Leine

Leine

Member 34 From Sweden
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  • Skriet
    Hej!

    Lustigt nog är jag också en svensk sjuksköterska, med H & T. Hör av dig om du vill snacka lite. :)
    dipp
    Also, I don´t know if this would interest you in anyway, but I started Swedish lessons on September in order to try to improve my mood. I was enjoying a lot the lessons but since this started again I struggle a lot just assist.
    I want to let you know that you have all my support and I hope that you find a way to live with this.
    dipp
    I had other sounds that I heard everywhere also, and had a lot of different sounds, but this is just too high frequency and it´s very difficult to live with, it´s almost like a dog whistle. I don´t know what to do and don´t know if I can live like this. If only I could go back to my previous T, I would be more than happy..
    dipp
    Hi! I have read some of your posts and I relate a lot to them.
    Just wanted to let you know that I´m in a similar position than you. I have habituated to all my previous worsenings, which have been a lot through the years, but a month ago I developed an ultra-high frequency sound and it´s unbearable right now, I can hear it almost everywhere and it´s disgusting.
    Leine
    You have to be healthy to be sick. incredibly hard to fight to get right in the healthcare system when you can't even take care of yourself.
    kingsfan
    I've lost quite a bit of money from not having the energy to fight with my American insurance company and doctors for reimbursements and charges that exceed their original quotes.
    Leine
    Doctor refused sick leave. Despite S-thoughts, not getting out of bed, H, crying, anxiety, he told me I am not depressed. 100% Back to work.
    View previous comments…
    RunningMan
    Strange things happen with health care. I was prescribed 3 Lorazepam per day and a 90 pill prescription. When I got my monthly refill, it was only 30 pills. I can't can get 90 doses out of that. I called in, and the nurse said I would get addicted taking 3 times per day and just told me to refill. But I had been told to take 3 times per day.
    Jupiterman
    Is your tinnitus not a bigger problem than the depression?

    Can you get another doctor's opinion?

    Most doctors don't take tinnitus seriously and fewer even believe there is such a thing as severe tinnitus.
    kingsfan
    @Leine My tinnitus worsened after Covid-19, but it did improve after many long months. Not quite back to its previous baseline, but it was much more tolerable. There's still hope yours will improve.
    Leine
    Today is a tough day. Hard to even get out of bed. Hear new tones over my already 15-20. Wish they could just disappear.
    Leine
    Do you believe there will ever be a cure? Or something that reduces T? I pray for Susan Shore device.
    RunningMan
    I think the Shore device will reduce tinnitus to a noticeable degree in about 30% to 40% of the users, plus some will have a placebo effect as well. Hopefully it works a lot better than the disappointing results of Lenire. I'm skeptical of any medication treatments anytime soon.
    Leine
    What does your T sound like? Mine sounds like the whole head is a computer and a fridge beeping and being sanded and rained heavily on.
    Leine
    Today I started CBT with tinnitus specialists. Anyone tried CBT and been helped to better learn to live with T?
    View previous comments…
    Leine
    @AfroSnowman Every time my T has worsened I have managed to habituate and get my life back, my H has also decreased. But now my T is much, much louder and so many, many more sounds. Damn, how I miss my old life and my old T. But I hope that in time I can be happy again. Wish you the same.
    RunningMan
    The peaceful cabin in the snowy woods in front of the fireplace suddenly isn't peaceful once severe tinnitus enters the picture. Suddenly I need to escape.
    AfroSnowman
    @Leine I've moved past the hoping for improvement or mourning the past stage, all that matters is I continue to try from where I am right now to have the best life I can going forward. CBT may help or it won't but it is part of that trying.
    Leine
    After T and H worsened, my body is my prison and my world is a wall. An innocently convicted prisoner with a life sentence.
    Leine
    I have seen so much suffering due to work in healthcare. But could trade lives with many of them if only my T could calm down.
    4Grace
    @Leine - I feel this one. I can't imagine anything much worse. There is just as bad but this is top of the line. Eating worsens me, noise worsens me, can't do anything … this thing has touched all aspects of my life. Destroyed all of it. Up until a few days ago I could go out. I lost that…
    Leine
    When I was a child I was afraid of being paralyzed or getting tinnitus. Was only 14 y.o, at my first disco on a language trip. Glass ears.
    View previous comments…
    Tryn2BHopeful
    I didn't even know this was possible until I got it. I thought losing my hearing meant having to turn up the TV. Now I can barely stand the sound of it.
    Leine
    @BrOKeN_1 I didn't know about it either until they showed a documentary at school about T. Remember coming home and listening to the silence and realizing it could go away.
    RunningMan
    I got some brief instances of ringing as a child with fireworks and caps, but didn't experience more extended ringing until hours out late listening to loud music. I would hear it in bed trying to sleep. But it was gone in the morning until years later.
    Leine
    Daily suicidal thoughts but I dont dare to take my own life. Walks around like a shell. Finding no joy. Everything is dark.
    Leine
    My latest morse code tea kettle/beep tone makes me feel nauseous and cold sweaty. Heard everywhere. Is it possible to get used to it?
    streifzug
    I also have the morse code in my left ear. It's my favorite!
    Leine
    @streifzug I have a lot of them. I think my messy brain loves them so it want me to listen to them too. What does your T sounds like?
    streifzug
    it's a monster :( I think it sounds like one huge dental drill sound mainly around 8000khz made up off a bunch of smaller dentist drills left, right and center. like a proper monster it's pretty scary.
    Leine
    I feel so, so tired but impossible to rest. Hard to fall asleep. Wakes up several times at night. since Dec 21 2023, goodbye life.
    View previous comments…
    RunningMan
    Potential COVID worsening T concerns me more than the vaccination causing T. For sleep, I was really hoping my brain could get used to it and be able to sleep better, but I'm really not seeing any improvement in 2 years. I've done all the sleep hygiene research, tried supplements, THC, CBD - no help.
    Leine
    @RunningMan I agree, I was so afraid of covid because of T, but after this I'm terrified. Sorry to hear that nothing you tried worked. Missing falling asleep in peace and waking up refreshed.
    Leine
    @gameover Yes, Covid is very sneaky. Good you are having better days despite the suffering and that your T is calming down during the day, that is a step in the right direction. I hope with time you get well again, despite T and H.
    Leine
    My life was beautiful before this severe. Fuck this T and H. You have destroyed everything. I cant live like this.
    View previous comments…
    streifzug
    I really hope you get better!
    Leine
    Guten Abend @streifzug I understand how you feel living with your T, its hard. Life will not be the same as before with loud T. Have read your thread and I am very sorry to hear that you also suffer from schizophrenia. I don't have it myself, but have people close to me and have also worked with patients with schizophrenia, so have a certain understanding.
    Leine
    @streifzug I don't wish T on my worst enemy or getting chronically ill in any other way. Thank you for your concern, I also hope you feel better soon. Although it is very, very difficult, we are not alone.
    Leine
    Yesterday a new tone on my 15-20 other terrible tones. Sounds like beeping in the distance. Heard everywhere. Can't handle this.
    Leine
    After covid my T just gets worse and worse. More and more tones. I can hear my T everywhere. This hyperacusis is killing me. How to survive?
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