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  1. Briann

    Possible Relation Between Hyperacusis and Eustachian Tube Dysfunction?

    Tympanometry is not too bad. It’s a 200 Hz tone and doesn’t need to be that loud. Might be worth checking if you can reproduce the fullness. You could see if it is air pressure related or muscle tension related. If it looks normal, it would likely be a muscle pulling the eardrum. The peaks...
  2. Briann

    Lenire — Bimodal Stimulation Treatment by Neuromod

    @PeterPan, @Hazel, @Markku, @Autumnly and study participants, I'm a little late to the party but I wanted to thank you all for your study and report. The infographic, the video, and the report set a wonderful example for what a patient group can do on its own. The results were presented clearly...
  3. Briann

    Dr. Will Sedley Requesting YOUR Input — Predictive Brain Processing for Tinnitus

    I am interested in your study proposal. Combining detailed modeling with clinical data has a lot of potential and it seems you try to be clear about what is supporting a theory and what is proving a theory. As you have mentioned, this seems helpful for other areas as well and I hope the next...
  4. Briann

    Hyperacusis and General Health: NHIS Survey Results

    I guess it is open to interpretation. At the very least, the more severe the H, the more likely you are to have other health issues. I think it's impossible to untangle cause and effect from this, but we can see there's a trend. Mainly I think this is useful for those basic questions like does...
  5. Briann

    Hyperacusis and General Health: NHIS Survey Results

    Below is a link to a tool for others to look though the 2014 NHIS survey data with a focus on hyperacusis and tinnitus. The NHIS survey is a United States National health survey of 37,000 people in the general population. There was a "hyperacusis" question along with tinnitus, hearing loss...
  6. Briann

    Botox for Hyperacusis

    Safer but then it is impossible to talk about! There are so many dimensions. I'm not sure. I have always assumed that increased loudness cannot occur as a result of middle ear muscles. The ear is tuned for a certain acoustic impedance and I think changes in any direction tend to just make...
  7. Briann

    Botox for Hyperacusis

    I think there are multiple sources of pain. Some people clearly have TT or TVP issues with flutter, tugging or thumping with pain, and crackle sounds for different triggers. But you rarely hear of flutter causing pain. And I believe most with H don't experience violent TTS spasms with pain...
  8. Briann

    Botox for Hyperacusis

    This seems to be a reasonable argument and is the main thing holding me back from completely buying into the TTTS theory. Why is it uncommon for those with H to have pain speaking or swallowing if it is the TT that is causing it? I'm not talking about thumping or tugging, i'm talking about the...
  9. Briann

    Pain with Tinnitus Spikes?

    Yes it can impact the Eustachian tube. The Tensor Tympani muscle is attached to the muscle used to open and close the Eustachian tube so there is a physical link there.
  10. Briann

    Pain with Tinnitus Spikes?

    TTTS does not necessarily come with a clicking or thumping sound. I imagine it usually doesn't include those symptoms although flutter is often reported. It is characteristically very slow changes in the contraction of those muscles. The idea is that they are held in a tense/contracted state...
  11. Briann

    Pain with Tinnitus Spikes?

    I believe that type of pain is TTTS related. The T spike may trigger activity in the two middle ear muscles to instinctively try to clamp down the sound (and of course it doesn't work). This can result in a pulsating pain that can be sharp or a even some constant dull pain. For me, that pain...
  12. Briann

    AM-101 Possible Treatment for Ear Hyperacusis?

    @Bill 122, you mentioned you've heard lidocaine injections helped people with H. Do you know where the injection site was?
  13. Briann

    New US Government Research Funding for Hyperacusis

    This is an animal study. Mice or rats.
  14. Briann

    Genetic Predisposition for Tinnitus with rs1800795 Gene

    I have GC. This table provides a good summary: It seems strange to me that 25% (44/177) of those with the C allele but without a history of noise exposure have tinnitus while only 7% (2/29)of those with the C allele and with a history of noise exposure have tinnitus. I would expect noise...
  15. Briann

    Scientists Manipulate Plasticity Mechanism in DCN

    @Nucleo do you know where else has this been done? Or are you saying that tones and TENS individually are not new?
  16. Briann

    Poll: Which of the Following Would You Describe as Hyperacusis?

    I think being sensitive to suddens sounds is common and there are physiological reasons for why that might be. Maybe this just falls under mild or moderate hyperacusis. When people say everyday sounds, I think they actually mean sounds that wouldn't be expected to cause pain or discomfort.
  17. Briann

    Poll: Which of the Following Would You Describe as Hyperacusis?

    Sometimes it is tough to judge what someone means when they say they have hyperacusis. Thought this poll might give a snapshot of what people mean. Each answer assumes no other symptoms are present to help clear up definitions. Obviously people with hyperacusis usually have many of the symptoms...
  18. Briann

    The Great Return of My Hyperacusis

    Very similar thing happened to me. Had mild hyperacusis 6 years ago (no tinnitus). It got better without treatment over a year or two and then last year I had a major setback from doing the exact same thing that gave me hyperacusis in the first place. Unfortunately it seems our ears are more...
  19. Briann

    What Is with Ear Pain?

    If it's not strongly triggered by sound (especially MRI), I would expect it to be from TTTS (Tonic Tensor Tympani Syndrome). I believe that type of pain (sharp, slowly periodic, and not strongly associated with sound) is not rare for people with tinnitus. If it is TTTS, relaxation/tension...
  20. Briann

    It Hurts

    Hi MasterShortPants, That sounds like it could be TTTS as that can cause some pressure sensations and pain. Do you get pain from sound or is it just pain in general? When I get pain like that (sharp, random, not from sound), I assume it's tensor tympani related and it tends to resolve in a...