Jerad

Jerad

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Member 39 From Ohio; United States
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  • Jerad
    Debilitating T/H makes u feel anatomically dead, yet still alive…like a zombie, robbed of all the beauty that once embodied ur late humanity
    Jerad
    For some ppl, why is tinnitus a physical feeling, too? (and NOT just a sound) Any theories? Mine hurts; feels like electricity shocking me.
    View previous comments…
    Tweedleman
    @Jerad ahhh shite, I'm sorry man, didn't realize you were suffering from both T and pain H. That sounds like hell :( Hopefully there's some kind of underlying physical issue that can be remedied causing this. I know it's apples and oranges, but that was the case for me, and I was stubbornly convinced I had irreversible cochlear/nerve damage for like a year.
    Jerad
    @Tweedleman thanks for reaching out. Ya, it's hell, for sure. How did u improve? Did u take a supplement, med, or do a therapy? I have intrusive t and loudness h. No pain h, but the intrusive t causes pain sensations.
    sakrt
    This strongly indicates a form of reactive neuralgia;Sphenopalatine Ganglion Neuralgia, worsened by tension and inflammation. Try Holy Basil Tulsi tea, Spearmint tea and check out Blackseed oil and/or Oregano oil (Takes time to work). Icepacks to back of head/mastoid areas. Deep breathing. -important-
    Jerad
    My T is like Jupiter's raging atmosphere, an electrical storm of chaos. Most ppl, their headspace is like Earth—peaceful, serene, HABITABLE.
    J
    @Jerad excuse me for asking brain zaps, do you mean brain electrical discharges that for a second interrupt the tinnitus sound, as if it were a brain explosion or short circuit?.
    View previous comments…
    Jerad
    And it sux because if I didn't have the hissing/zaps, I would be at peace with my t. Rest of it is tolerable, even the low frequency, vibrating hum.
    Hottopic29
    I seem to have this zing after acoustic reflex test just sound like a knife rubbing half a rimof glass once in awhile
    Jerad
    @Hottopic29 does the zing cause a feeling of pain too? Like a shrill pain sensation?
    Ela Stefan
    thats my kind of t also. and came from a very clogged ear only, no infection, nothing, just a reactive reaction to a mold in the external ear canal which totally closed up my middle ear for weeks. they gave me nothing but drops and sprays saying is etd.wanted to ask , is your kind of t all over the head most of the times, or just ears? thank you.
    View previous comments…
    Ela Stefan
    mine is such a strange one, came from a very very clogged ear for 2 months like...i had only one ear clogged ,t in both ears even i had only one clogged... i cant understand if is inner ear as i didnt have ears problems whatsoever..sensibility..nothing,,,im afraid was hypoxia in the middle ear..which goes directly in brain steam dysfunction...
    Ela Stefan
    there is an efferent specific loop for mechanoreceptors in the middle ear, was dry inflammation from an external mold in the ear canal..they kept giving me sprays only saying is ETD..is like a fizzing thing in the brain...when bad just goes in a full steam hissing that takes over the whole brain
    Jerad
    @Ela Stefan sorry to hear that. Do u feel physical pain sensations with the T? Mine wouldn't be near as bad if it were just a sound. Unfortunately it's a sensation too where I feel sharp zaps and painful sensations. I think the frequency is so high and shrill that the stupid brain interprets it as painful cuz in real life encountering that sound would be unpleasant. I also have severe hyperacusis.
    DebInAustralia
    Hey Jerad! I hope youre hanging in there! As an alternative to ldn, maybe you might want to consider chinese skullcap (drives down tnf alpha) and resveratrol (deactivates microglia) as an alternative to ldn
    Jerad
    @DebInAustralia thanks for the suggestions and checking up on me! Have you tried either of those yet? I'm still having a rough time. T feels like electrical currents and zaps. Yesterday was a better day, but today is bad again. If the better days were the norm, I'd feel like this all wasn't so bad. They're not unfortunately.
    DebInAustralia
    hi Jerad. youre welcome! we are in this together. I have taken chinese skullcap before (lyme), tried it again (t) but didnt take it for long. Think after reviewing data on its ability to drive down neuroinflammation, i will have another crack at it. i just thought id mention it because i know you are hesitant to try the ldn. this might be worth looking into as it also has an effect on pro inflammatory brain cytokines
    DebInAustralia
    Jerad
    Why does the brain have to be so fucking stupid?
    D
    Our brain*. I have a close friend who had SSHL - one ear almost deaf, only hears a few low tones and she got no tinnitus. Neither does she understand what it means to have it... Me, on the other hand, with no hearing loss even at ultra high freqs...
    Jerad
    Tinnitus, the enigmatic POS it is, does not give up its secrets easily. So many theories about its cause, so many questions still unanswered
    Jerad
    So many promising T treatments out there that fail to achieve liftoff cuz they lack funding. Like CS0022. Shame we're all left grounded.
    ThomasF
    A shining light in such darkness is that the research associated with sch projects is shared in the scientific community and can be picked up by new people. Even a step back is still a step forward.
    ThomasF
    Or rather a "set back is a step forward"
    Jerad
    @ThomasF good point - very true. Xen1101 for example wouldn't probably be in development if it weren't for trobalt. So developers learn from others and build upon that. Hopefully a new effective drug will be developed soon that has funding & the proper channels to push it fwd
    Jerad
    And that's why I like Trobalt & the potential of reformulating it. Cuz as bad as its side effects could be, never saw T worsening reported.
    DebInAustralia
    Are you still considering LDN?
    Jerad
    @DebInAustralia I'm thinking about it, but I'm kind of scared because every time I spike, it causes a permanent worsening. And I've seen stories of bad spikes with LDN. Seen great success stories, too, though. T has gotten bad & I can't afford another worsening, even though I'm kind of desperate for relief. Not sure what to do. How about you?
    Jerad
    Tinnitus is evil. Every treatment for it can also make it worse. Ur playing Russian roulette & risking worsenings; some permanent. (1 of 2)
    J
    @Jerad In response to your question about flupirtine,i,m nota doctor,but if it,s a short 15 days trial, i think it will be safe.A member known here tried it and it was cured after doing therapy with stem cells,laser,and Trobalt,@atteosgeoscience He has a thread here in tinnitustalk on flupirtine,,he,s a genuine member but logically he doesn,t usually come here anymore.
    View previous comments…
    Jerad
    When ur desperate with bad T tho, u kinda are in a situation where there's a lot more to lose by not trying, ya know?
    Jerad
    There might be ppl in the acute stage that coulda taken trobalt for 3 weeks and been permanently relieved of disaster. And 3 wks use probably would be safe in most situations, even with a hard drug.
    Jerad
    I mean, it's no diff than chemo - look how hard that is on the human body. Tinnitus at its worst can be a life ending monster like cancer so ya I think they shouldn't have pulled trobalt but rather kept it in use for brief weeks only treatments (for acute)
    Jerad
    For T that's loud hissing or steam escaping, & unmaskable, has anyone on this forum ever had hearing aids improve by using amplification?
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