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  1. Craig in Cali

    Advice for New Sonically Challenged

    Do you have any links to articles suggesting that one's own yelling or singing is damaging to ears? There are articles on Auditory Corollary Discharge that describe how the brain differentiates between self-generated sound, and external sound. Animals, including our close primate cousins, have...
  2. Craig in Cali

    Advice for New Sonically Challenged

    I got reactive tinnitus and hyperacousis 4 years ago after my crazy ex screamed in my ear. I was never so low. Two things help, nothing else does: 1) seeing this ear issue as a scar that makes us humans unique. Plenty of musicians have ear problems. It's a shit scar right down the middle of...
  3. Craig in Cali

    Do You Consider Your Tinnitus a Disability?

    Hyperacusis is definitely a disability for me. I'm unable to take part in life the way I used to, and the way normal people do. That's probably one of the definitions of disability.
  4. Craig in Cali

    Brai2n Tinnitus Clinic in Belgium

    Hmm. Well, this is more encouraging. My assumption would be that the Belgium government would put extra scrutiny on this before they agree. The same is not true in the USA. Government programs for health are often defrauded....simply because managing 330 million people is too complex, so some...
  5. Craig in Cali

    Brai2n Tinnitus Clinic in Belgium

    @JeffDamsko My comment was just about being cautious in general. The free market does not operate, as we're told in college, in a way that the 'best' products/services rise to the top. It is about convincing people to part with their money. More often than not this convincing is done through...
  6. Craig in Cali

    Brai2n Tinnitus Clinic in Belgium

    Sadly, This isn't true. How many miracle cures are still selling even though we all know they're not effective? Desperate people, like many of us, will try many things. All it takes is a line of desperate people to keep you in business.
  7. Craig in Cali

    It Is Just Mind-Blowing That Science Has Yet to Cure Tinnitus

    For reference, I put some quick prevalence numbers I googled for things with treatments. Some are about the same. Maybe even a bit less for fibromyalgia? Point is, it made monetary sense to do it for these, so it could make sense for t & h. Restless leg syndrome: 5-10% Asthma: 7-8% Fibromyalgia: 2%
  8. Craig in Cali

    Brivaracetam — KV3.1 Modulator

    Here's where good old capitalism might eventually come to our aid. As soon as any of these first drugs hits the market and starts making some money, hopefully everyone will see the potential and the storm of drug research will ensue.
  9. Craig in Cali

    Levetiracetam (Keppra) Worked for My Hyperacusis

    @Danny Boy One other question. You're taking Trobalt also, right? So is your opinion that the reduction in H is due to the Keppra mostly, or perhaps a combo?
  10. Craig in Cali

    Levetiracetam (Keppra) Worked for My Hyperacusis

    Awesome. Looking forward to knowing how the H does after you stop.
  11. Craig in Cali

    Levetiracetam (Keppra) Worked for My Hyperacusis

    Thanks. How long are you planning on staying on it?
  12. Craig in Cali

    Levetiracetam (Keppra) Worked for My Hyperacusis

    Danny, Please let us know the specifics of your usage: how many milligrams how many times per day how long total duration Also, how long until you started to have improvement? Did it come on suddenly, or gradually. My hyperacusis is killing me. I couldn't care less about the T at this...
  13. Craig in Cali

    MDMA (a Component of Ecstacy) Potential for the Treatment of Tinnitus

    I just read some about it. Would love to know what happens. Is this aimed at some temporary treatment with hopeful lasting results, or do you need to roll all day long:)
  14. Craig in Cali

    What's Your Opinion on Assisted Suicide?

    @awbw8 Let us hope these are just philosophical chats and neither of us has to make real considerations of such a thing. Good luck with your healing. Here's to better hearing.
  15. Craig in Cali

    Retigabine (Trobalt, Potiga) — General Discussion

    Hello. I'm sorry if this as been answered already, and I'm certain it has. However, I'm inherently ADD and don't want to read through all 143 pages of thus thread if possible. So, could someone direct me to what the recommendation for a minimal course of RGB is that would be effective? How many...
  16. Craig in Cali

    What's Your Opinion on Assisted Suicide?

    @awbw8 You go back to the fact that anyone can kill themselves anytime: "in almost any circumstance". That really isn't true, especially if you want a painless way and guarantee you'll be dead...not just end up in a coma or with destroyed livers. I'll let Wikipedia take it from here: "Nonfatal...
  17. Craig in Cali

    What's Your Opinion on Assisted Suicide?

    This thread isn't about the right to commit suicide. Its about the assisted suicide specifically, and the legality of it less specifically. We can talk about our right to eat, which nobody can take from us. Fortunately 'assisted' eating is legal in every country. Which is to say, we can go to a...
  18. Craig in Cali

    Hello from Northern California

    Thanks. I already sent emails...no response.
  19. Craig in Cali

    Commercial Lidocaine Patch as a Treatment for Ear-ringing

    Why is lidocaine now floating around again, as patches this time? I see articles from 2000 where it was injected into the ears.
  20. Craig in Cali

    Music Therapy (Heidelberg Model) as an Early Intervention to Prevent Chronification of Tinnitus

    I've read multiple articles on this therapy, but can't figure out exactly what the protocol is?
  21. Craig in Cali

    What's Your Opinion on Assisted Suicide?

    I think this is essentially the 'slippery slope' concern. Many laws or lack thereof could be seen in this way. Society will have to monitor it, just like any other thing. Those who abuse must face consequences.
  22. Craig in Cali

    My Head Fills Up With White Noise Right Before Sleep

    Sounds not very fun. Sorry you go through that. T is bad enough. The more I live and read, the more I realize how imperfect the body is. It can also operate with quite a bit out of whack. Like a car with an oil leak, slipping fan belts, low tire pressure, bad paint, and a bent frame....it still...
  23. Craig in Cali

    Hyperbaric Oxygen Therapy

    I went for consult. Nice people...but got a bit of a 'this is a sham' feeling for tinnitus. Plus, the cost was redonkulous...$350/per. No go for me. I want to expand a bit further on the HBOT experience I had, err, or almost had. Firstly, I'm an engineer and scientist and an ex born again...
  24. Craig in Cali

    What's Your Opinion on Assisted Suicide?

    Excuse the ill timing, but perhaps if assisted suicide was a humane, caring option for those who need, want, obsess about simply 'not being' anymore, we wouldn't have so many horrible tragedies committed by suicidal people.
  25. Craig in Cali

    What's Your Opinion on Assisted Suicide?

    Assistance is key. Examine your fears of death, of getting old. You might find that your biggest fears are not around death, or simply non-existence, but centered more on the 'final days/hours'. The suffering is the demon.
  26. Craig in Cali

    Tinnitus Joke for Acceptance / Overcoming

    I don't have a joke. But, the second night I had tinnitus I heard what I knew to be a train coming through my wall. For a split second I panicked in natural reaction to such a phenomenon. Then, after that moment I realized how lame this Tinnitus thing could be. I live on the second floor, and...
  27. Craig in Cali

    Finally Habituated and Enjoying Life Again

    Very glad to hear the H has faded. I, like many, have both. I'm learning to deal with the T, but the H is the one that really alters my life.
  28. Craig in Cali

    Sex and Tinnitus

    I was thinking Viagra might help with blood flow to the ears since its an effective vasodilator.
  29. Craig in Cali

    What's Your Opinion on Assisted Suicide?

    I don't see the issue here. Laws should not exist in my opinion unless they serve a valuable (subjective) purpose. We can easily play with the extremes and present a case of someone perhaps dying of incurable poisoning that takes 48 hours of horrific, painful suffering until the person finally...
  30. Craig in Cali

    Hyperbaric Oxygen Therapy

    Don't know yet. Have to talk with the doc. I'll post the recommendation when they suggest one. I can start the same day. I think cost is high though, $170 for 1.5 hours....but this is bay area California. Everything's expensive.
  31. Craig in Cali

    Hyperbaric Oxygen Therapy

    I'm going to try hbot starting in two days. I've had t and h for 6 weeks now.
  32. Craig in Cali

    What's Your Opinion on Assisted Suicide?

    My opinion, in all seriousness, is that you should be able to buy an assisted suicide kit like a prescription from your doctor. Directions, maybe even a YouTube video on how to use it. Would certainly save money on healthcare system too. If I get a terminal illness that will cause me great pain...
  33. Craig in Cali

    Can't Find Help? ATA Referrals Wrong?

    Got no idea. I'm curious myself. Seems like if you read enough you'll get these two very emphatic answers: 1) Prednisone helps 2) Prednisone doesn't help and might cause more issues. Clear as mud.
  34. Craig in Cali

    Can't Find Help? ATA Referrals Wrong?

    Wish I could help. I'm in the same boat. I used their website and then looked at the websites of the referred physicians to see if they know about tinnitus...and finally found someone. In the year 2015, why is it so hard to find an 'expert'. 1) call your gp 2) wait a week to get in 3) gp says...
  35. Craig in Cali

    Hello from Northern California

    I'll look into keppra. Thanks.
  36. Craig in Cali

    Hello from Northern California

    Got t after girlfriend screamed very loudly, high pitched right next to my left ear. We were watching a zombie movie and she thought it would be cute to act like one of the screaming victims...my ear took the full scream for a couple of seconds then I felt tingling. Next day I noticed...