MiaVIL

@MiaVIL, Someone I met and spoke to in person told me that, despite struggling with this since 1994, he was completely free from hyperacusis and TTTS for a two-year period in his life. However, due to acoustic traumas he experienced as a result of his own mistakes, his condition returned to being just as bad as before. So the answer is yes.

Thanks

Hi, yes I had questions come in that were similar. Hopefully the doctor will touch upon them shortly.

My Aids literally just became really expensive head phones that may or may not be safe to use. I do like having the white noise option always available.

@BrOKeN_1 I am just trying to do hearing correction not any sound therapy. I have a dip at 6-8 k and beyond which is not normal for my age. Bone conduction is normal.

@BlueMoon86 I am trying but no doctor cares. I am going back to my GP next week.

That is super weird

@Juliane I know

what are ME implants? sign me up.

@cjbhab watch the podcast the man who donated a million dollars to tinnitus research and read thread electrical stimulation of the ear

❤️

@MiaVIL - when I go to the dentist I am told that I grind. Must be in my sleep. It’s no solution. My ears are brain … it’s bad.

My ears and brain bad,.. not “are”

I have bruxism. All the teeth on the left side of my mouth are ground down. My right side isn't so bad surprisingly. My teeth are sensitive on the ground down side.

20 years ago, 15, 10, 5, and even now, the answer was always 'maybe in 10 years'. I'll probably be dead before we have an actual cure. lol.

It's ridiculous and stinks of a funding gravy train. I have distress because of a 24/7 extremely loud and intrusive noise. As long as said noise is there I will be distressed. I can't positive think it away.

@Pinhead how bad is your loss?

@MiaVIL I have basically no hearing above 10Khz, and I'm only 34.

I am 32 and I have a mild drop starting at 6 k. The rest of my bone conduction is perfect. Past 9 k I can barely hear.

He mostly provides pills from what I've seen. I don't like pills. I'm more interested in Hamid Djalilan's involvement but at least it's not Jastreboff.

@BlueMoon86 Dr Djalilian also prescribes a cocktail of pills with his migraine protocol, but when I spoke with him, he told me the ME implants are extremely promising. That is what we really need to expedite. I contacted him to be a part of his clinical trial, but he told me that they have to manufacture the device. Part 1 is done, then they need a part 2, then FDA backing to test on humans.

@MiaVIL I just feel the proposal he made for the war on tinnitus is lacking enough underpinning evidence. I try and not get emotionally involved to much. Middle ear implants look a very good bet. I would like to see a pharmocology researcher on the scientific board who could advise on medication ideas and trials.

That's what the chart (from the study supplemental documentation) shows, which doesn't rally make sense to me. Maybe it's an error in the chart. I would expect the opposite.

@RunningMan I don’t have any manoeuvres at all so I am hoping the ME implant works for me. I would try Susan Shore but worried it may not work.

Thats not true. Hang in there.

No it won't. Hang on.

I told some people in my dream that I couldn’t do it anymore. I am on my last thread.

At least with constant tones they can kind of fade into the background but the chirps are so distracting and attention grabbing.

This is really it. It takes over your entire consciousness. No one seems to understand that. I can no longer think coherently because my brain is chirping and it has decided chirping is more important than conscious awareness. I'm already dead.