Electrical Stimulation of the Ear in Tinnitus Patients: A Pilot Study

#31
Mentos said:
It took a while but finally i got enrolled and will start the treatment as of Feb 20th, which will last 2 weeks. The only thing is instead of direct ear electrical stimulation they recommended in my case direct ear magnetic stimulation. So I will trust the doctors and start with magnetic stimulation and then perhaps in case it does nothing to me we will decide whether to try electrical stimulation as well
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So I just finished my 2 week magnetic stimulation treatment. Unfortunately no good news, I notice no improvement in my T:( According to the doctor I may notice an improvement still couple of weeks after the treatment so I have a control visit beginning of April, but to be honest I don't expect miracles. Potential next steps is in case I indeed notice no improvement by April the doctor said we may try electrical stimulations instead, but no sooner than July this year. I wish I could convey better news:(
 
#32
Mentos said:
According to the doctor I may notice an improvement still couple of weeks after the treatment so I have a control visit beginning of April, but to be honest I don't expect miracles.
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Thats how you can identify the quack....if a treatment can take some time to show results...
 
#37
Mentos said:
So I just finished my 2 week magnetic stimulation treatment. Unfortunately no good news, I notice no improvement in my T:( According to the doctor I may notice an improvement still couple of weeks after the treatment so I have a control visit beginning of April, but to be honest I don't expect miracles. Potential next steps is in case I indeed notice no improvement by April the doctor said we may try electrical stimulations instead, but no sooner than July this year. I wish I could convey better news:(
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Thanks for participating. Even if it didn't work for you, you will bring valuable information that helps narrow down the predictors of success with this therapy.
 
#38
I went to a dr that was heading a study like this. WaS this out of Irvine? He told me I could be a part of it but I was too scared...
 
#39
Penate said:
As usual nothing works for this horrendous condition NOTHING.
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maybe a dumb question but have you tried lipo flavanoid? I know the reviews aren't fabulous but in my real life discussions with people that have T I have met several people that say that really decreased it or got rid of it for them.
 
#40
Marie79 said:
maybe a dumb question but have you tried lipo flavanoid? I know the reviews aren't fabulous but in my real life discussions with people that have T I have met several people that say that really decreased it or got rid of it for them.
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Marie79 yes I'm being tried every single thing for the last two years when I say every thing is every thing, my tinnitus is so severe, I have 5 different sounds, low and high p , very severe, very strong power transformer in my head, reactive and hyperacusiss, this is hell every single second of my life and unfortunately nothing help, I don't know what to do anymore I'm 48 with 2 kids and family, and more i look forward, treatments for this is very far away from the reality, thanks for asking.
 
#42
jacob21 said:
Hi

do you know where in europe we can try this treatment ?


Original research article published in Frontiers related to electrical simulation therapy - results look promising for at least improving tinnitus:

http://journal.frontiersin.org/article/10.3389/fnins.2016.00453/full


?
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Mentos said:
So I just finished my 2 week magnetic stimulation treatment. Unfortunately no good news, I notice no improvement in my T:( According to the doctor I may notice an improvement still couple of weeks after the treatment so I have a control visit beginning of April, but to be honest I don't expect miracles. Potential next steps is in case I indeed notice no improvement by April the doctor said we may try electrical stimulations instead, but no sooner than July this year. I wish I could convey better news:(
Click to expand...

Sorry to hear this. actually study showed big chance of improvement. But as always 50% has some benefit and 50% doesnt.. It does not mean it a worthless therapy. In their study 50% had benefit and 16% was cured. Its only impossible to communicate with Marena. mails are not answered. Well, lets hope for the best. maybe you will actually see some effect later on.
 
#43
But it's the electric stimulation that is the treatment that made the difference in the studies, not magnetic? So there is still a good chance you will be better @Mentos . I understand the disappointment but keep up the hope and don't give up
 
#44
This research paper seemed quite promising for a certain section of the tinnitus community. Even if it could tone down this horrorshow by a notch or two, I suspect we'd all embrace it, wouldn't we? Though I've searched, I've found nothing about it, or similar efforts anywhere else on the planet. My efforts to contact the researchers for information about follow up studies, have been met with radio silence.

Which makes me suspicious about the study's intent or even the authenticity of the results. Has anyone heard or seen any further information about this protocol? Is anyone familiar with the individuals who conducted the study? Will there be follow ups? It'd be lovely to find out anything new about it, especially considering the procedure is so minimally invasive, involves no ingestion of chemicals, or as has been so eloquently put, 'chopsticks in the brain.'
 
#45
Fabrikat said:
This research paper seemed quite promising for a certain section of the tinnitus community. Even if it could tone down this horrorshow by a notch or two, I suspect we'd all embrace it, wouldn't we? Though I've searched, I've found nothing about it, or similar efforts anywhere else on the planet. My efforts to contact the researchers for information about follow up studies, have been met with radio silence.

Which makes me suspicious about the study's intent or even the authenticity of the results. Has anyone heard or seen any further information about this protocol? Is anyone familiar with the individuals who conducted the study? Will there be follow ups? It'd be lovely to find out anything new about it, especially considering the procedure is so minimally invasive, involves no ingestion of chemicals, or as has been so eloquently put, 'chopsticks in the brain.'
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Is this something like Susan Shore device at university of Michigan?
 
#46
Penate said:
Marie79 yes I'm being tried every single thing for the last two years when I say every thing is every thing, my tinnitus is so severe, I have 5 different sounds, low and high p , very severe, very strong power transformer in my head, reactive and hyperacusiss, this is hell every single second of my life and unfortunately nothing help, I don't know what to do anymore I'm 48 with 2 kids and family, and more i look forward, treatments for this is very far away from the reality, thanks for asking.
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This is such hell all because of brain malfunction? It is filling in the lost sounds with brain neurons firing off dumb dumb dumb
 
#47
DoNotGoGentle said:
Is this something like Susan Shore device at university of Michigan?
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No. This protocol involves the application of electrical current through the ear canal into the brain.Each ear is filled with liquid, then an electrode is placed into that liquid and electrical stimulation is applied. Sure, sounds a bit hokey, doesn't it? Yet the paper they wrote indicated a measure of success. I'd love to know more.
 
#49
Penate said:
Marie79 yes I'm being tried every single thing for the last two years when I say every thing is every thing, my tinnitus is so severe, I have 5 different sounds, low and high p , very severe, very strong power transformer in my head, reactive and hyperacusiss, this is hell every single second of my life and unfortunately nothing help, I don't know what to do anymore I'm 48 with 2 kids and family, and more i look forward, treatments for this is very far away from the reality, thanks for asking.
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@Penate
How are you doing? I am living the same hell as you. Nothing is working :(
 
#50
@Mentos :

Czesc, do you still wanna try thos electric stimulation? Are you still in touch with the clinics?

I think many people here would love to know more about this very different approach.
 
#51
Marlino said:
@Mentos :

Czesc, do you still wanna try thos electric stimulation? Are you still in touch with the clinics?

I think many people here would love to know more about this very different approach.
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Yes I'll probably try electrical stimulation but rather after summer. I'll let people know once I undergo this treatment and if it was successful
 
#54
#59
"and we are now reaching out to experts on epilepsy, tinnitus, depression, and other disorders to see if we can help."

I wonder which tinnitus experts they are reaching out to.
 

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