Swampy

Swampy

Member From Berkshire, United Kningdom
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  • ellees
    have you tried medication for your TTTS/MEM? what about gabapentin?
    Swampy
    Heya, sorry only just seen this. Actually about to start Carbamazepine to see if it helps :)
    Swampy
    Can't figure out why these fleeting/sbutt episodes are happening more frequently on top of everything else. Very annoying.
    BrOKeN_1
    Each sbutt episode very unnerving due to the fear that your condition is about to spike to unbelievable (possibly permanent) levels every time. This happens at least a few times a week for me as well.
    Swampy
    It's very weird! I get quite a few everyday, sometimes they don't go away quickly and can stick around all day, alongside muffled hearing, and then it gets even louder and reactive to all sounds too. Bloody nightmare on top of all my other ear issues. Sorry you have this. It wouldn't bother me if they always went away quickly, but it's when they stick and start going weird that I'm like "uh oh". Wish you the best :)
    Swampy
    Going mad from these TTTS/MEM episodes daily, along with frequent weird SBUTT episodes, & worsening pulsatile tinnitus on top of everything
    sv_505
    Sorry to bother you, but I read one of your comments about the vibration you feel in your head and how it stops when you shake your head or hum. I've been dealing with the exact same thing for about a month along with distortions so I've been desperate to find someone who has the same problem I have. Did this ever go away for you? Also, does/did yours go away or quieten when you plug your ear/s with an earbud?
    Swampy
    Heya! That's no worries at all! I'm so sorry you're getting this also :(
    I still have it yeah, have had it for a long time now, it doesn't stop when I plug my ears, only temporarily if I hum myself or if I'm in a car with the engine running the feeling of that kind of masks it but otherwise it's there constantly. Sorry I can't be more help, but if you ever get any relief from it please let me know :)
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