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I've commented on their post on Twitter. I feel like this is a week where sufferers feel united and feel like there is some actual progress being made and then a silly post like that just puts a massive downer for those who really struggle and can't habituate.

I find it very strange that all week long we have been pressing for more funding towards a cure and then Action on Hearing Loss NI posts a video saying 93% of people with tinnitus are not bothered by tinnitus after habituation.

@Dginobile how are you now? My fleeting tinnitus has been super loud it's scary.

@ItGetsBetter what would you recommend for otc medicine as I am trying to resolve etd problem at the moment and chewing gum is doing my head in.

@ashlee hi sorry to jump on a old post was just wondering how you are doing with this now. I experience a low rumble/hum and can be sensitive to bass. Cars work my tinnitus up a treat. Was on antidepressants for 2 days but gave me morning fleeting tinnitus which I stopped just incase I was...

@Contrast can that cause pain ?

@Contrast about 3 months ago I played the really loud music. The drone tone started a couple days after. I had some pains neck and a little earache and headaches but I was extremely stressed about it. It started to subside. I took my kids to a family festival last month but was obsessed with ear...

@Juan i havnt I don't even think I could anyway sounds to painful for my ears.

@Contrast im partially deaf in one ear from a swimming accident when I was very young. I recently gained a low drone tone I think due to playing some really loud music after a night out (I know I'm so stupid) and because of constantly listening to it I think I have a high pitched one that I...

@Extreme i was recommended to take aspirin or ibruphen (sorry for the bad spelling) for headaches and try and hold my nose and pop my ears.

I've been suffering for about 3 months now and am experiencing ear aches/pressure in both ears and headaches, slight light-headedness everyday for the last 3-4 weeks. I did go into panic mode and protect my ears with ear defenders and earplugs. The pain does worsen with noise. I have been to my...

I would love to wake up one morning and the words cure found popped up but unfortunely I don't think this will ever happen. Happy to keep donating for research though x

@foam i go out all the time and always try and keep my focus on my children but it just steers me away all the time. Just want to be normal again. Find myself jealous of everyone laughing and having fun probably hearing silence in between their conversations. I hope my brain will rewire my...

@Backpacker are you tried magnesium? I think my in at the same level sometimes It can be louder when I'm watching tele but I think that's where I am looking for it.

@Backpacker is it constant? Have you got any tips?

@dayma thankyou so much x

@dayma yes they do distract me but then when I'm enjoying the moment my mind goes oops you can't have fun listen to the noise and feel like your alone. Sounds ridiculous I know.

@dayma i try so hard to be present and enjoy them but I am easily distracted and then I get stuck in the noise zone worrying about waking up and the noise been louder. I'm so scared.

Hi. I'm Claire and my tinnitus started about 2 months ago. I am partially deaf in my left ear from a young child. I remember the doctors saying tinnitus. I have recently gained this low vibrating hum in my right ear. I think it's from a night out, came home and played some big bass music very...