Search results for query: Myoclonus

...disinterested Doctors who wouldn't even consider differential diagnoses. Its all just tinnitus to them. I think it could be chronic middle ear myoclonus, particularly stapedial myoclonus, because I know that has been implicated in ongoing high frequency tinnitus going by some papers I've seen.

@Erin0830 if you go to an ENT he should know what middle ear myoclonus is. I took magnesium oxide for a couple of months and saw a little improvement. I know how lonely ear problems can be since we don't look sick people can't understand what we are going through :(. I'm in the US as well...

Something like what is described here: https://www.tinnitustalk.com/threads/eardrum-vibration-tensor-tympani-myoclonus.1198/?

Ear Myoclonus / idiopathic stapedial muscle spasm woke up to this shit this morning.. this is awesome :headphone:

Happy new year everyone. :) Two days ago I had an MRI scan because of my palatal myoclonus. The machine was Magnetom Skyra 3T which SAYS it has the Quiet Suite feature, but I didn't feel it at all. Now I'm feeling needle like pain in my ear and I'm trying to not freak out. My tinnitus hasn't...

@Max_fcktr mine is not from sounds the spasm doesn't react to sounds and yes it's myoclonus.

You have tinnitus and hyperacusis. That'll be $275 please...

Hello! I hope someone is still active here. I might have Stapedial Myoclonus. I have a few links below, and I hope that someone can read them in detail and tell me if it is indeed Stapedial Myoclonus...

I found the answer to my question #2 by searching around the forum! It's called middle ear myoclonus. Below is a post made by ZZZK that led me to some great info. I encourage anyone else suffering with this weird problem to visit the thread he linked. I'm also gonna try and write my personal...

...write about this devastating news. Padraigh and I had many discussions about our tinnitus journey. He and I had surgery for middle ear myoclonus with the same surgeon within days of each other (almost exactly a year ago). We supported each other on the rollercoaster recovery and had hope...

Agh, so sorry to hear about that. :( Sounds sort of like middle ear myoclonus (Myoclonus - Wikipedia, the free encyclopedia - have you had it since the operation or just recently? I experience vibration sensations in both my ears, my left ear I can attribute to tensor tympani syndrome, certain...

@BigNick Is it still improving day after day for you, you don’t have myoclonus anymore? And how is your tinnitus now after 6 weeks of treatment?

...muscle activity going on in there because I get occasional spasmodic pain in and under my ear. Sometimes though, and its a thing with TTTS/myoclonus and sound intolerance where it seems a bit of a chicken and egg argument. Does TTTS/myoclonus cause sound intolerance/sensitivity, or is it a...

...easen my own, abit similar symptoms... If I wear earplugs, the bass like sound stays the same but the vibrations ease a little! With ear myoclonus and hyperacusis, ear muscles become hypersensitive and overreact to sounds, causinh vibrating myoclonus spasms. So, if I block outside sounds...

I don't know much about it. I've never heard of Prednisone being used to treat TTTS...

...etc. You can google search on them or go to youtube to watch some related videos or tutorials. As for your issue with middle ears myoclonus, if there are not enough responses from this Introduction section, you can post it at the main support forum for more exposure and readership. I...

The ticking sounds like middle ear myoclonus. Look that one up through the searches here. There's a few threads about it.

@Kaelon based on what you wrote would you say prednisone would work on someone with middle ear myoclonus?

Can this be caused by an acoustic trauma?

I have Myoclonus in one ear only. Having a fan on at night and always sleeping on my side with that ear up in the air being exposed to the fan. It started as loud tinnitus and hyperacusis for 3 months. The symptoms were helped by a bioflavonoid/hesperidine/rutin complex(mere bioflavonoids didn't...

I mean I can related to freaking out with hypochondriasis. I'm just a middle-ear myoclonus sufferer posting in the pulsatile section.

Hey man, if it really is Stapedial Myoclonus, that's completely treatable and resolvable. I thought I might have had this based on the nature of my tinnitus sounds, but now I'm not so sure. Have you tried magnesium supplements or muscle relaxants? And finally, if you know for sure that what...

...3 x now in the past 6 months. Each time, wearing my mask for 4 hours straight. About 1 month ago two days after the er trip my stapedial myoclonus started for the first time. Mine was really bad because it lasted about 18 hours a day or so. I got about a 4 hour break during the afternoon. It...

@Chelles - I'm thinking about it so strong and intensive, because maybe what we both have isn't middle ear myoclonus but palatal myoclonus, which is so subtle that almost impossible to be seen by the doctors but it causes the twitching of our eardrums. I wish it would be one of the palatal...

Hello, I have what seems to be Stapedial Myoclonus (not confirmed, but signs seem to point to it), which leads to Dysacusis, and I have had ETD for years now. I don't know if it's still ETD or PET I'm having now though. All of this, is on my right side. Sometimes, when I breathe in through my...

It gets used a lot for chronic muscle spasm in MS. Maybe some practitioners are taking the myoclonus contribution to Tinnitus more seriously?

It is completely random. And it is ever so quiet. Just a very soft click almost. No trigger than I can tell but my ear has been "popping" more than usual. It doesn't seem to fit the bill of myoclonus and feels more like a tube issue. It's terribly annoying.

@dan I have 3 symptom, crackling sound in the ears myoclonus in left ears duo acoustick shock and small tinnitus

Guys with myoclonus, do you have a feeling of pressure in ears as well or it's just feeling of trembling when muscle vibrates?

@Hariz Nonis what did the ENT say about the myoclonus? I'm still dealing with it too - thought it was getting better but not so sure anymore.

I'd also stop, but what should i tell my neurologist? We are at a loss as to what will stop the myoclonus.

Did the Clonazepam help your palatal myoclonus?

Do you think that Palatal Myoclonus should be able to be treated? It doesn't make sense that nothing in the world can stop this from moving. Please keep us updated on your results.

My ear rings like a subwoofer when I talk sometimes. Stapedial Myoclonus is not as bad as T bud it does get annoying sometimes.

When you say objective tinnitus, do you mean other people could hear it? How would you describe your sound pain to me? Was your broadband hiss high pitched or middle pitched? How old are you, did an audiometry show ''hearing loss'' when you had the middle ear issues?

Thanks Dana...can my Eustachian tubes be fixed? Do I have any options like Botox or surgery?

I also get a vibrating sound, usually before going to sleep, but it is only in my right ear. I feel as though it's a muscle vibrating somewhere near there, and it only happens if I don't 100% relax my facial and neck muscles.

Maybe Danny Boy had a myoclonus of some sort that affected his ear through an afferent nerve European Journal of Paediatric Neurology Year:2009 Month: Day: Volume:13 Issue:supp-S1 First page:0 Last page:0 P196 Early onset palatal myoclonus with objective tinnitus and ear click responsive to...

My Boss there is deaf in one ear from a real live acoustic neuroma. Middle ear myoclonus on steroids from the way she describes it.

What ear protection did you wear during the MRI?

I think the botox shot for the roof of the mouth is for palatal myoclonus not sure it would work for the tensor tympani muscle.

What do you guys think about this being good for middle ear myoclonus issues? I have involuntarily rumbling of middle ear muscles from sounds, some internal sound autophony (not SCDS), TMJ nerve pain, single-sided facial nerve twitches around my ear and temple, and ear fullness. It's as if the...

Can this cause my ear to not hear certain sounds?

None of that came back, i just got palatal myoclonus, which completely reversed any progress I made with the tinnitus.

Feel sadness yes - but no responsibility. Your suggestions were kindly meant and could have had no influence on this tragic outcome.

Aren't they the same thing?

Thankfully my tinnitus isn't affected by foods however I try to stay away from crunchy foods like Cheetos since it sometimes it makes my myoclonus act up.

I'm bumping this thread up because I'm starting to get thumps again, and it's honestly maddening. Does anyone have experience with drug induced myoclonus, is that even a thing? I'm losing it. Thanks.

there is a thread already opened about this problem; https://www.tinnitustalk.com/threads/myoclonus-of-the-middle-ear-stapedius-muscle-and-tensor-tympani-surgery.3924/#post-173428

It might be your stapedius (over)contracting, which is a type of middle ear myoclonus. The role of the stapedius is to dampen loud sounds via contraction (tympanic reflex). For some reason yet to be understood the loudness threshold is lowered in some people, and this causes the stapedius to...

I really don't want to try botox, it's very expensive, and you have to inject it every 5 months. I want to try and stop the myoclonus with meds. It was medically induced, so I don't have organic damage of the CNS. I was really hoping that the Trileptal wasn't ototoxic... Thank you for the reply.

It's probably Tensor Tympani Syndrome. You can probably make it happen at will (Not permanently) by yawning too hard. Middle ear Myoclonus is more of a popping sound.

@OPlax If I am understanding you correctly, it seems more likely that you have middle ear myoclonus than TTTS. TTTS spasms occur only when people hear sounds at a level capable of setting off the spasm (and that level is different for everyone, and can be different depending on the time of...

@mermaid that's interesting...is your myoclonus in both ears? Did you have the cyst removed? I've never had an MRI my doctor never suggested one.

@Chileice did you ever find out what was causing the objective pulsatile tinnitus? Mine is caused by middle ear myoclonus and it comes and goes.

Middle Ear Myoclonus. TTTS (which I believe you've said you had/have) falls under this category as well, if I'm not wrong

...removal. I noticed a pulsing in my ear started around the time I got noxacusis, so that could be a strong indication of middle ear myoclonus which might even be related to or a contributor to my noxacsis. Either way, it seems all of these surgeries are very low risk, with little to no side...

...improved and finally went away. Now I am even able to listen to the music on headphones without feeling any discomfort. What caused your myoclonus? In my case it was an acoustic shock, I think so. My interlocutor screamed very loud into my ear during our mobile phone conversation and since...