Danny Boy
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  • did you say you are now tinnitus free
    Danny Boy
    It's much milder than before, to the point where I barely hear it. Sadly I have Visual Snow, from trobalt....
    Hello Danny, you don't know me as I have no idea how to really use this site.
    I too live close to Bristol and am finding it hard to live with this dentist drill/power lines/hoover in my head that the hot showers do not cover up!
    I was interested to note that you get meds would you mind telling me what and does it help? I have just bought CBD awaiting delivery!
    Carlyi
    the meds are called Trobolt and are no longer available. They have alot of dangerous side effects.
    Danny Boy
    Hello, I wouldn't suggest or recommend trobalt to anyone, even if you could obtain it. One of the more serious side-effects is Visual snow and you honestly, do not want that.
    Hi Danny how`s it going,for a fellow Bristolian ?,I am still on Trobalt,but take it like an aspirin for a bad headache,,only the odd floater which isn`t a bother,Until something else comes out I`ll stick with this,hope you are finding some relief,all the best Tony
    P
    How does trobalt help you? How much on a scale for example from a 10 to a 4? How long does the effect last? Cheers!
    Tony Joy
    Hi ,the effect is reducing it with each 200 mg tablet,on some bad days i need 600 mg to take it down from a 10 to a 4 ,those bad days are usually stress days or following a night down the pub
    P
    That's great tony fingers crossed a safer drug comes along with a similar therapeutic effect! How long does it last ?
    Hi Danny, i read that you got rid of your H and your reactive T using Keppra. Is that still true or did either of them come back?
    Hi Danny where can I get some trobolt, I am in the USA and I feel like my neurologist will not prescribe me the drug especially at high doses, I'm willing to pay you to ship them to me?
    Haven't seen you around here for awhile. Although I don't wish that anyone has to go on here, it's nice to see your post again . Hope all is well.
    Danny Boy
    Yeah, I'm fine. Thanks for caring ^^.
    Hi Danny, how is your T at the moment? Do you take medication for your T? Do you still take Trobalt?
    Danny Boy
    Private message me and I can go further into detail. Cheers.
    Z
    I don't know how I can send a PM. Could you tell me?
    Thanks!
    Hi everyone it's really getting me down this ringing in ears I am 55 male from England anyone want seen to chat share how they cope would really appreciate it from robert
    Danny Boy
    Of course. Private message me, when you can.
    O
    Hi Danny, as you know a lot about T & H, please have a look at our little application: ORIC is the first vagus-stimulation for iphone. We stimmulate the auricular branch of the vagus and embedd the stimulation in your favourite music. The stimulation also trains the stapedius muscle, which can be quite effective to fight hyperacousis. The app is free to try! Regards oric
    Danny Boy
    I don't have hyperacusis anymore. But thanks for the information. Also, I don't have an iphone.
    Hi Danny. I am trying to help our 22 year old son who also has ME. He was weightlifting and suddenly developed severe tinnitus. He is desperate to find help and does not feel that he can live with this volume of continuous sound. I am pretty overwhelmed with all the information out there. Would it by any chance be possible please to pm you for some signposts as to where to find help and what to try? Thanks so much
    Hello danny. I've been reading a lot of posts, and came across one, were you said you been cured of tinnitus with trobalt. Are you still in remission?
    Danny Boy
    Very old post. Sadly, it came back after a few weeks. Unfair eh?
    chegallo69
    Sorry to hear that. On what medication are you right now? How is your t?
    Danny Boy
    Trobalt and gabapentin.
    hello danny! is very important. I need to talk to you. Have you a facebook page? how i cosuld contact you? It is for Trobalt and other cures. I have to make attempts with my neurologist. (sorry for my english, i am italian).
    Hi Danny. Can you help me?my t is such a high now i can hear it everywhere. I tried rtms but it didnt work: ( trobalt is my only chance now. Did trobalt make your t lower?sorry can't pm to you(
    Hi Danny hope you doing ok, I'd always been interested on the effecct of keppra on you,How much dose and time did it take to get rid of the hyperacusis and reactive tinnitus, is you T still remaining or lower? and to which doctoe I shoudl go to be prescribed Keppra.
    Danny Boy
    I took 2000mg a day for 3 months. But, if that doesn't work, I'd suggest trobalt.
    Hi Danny I specially registered to this forum to talk to you. I had T since 2011 and a few months ago after my wedding it has worsened. I tried AM-101 etc. Can I drop you a PM?
    Danny Boy
    Of course! PM me.
    S
    Thanks!
    I'm unable to send a PM? Do I need to have a specific amount of posts before I'm able to send a PM?
    Hi Danny Boy! I've been reading your posts in the forum and I've some questions about Trobalt, is there anyway to contact you, in a private conversation?
    Hi Danny thank you so much for all your insight! Are you still taking phosphcholine? Also since youve stopped trobalt has your t gotten any worse?
    Hi I am from France , I would like to take medicine for my mild hyperacusis , what should I take anti epileptic has navis tone for mild hyperacusis ? Keppra ?
    Hi Danny, just had a spike in my T about 2 months ago now, just wanted to see if I could PM you? I just joined tonight and can't figure out how to PM on here. Thanks man.
    Hey Danny I'm new to this "T" thing I was hoping to find answers on how to deal with I just found out about a week that have "T" & it's very difficult I'm only 20 years I haven't worked in days I'm just trying to find away to deal with this .
    Hey man hope everything is well with you my name is grant and I am 21. What is the reason your tinntius has gone trobalt and iif so how did you get it. Also is there anything you have taken. Thank you
    Danny Boy
    Hey, Grant. I was taking a combination of trobalt, keppra and campral. I got them in Spain.
    G
    Ok thank you. Does that cost and when you stop taking the drugs does the tinntius come back sorry for all the questions
    G
    Ok thank you. Doesn't that cost alot and when you finish taking the tablets does the tinntius come bac sorry for all the questions
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