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  1. Designer55

    Tiny Box in Your Chest to Banish Misery of Tinnitus

    This is the serinity system. They have been working on this for years and years, but never had a real success. I even read reports about serious accidents with this device. So in my opinion avaiable in a year is unrealistic. In Michigan they have about the same technique, but it does not involve...
  2. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    I fully agree. I collected 5500 signatures in two months. Government has it now on agenda. But they of course don’t have budget. Trump even announced cutback in research. But in Holland it has been brought to attention of government. They now have dossier on it. Can not make it worse can it...
  3. Designer55

    Electrical Stimulation of the Ear in Tinnitus Patients: A Pilot Study

    Sorry to hear this. actually study showed big chance of improvement. But as always 50% has some benefit and 50% doesnt.. It does not mean it a worthless therapy. In their study 50% had benefit and 16% was cured. Its only impossible to communicate with Marena. mails are not answered. Well, lets...
  4. Designer55

    Electrical Stimulation of the Ear in Tinnitus Patients: A Pilot Study

    He Mentos. I have been trying to contact mrs Marzena Mielczarek for weeks. As far as i know she gives the treatment. Could you provide her contact details? She does not respond to email and i even have a cell phone which she does not answer. Maybe you have different doctor or clinic? Anyway...
  5. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    now 4777 and counting
  6. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    this is their reply Hello Peter, Thank you for contacting Change.org Help Center. I understand you have a concern about your signature count diminishing. Petition signature counts do occasionally go down. There are several reasons that this may occur: - We have a background verification...
  7. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Thanx, it will be discussed in parliament and hopefully on tv and in newspapers. I will keep you posted
  8. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    That would be one hell of a reason.:-)
  9. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Yeah thats quite strange. I have no idea.
  10. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Yes, we have a commission in Holland that consists of parliament members. They advise their minister. So i targeted them, the minister, but also tv and newspapers.
  11. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    yes if you send me email and name of decisionmakers u would like to add.
  12. Designer55

    Noise Trauma, Suicidal, Help

    I challenge you to reveal your true identity, because you are by far the worst member ever here. Either you are just plain stupid or you enjoy giving people the worst advice ever. I even prfer you leave this forum, because you give absolutely no support. You are a big pain in the behind.
  13. Designer55

    Noise Trauma, Suicidal, Help

    Dear Nathalie, it will get better. You need a little time to adjust. And thats gonna happen. Trust me. I live a normal life with screaming tinnitus. I accepted the fact its there and moved on. You are strong enough to do the same.
  14. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    no thanx needed. I want to get rid of this too:-)
  15. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    score as of today is 5010! Thanx all
  16. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    thanx everyone that signed. Much appreciated.
  17. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    You are the best! Thanx a lot. Much appreciated
  18. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Problem is I have no influence on their policy. Its optional. And maybe they felt it's important. But I thank them anyway.
  19. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Thanx Wags, much appreciated
  20. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Indeed Alper it is. And Thanx
  21. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Would be great idea. I allready added french governemnt. Maybe tinnitus talk could coordinate such a initative?
  22. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    thnx valerie! we will see
  23. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Hi Vinnitus, thanx! And for your info i got about 2500 signatures through this site. Not everybody posts this. Tinnitus Talk boosted the campaign and i got about 1500 signatures in one night. Now the score is about 3055. Not bad for a week.
  24. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Thanx Vinnitus. reached 2500 now and counting. Thanx for taking the trouble.
  25. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    You are welcome Randomuser. And we are collecting signatures very fast thanks to this forum.
  26. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Well thats great Eltel. Thanx a lot. Yesterday in (a major) Dutch newspaper a two page story on tinnitus. We are slowly getting there: more awareness for tinnitus! And that's the goal!
  27. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    I will let it run for a while:)
  28. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Thanx. But the first effect is already there. Today in a Dutch newspaper a two page newsfeed. I am quoted extensively.
  29. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    and many thanx to you
  30. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    it gives me an option to close petition so i think it will run utill i close it
  31. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    probably, i dont know when they will end it, but for now its running. I will try to contact them and ask this question
  32. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    That would be an excellent idea. But change dot org sends emails to the decision makers you enter in their questionnaire. You dont have access to names or mail addresses of people that signed. But amazingly enough i have signatures form many countries, like romania, finland, norway, sweden...
  33. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Yeah and i want to thank everybody as well as the moderators for giving it a big boost! Amazing 1500 signatures overnight!:-)
  34. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Yeah it exploded, thanx to you guys! Much appreciated!
  35. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Thanx you all. No you dont have to be dutch, because its a global problem. Evenmore, people from outside Holland signing will make a bigger impression, because you show you care, and the problem does not stop at the border. I am very grateful to you all.
  36. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    me too, because in holland t research is soooo bad. We need some other approach here. Thanx mate!
  37. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Thank you Micheal. Every vote counts
  38. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Thankx Ricardo. Yeah i am curious too.....
  39. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Thanx maestro! Appreciate it
  40. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Thanx Paul for encouraging words:-)
  41. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Thank you very much Irene:-).
  42. Designer55

    Petition (Closed): We Need a Cure for Tinnitus

    Hi everyone, I made a petition, to target the Dutch Government, tv programmes and newspapers. I would kindly ask you to sign this. Because in Holland we are far behind on research and finding a cure. If we reach 1000 signatures (now have 505) it will be on the agenda in parliament, and...
  43. Designer55

    Chapter 8: Treatments

    I have tried tdcs at Brain in Antwerp in 2013. www.brai2n.com No real result but they have improved therapy now. They found proof for their theory so they expect to have better treatment in the near future. Also tried meds like alprozolam. That calms me down and has some effect on tinnitus. Be...
  44. Designer55

    The Light

    Its good to know that people can learn how to deal with it. My life was hell for three years, until i decided T would no longer control my life. I accepted the fact there is no cure. Its just you that has to deal with it. What makes me mad is that people on the internet sell ‘cures’. It will...
  45. Designer55

    The Hell We All Experience

    its no wonder it has been a mystery for soo long!
  46. Designer55

    The Hell We All Experience

    Yeah that is very unfair. But tinnitus has many possible causes. Even cleaning your ear can cause it. Its not always connected to hearing loss. Wish you all the best and all of my fellow sufferers:-(
  47. Designer55

    The Hell We All Experience

    Yeah thats possible too. But my hearing was 100% untill september 2012. And next day 100% tinnitus. So i doubt it. Must have been something in my neck, brain or .....
  48. Designer55

    The Hell We All Experience

    Nice new pic Valentina:-)