Tomorrow, I'm attending an event organized by a tinnitus/hearing loss organization from Switzerland. People affected and specialists will discuss how to cope with this condition. I've read some incredible stories, including cases of total hearing loss and severe tinnitus. I'm really curious to hear how they've managed to deal with such challenging situations.
Tinnitus Talk Support Forum
Yes, maybe I can get something useful out of it, no miracles, but maybe some inspiration which might help, I let you know.
Hi, it was a really strange event, they talked about what we all know here. The most interesting part was about possible future treatments, developing brain implants, but all is very invasive at the moment.
But at least, most featured were sound therapies, notch therapies, but nothing new, unfortunately.
But at least, most featured were sound therapies, notch therapies, but nothing new, unfortunately.
I couldn't make it to the location, I just was there online.
At least there was a guy asking about to get a cochlear implant to silence his horrible tinnitus, but they wouldn't do it without having severe hearing loss. They are also testing brain implants for severe T in Zuerich, but this is all still in experimental phase.
At least there was a guy asking about to get a cochlear implant to silence his horrible tinnitus, but they wouldn't do it without having severe hearing loss. They are also testing brain implants for severe T in Zuerich, but this is all still in experimental phase.
no problem my friend. Maybe some seriouse help might come from real repair stuff like RINRI Rincell-1 or something like this.
Today was absoluetly horror, I guess my Tenor Tympani muscle is contracted, it's like blocking the eardrum from virbrating, it makes
especially low frequency hearing loss. I hope this stuff relax very soon, but on the other hand I know, it won't happen in a short time.
Today was absoluetly horror, I guess my Tenor Tympani muscle is contracted, it's like blocking the eardrum from virbrating, it makes
especially low frequency hearing loss. I hope this stuff relax very soon, but on the other hand I know, it won't happen in a short time.
How are you doing? I still hope you could improve a little. When is your operation?
I can't say if I improve, sometimes I feel like, sometimes 2 squares back. At the moment I experience maybe little less T, but double clogged ears with some burning sensation. It's going to be a loooong habituation if I ever can.
Damn event, damn myself..... ruined my life....
I can't say if I improve, sometimes I feel like, sometimes 2 squares back. At the moment I experience maybe little less T, but double clogged ears with some burning sensation. It's going to be a loooong habituation if I ever can.
Damn event, damn myself..... ruined my life....
Because I'm on benefits, landlords and agents don't want to rent me a place. I've asked over 250 people and got rejected by every single one of them. I'm not joking. I'm now applying to places in London without even looking at them, but the moment they see I'm on benefits, I get rejected immediately.
It's not technically legal for agents to do this but nobody cares. If I don't find a place by November 15th, I'll be homeless. The government is also slashing people's benefits left and right. They're planning to cut mine as well. I don't know what to do, I'm trying to get out of this hell. It all started because of tinnitus.
Shit, this sounds really tuff. What about your ex-girlfriend, wouldn't she give you some place for some time?
I know what you mean, my business is also doing bad, just can't really work and push things foreward. In my job I need inspiration and positive energy to be creative, and this just don't work with my ears.
I know what you mean, my business is also doing bad, just can't really work and push things foreward. In my job I need inspiration and positive energy to be creative, and this just don't work with my ears.
Please ask the people or the boss you worked for before the T happens, they know you and they might have an advice or could help you. They must see you are suffering and it's a very seriouse thing…. Where is humanity….
I know it's easy said, but what about if you call the https://rnid.org.uk. and tell them your situation, they might give you some advice. At least they will know others with ear problems. Or make a new post here in the support forum writing your current difficult situation, maybe someone has an idea.
Not everyone should turn their back, but I know what you mean—people can't understand the severity of ear problems. It's unimaginable for healthy people. My friends know, but life goes on for them, while I'm stuck with this (like you and many others here). I wish you strength. These may be just words, but they come from someone who truly knows what you're going through.
Sometimes I think all can't be true, I don't know one person in real who has such a mess with hearing than many experience in this forum, even the majority of all people never give a cent to their ears! It's so hard to accept.
@tomytl, yeah exactly. I totaly agree with what you say about the non sufferers and also about how it feels surreal. This shit makes no sense man 
Honestly why the fuck ear would have soul destroying ringing? Ears meant to hear not to create torturous sounds. Never knew about such thing until it happened to me and there is literally 0 awareness man wtf. Fuck this shit man.
Honestly why the fuck ear would have soul destroying ringing? Ears meant to hear not to create torturous sounds. Never knew about such thing until it happened to me and there is literally 0 awareness man wtf. Fuck this shit man.
How are you? I know you're still suffering, and so am I. My tinnitus has improved slightly, but the pressure in my ear remains, and my hearing is worse. Mentally, I feel depressed, as life goes on for others while mine feels stuck. People can't grasp that there's no miracle cure, and they get angry if I refuse their advice. It's all surreal. I've been trapped in this nightmare for over three months now.