Karolina

I can't do any of that anymore and I only have T. The T is as loud as a vacuum cleaner though, and moving around only makes it worse. I no longer have baths, walk my dogs, or pretty much do anything.

I'm sorry.. how about foam earplugs?

I will wear peltors and foam earplugs of course, but I'm afraid it won't help much, my loudness h is terrible. My window is still not soundproofed :((

Great to hear that 2 tones are gone! Loudness H can get better. Please don't give up!

That’s great What kind of tones were they like pure tones or just a new sound?

Idk i got them at the beginning of may, one tone was quite unbearable, like a weird beeping horror melody
I still have 13-14 tones lol

I hope you get some relief soon, reactive tinnitus is terrible.

Do you have any sound distortions

I have a lot of bad symptoms too, I have T, pretty bad sound sensitivity , distortions and TTTS I think, you’re not alone. :( I’m only a month and a half in

Yes i have sound distortions too

the thunderstorm did not reach my area, luckily

I am truly sorry. You are not alone. I relate to everything you say. My reactivity to sounds could not be worse.

I can’t believe you are 23. You should have a good chance for this to get better for you. Your age is on your side for healing.

Was your room soundproofed?

@Pinhead it will be on monday

It's not your fault.. trying to go easy on ourselves.. uff what a nightmare it has been... going day by day.. breathe & trying to find some untense somehow... may it get better please

I remember hearing about the CEO of Texas Roadhouse killing himself because of tinnitus and thinking, "What a nightmare!" Six months later, I began to understand.

@Pinhead, I did the same. A Bit longer though

Truer words have never been spoken. We knew it was heaven before this happened. Now some way that feeling is magnified. How I feel this !! I now see all hardships as blessing minus reactive T with H and N!

Musical tinnitus. A rare form.

Yep. And no one gives a shit or wants to hear it. I'm sorry you're going through this.

Sorry.. it feels like our nervous systems gotten through such harsh stresses, pfff.. praying for the possibility of restoration with time..

@crescentsky maybe there would be hope for me if I never went to doctors. hearing tests, mri, meds destroyed my ears. It was absolutely mild at the beginning, now I am just surviving

What meds did you take?

I went to orthodontist at the beginning bc i thought my t is related to my tmj, he prescribed me naproxen which made my t more unstable (I didn't know anything about ototoxicity), then predonisone made it even worse, it gave me more tones and dysacusis

With a fucking passion.

if I wasn't such a law abiding person, I would be making global headlines.

Oh I understand you completely! My neighbor is screaming slurs very loudly after 11 pm almost daily, and his dog barks almost daily. Also, the new family moved into the building in front of mine. They have 2 loud dogs that bark on the balcony every morning at 5 am. I'm trying to soundproof my room as much as I can

I also have a very loud HVAC unit right below my window. It shows 60-75 decibels in my room with window closed. I found a very heavy and thick sound dampening blanket on Amazon and I hope it will help me block some noise. Unfortunately, this means I won't have any sunlight in my bedroom. Right now I sleep in small walk-in closet. It's quiet in there but hard to breathe :c

Just like you I developed phonophobia and party agoraphobia. The world is just too loud. Funny how I didn't notice it before getting T and H. And funny how my apartment building is right in front of a highway in the middle of the city...right by the biggest hospital in my area... with 7(!) different emergency rooms. Yes. Sleeping more than 3 hours per night is already a bliss lmao

I feel the same way.. how can life be so unfair. I find it not understandable why life is unfair.. my mantra nowadays is.. don't look too far in the future.. just try to go day by day.. finding anything that improves sense of calm and wellbeing

noone deserves this :(

H should go away. Very good chance.

It won't. I did dumb mistakes bc of lack of knowledge and horrible advice, I exposed myself too much to sounds at the beginning and now I'm overprotecting. I had very mild h, now I cannot even shower anymore

I also live with a family that is quite noisy, there is no sound insulation in the apartament and I have the loudest neighbors in the world. I am just doomed I guess

While waiting to die, you can work on accepting that your tinnitus is now your constant companion that will be with you on your journey.

I have and life goes on.

@Jammer is right. Given the alternatives (or lack thereof), all you can do is accept the new normal.

On a side note, we're probably living in a crucial period during which new technologies and treatments are being developed for tinnitus. Perhaps we'll be one of the first people who may receive ''real' treatment for this ailment.

Some have more than tinnitus to deal with. There isn't any treatment for H/N coming.