Joe C

Joe C

Member From Massachusetts
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  • Joe C
    Just got in some sleep headphones called Amazfit Zenbuds. Going to give them a shot they seem promising. Supposedly a 7 day charge with case
    Joe C
    T still ripping in my right ear. Sleep schedules now 5am-1pm, Become extremely depressed and unmotivated. Pretty much lost all progress.
    Joe C
    Is it normal for T to increase in pitch with jaw movement? If I move my jaw forward it quiets. Is that only with TMJ or is this common?
    Joe C
    I've been to an oral surgeon and was told everything seems okay, But the fact I can modulate it up, and down makes me have some hope that this is a somatic cause that I could hopefully work on. My jaw does feel different on the side that my T is worse too.
    Kriszti
    Unfortunately, many tinnitus patients without somatic origin can modulate the pitch and volume of the sounds by moving the neck/jaw. :(
    ASilverLight
    It's pretty common. Unless you have a lot of TMJ symptoms I wouldn't think it likely.
    Joe C
    These fluctuations are crazy, Yesterday was absolute hell. Slept for 10 hours, and now today its been barely noticeable.
    Joe C
    Been having a lot of weird issues while driving as well. Feel like the right side of my neck/ear starts to go dullish. Its hard to explain i end up having to like tilt my head to one side and rub around the bottom of my ear else it almost worsens. Almost had to pull over the other day.
    Bill Bauer
    Eventually it ought to settle and fade.
    Joe C
    Anyone notice an increase in T after the shower? If I wear earplugs it stays the same but without them after its like noticeable louder?
    View previous comments…
    Steph1710
    Yup. The shower always spikes my T. Such a pain cause I don't have a bath :-/
    acute
    Yes, after the shower, especially long showers.
    ASilverLight
    Going back to this... earplugs make no difference, nor does the length of the shower, plus i get the same tone randomly from other things, so I genuinely don't know. Does always happen after a shower though
    Joe C
    Days have gotten easier, Nights still aren't great. Just trying to stay busy/moving. Its exhausting but cant just sit and dwell over it.
    Joe C
    Safe sleep medications? My doctor wants me to try amitriptyline, Im weary with its correlation to heart problems though.
    Joe C
    Im also a medical cannabis patient and it seems to have a bad reaction with cannabis as well.
    S
    I find Mirtazapine works really well for me.
    Joe C
    Still unfathomable to me that at 24 with no signs of hearing loss that I can have T this badly. Trying my best to just accept it.
    View previous comments…
    ASilverLight
    Same here
    Joe C
    @Emgee Mine was tested up to 8k, I would definitely like to get it tested for higher frequency's. I was at 10 Db for everything except 3000hz I dropped to 20 which to my understanding is still "normal"
    Emgee
    @Joe C My tinnitus is also really bad. Had two standard audiograms that showed excellent hearing up to 8k. I wonder if we have high-frequency hearing loss or synapse damage.
    Joe C
    Can you get a hearing aid with a tinnitus masker without hearing loss? I'm having a really hard time masking/habituating
    View previous comments…
    Steph1710
    I believe you can just buy the masker. Someone sent me a link to some once. I'll try find it.
    Steph1710
    Damn! It I deleted the message. Try typing maskers in the search bar - I'm sure they'll be posts about it.
    Joe C
    Thank you very much guys!
    LilSass
    @Joe C ! Happy Birthday! I wish you all the best and hope that things get better for you soon. Your ginger kitty is adorable BTW. :)
    Joe C
    Thank you so much! I appreciate it and I hope you have an amazing day/night
    Joe C
    1 year of manufacturing was not worth a lifetime of tinnitus.
    Bill Bauer
    It might end up being a lot less than a lifetime of tinnitus. It might only be something like 1-3 years before you get to the "can hear it only in quiet rooms" stage.
    Eloy Resendez Jr
    Hang in there man! We've all been there, still are in some cases. Don't give up!!
    Joe C
    Trying to stay positive today. Ordered Tru Niagen and going to try to get a Ct scan this week to look for reasons of my recent flare up.
    Joe C
    Tonight my T is winning. I feel extremely physically and mentally stressed. Its making me feel alone and just defeated. Praying for relief
    Bill Bauer
    Your T is very new. The first three months are the worst. Hang in there, it ought to get better.

    If your T begins fading sometime over the next month or so, it ought to continue to fade.
    Joe C
    Seeking advice for sleeping, and coping with mental stress caused by tinnitus. Open to any and all suggestions, thank you
    View previous comments…
    aot
    Rain sounds.
    Bill Bauer
    Sound enrichment (the goal is to give yourself something else to listen to besides T) and amitriptyline...
    Tavia R
    What's seriously helped me is meditation. Once you achieve peace focus on the T. Have peace and T at the same time. Not very often we have positive experiences with our T. It retrains the brain to start associating T with peace. Really helping out my anxiety. More you do it, the better it works. Down side it, it's taken me months to get good at meditation.
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