sandyknight

sandyknight

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  • delta784
    how is your dysacusis now?
    sandyknight
    You asked me this 12 days ago. What do you expect to change in such a short time frame?
    delta784
    I am suicidal and impatient thats why even a slightest improve from your side will give me hope
    sandyknight
    I feel like I could probably listen to some digital audio every now and then but I'm just so scared to try anything.
    View previous comments…
    sandyknight
    @delta784 Whatever caused my hyperacusis also caused my dysacusis. I think I developed VSS after head trauma and then a few weeks later I accidentally blasted my ears. My dysacusis was really bad at the beginning, couldn't use a fan because of the ringing. I don't know if I've actually gotten better or if I've just learned to tune it out.
    delta784
    my main problem is tinnitus anyways dysacusis i can live with it. no i cannot live with that thats an update after weeks dysacusis is worse than T
    orenge01
    I feel that. I do it anyway on low volumes like extremely low volumes. And it's ok I know people don't recommend it, but I can't live without audio it just doesn't compute with me. :/
    sandyknight
    my family is making me go to an ent after ive already explained that they cant help me and that theres nothing they can do for this. ive already said that i risk getting worse but they still insist on making me go. whats worse is that it will only be 5 days after my follow-up appointment with my pcp. they want me to get social security but i dont think hyperacusis is officially recognized as a disability.
    2049v
    @sandyknight, My situation is somewhat similar to this. I have become disabled due to hyperacusis and tinnitus, but no individual, institution, or authority recognizes or even takes it seriously. What was the initial cause for you? Has it been the same level since 2016?
    sandyknight
    I'm fairly certain I got my tinnitus from band practice in middle school. It was super mild back then and very easy to mask. I did notice it grew slightly louder over the years but was still easily masked. I developed hyperacusis in July and my tinnitus also got moderately worse in late August. I think my hyperacusis is related to VSS following brain trauma from a fall.
    cjbhab
    it flabbergasts people when i tell them there is nothing that can be done. My brother in law picked up some ear drops at the store that said they get rid of tinnitus. He was so sure that 8 years of my problems would just instantly go away if i tried them.
    sandyknight
    I gave up digital audio a month ago and started protecting at the first sign of a setback and I've made very minimal progress.
    sandyknight
    it started with just a little whistle/ringing but after some damage it got worse and its now static in music. its very frustrating
    sandyknight
    has anyone had dysacusis (sound distortions) improve. it feels like I'm in a unique boat cuz I think mine comes from hearing loss
    sandyknight
    i might have auditory recruitment instead of hyperacusis. haven't seen an ENT/audiologist since this all began.
    sandyknight
    It is a miracle my H hasn't devolved into Nox, especially after the first few days when I was dragged to a noisy restaurant without ear pro.
    sandyknight
    Super intrusive ringing to a mild whistle with the fan. Haven't listened to any digital audio so I don't know if that aspect has improved.
    sandyknight
    The distortions are improving again. Had a setback like a few hours after my first post that made them worse but they're tolerable again.
    sandyknight
    But to stay positive, the mental aspect of this is improving. Appetite is returning and I'm not bedridden, even with worsened symptoms
    sandyknight
    Unbelievably difficult to limit noise exposure when living with 3 other people and in a house with paper thin walls.
    Calapsodis
    Ugh I know the feeling. I've tried speaking out about it but of course nobody understands and acts like I'm overreacting. Well when I can hear someone clear as day smashing pots and pans all the way from my room with the door shut, I'm just glad I'm in here and not over there.
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