I was obsessed with protecting my hearing so as not to make tinnitus worse and that this was a disease. because I said I wore hearing protection.
    It is a fact that 90% of people who have tinnitus have hearing loss.But it is a fact that only 30% of people with hearing loss have tinnitus
    Stacken77
    Very good observation, @PortugalTheMan. To me, it makes sense that the discrepancy you're referring to simply is a matter of predisposition in the brain; likely genetics. Those who have hearing loss but no tinnitus most likely aren't wired in the brain to develop it, while me, and 3 generations back on my mother's side is wired up to develop it. It may not explain ALL cases, but most, I think.
    TheDanishGirl
    My littlebrother is 70% deaf in one ear with no tinnitus whatsoever, while me and my mom have tinnitus.
    TheDanishGirl
    On that note.....A guy on a danish tinnitus page is going on and on about how tinnitus is caused by radiation from electronic devices, wifi and such. Please help me lecture this fool. Link to scientific studies that conclude that noise/hearing loss is cause of most tinnitus. For some reason I cant find them.
    A Portuguese doctor in the news on television. He said that curing tinnitus from hearing loss was enough to have a cochlear implant. ahahah
    I have seen now without pure tinnitus podcast, that there is acute cochlear damage when there is anxiety and exhaustion.
    When science finds out how the T works, and if it has no comparison with hearing loss, let's laugh a lot! :)
    Lurius
    The ultimate joke would be if some scientist discovered completely by chance, maybe by an accident, that you can remove your tinnitus by standing on your head or something stupid like that. Or by eating marshmallows with mustard.
    PortugalTheMan
    @Lurius gravity was discovered by dropping a apple on top of a person :)
    I went to the best ENT in my country, he has a lot of knowledge about T. But he says he wants me to do an MRI to rule out the neuroma.
    Stacken77
    @Exit If they find a neuroma, I guess they'll treat it somehow? But my understanding is that neuroma being the culprit is highly unlikely.
    Exit
    I think they should be able to see an hint of a neuroma on a ct/pet..
    They just don't say it because it would mean doing mri afterwards., so the poor ct machine gets no action...
    PortugalTheMan
    I've already done a CT and didn't charge anything. The doctor thinks it's important given my severe tinnitus and not having hearing loss.
    I took 1 mg of sedoxil upon waking and my T is lower than ever. I only have a slight hiss and I can't hear 3 pure tones anymore.
    I'm having trouble staying asleep. I need to take antidepressants, but I'm afraid it will affect T.
    Stacken77
    @PortugalTheMan Yeah, in my experience, anxiety affects sleep massively, sometimes more than the T itself, so getting it under control would be a good start. When I was very anxious I took 10 mg Hydroxyzine before sleep. It's an antihistamine used for anxiety and should be one of the safer drugs, but we should be vigilant in case we see worsening in T or H.
    Stacken77
    I'm not completely sure, but it may have affected my T and H after taking it for 5 consecutive days. What helps in the long run though is of course habituation, but it takes time and is no quick fix.
    Damocles
    Hey @PortugalTheMan, is it Citalopram you said the doctor prescribed you?

    I've been taking Citalopram 10mg for almost 6 years.

    It spiked my tinnitus for the first couple of days I took it, then it settled.

    Never caused me any problems since.
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