Tinnitus Talk Support Forum

Juliane
❤️
Juliane
Sorry if you already said this, but for how long did you take Accutane?
BB23
Do you have any detectable hearing loss? How are the otoacustic results?
SarahMLFlemmer
@Juliane I took 20mg every other day for 4 months.
SarahMLFlemmer
@BB23 Hi there! I am going to Stanford in December, hopefully they can tell me more but my audiogram I did in town showed normal hearing, but I don't think she did an extended test to check for high frequency hearing loss.
BB23
Ask for otoacustic emissions as well. My case is similar to yours although a little more complicated since it involves multiple drugs. But I have perfect hearing with all the outer hair cells intact. It's either the synapses for me or some brain related stuff...
S
We have different causes, but my first habituation improvement wasn't remotely notable until 18 months. Took 3 years to perfect. It's gone for now. Give it time.
4Grace
❤️- I feel the same but you have to throw in a - ya never know. Always a bit of hope that it might change for the better. Just a sprinkle of hope. A sliver. A small pinch. Anything greater then zero hope.
SarahMLFlemmer
@BB23 I was told if the ear hairs were okay, there may be a better chance for recovery???
SarahMLFlemmer
S
@SarahMLFlemmer I did. Took 18 months to see progress. At 3 years it was really good. Lasted for two years and lost it. Now back where I started in 2018. Not taking it well. I think Covid possibly played a role.
S
@SarahMLFlemmer Don't underestimate habituation. I wasn't cured, but it was darn close. Was living a totally normal life outside avoiding loud environments. Wouldn't hear it for long periods. Could turn off like a switch when I did hear it. Hoping I have strength to get back there again. Not sure I do.