Search results for query: Myoclonus

...the muscles that link to the tendons which spasm and pull on your ossicles that cause the ear drum fluttering. Botox can help with palatal myoclonus. I've had my tendons cut in both ears, and in fact, the left ear's TT regrew twice. But now I believe I have some form of palatal or e-tube...

I knew I shouldn't have gone, my doctor said she wouldn't treat my palatal myoclonus without going to an MRI. So I had to go, but I knew in my gut it would be a disaster.

Out of curiosity, has your eustachian tube been evaluated?

Which would seem to illustrate escalation of an untreated primary disease process. Is this not our fundamental issue?

What is the thumping like? For me, with (suspected) Stapedial Myoclonus, my right ear reacts to some sounds with some sort of high frequency distortion. Ever since this started, I've noticed that my right ear also doesn't hear some high frequency sounds as well as my left.

It is. Its also a presentation of myoclonus in that its a spasming muscle in action. Myo=muscle, clonus=spasm (rhythmic contraction). I've had symptoms consistent with Tensor tympani over-activity but sound as a trigger for it tends not to be there. That's one reason I wonder if its actually...

...facebook Hyperacusis sufferers group Ben Levy for now after a few weeks postop doesn't seem to be doing well but its too early to tell. I'm wondering if he has myoclonus or something, and I don't know how to tackle the situation. And again, everyone else with pure hyperacusis is happy with...

Medical doctors are very little help for some reason... I don't quite understand why yet.

...become a new best friend of many. Billie you have given me pause and hope about my life. My T may or may not be a result of my middle ear myoclonus. I will have surgery jn two weeks to cut the muscles/tendons. The T may get worse but having your powerful message and p oisitive outlook, I...

...about exactly what I've been experiencing off and on over the past month or so. Lately though as it has turned into a more broad-movement myoclonus though, it's more that the convulsions in my ear that sync-up with the rhythm of motors and things(more percussive instead of tonal now). Like...

It was under my impression that if the ear drum is tensed during the tympanometry measurements and reacts to sound something would show up. Decreased/increased compliance perhaps?

...near my nose and ears. I have had this for 1.5 years. I have been to a lot of ENT, no one could really heal me. I'm not sure this is Myoclonus (As some people cut all the tendons and still hear this crunchy noise). Even healthy people have stapedius contraction when they are about to talk...

...many days when this is prevalent, particularly short sharp, high sounds like a light switch or even the press of computer keys. Some papers I've seen associate it with stapedial myoclonus, others just call it part of hyperacusis (which itself is a symptom, not a diagnosis as many seem to think).

I'm glad my tinnitus isn't loud enough to ruin my life. I can totally understand how it feels though. My myoclonus was really bad a few weeks ago. That and the tinnitus combined was horrible. Then my heart got stuck in ventricular tachycardia and I had to get defibrillated. So many problems all...

...surgeries as implanting the cochlear implants etc., but it isn't able to solve the problems with seemingly "silly" thing as middle ear myoclonus (At least in my case the doctors weren't able to help me, and I know several similar stories of the people from my country, they have the same bad...

...The muscle tissue can absorb from outside pretty well. The eardrum does need to be moved to allow access, simply put its the only viable way in. Doing so allows the muscles to be seen, and the myoclonus to be identified. I think the lifting of the drum is the least of the issues involved.

...If I didn't use one of my remedies it would probably stay 24/7. I try to nip it in the bud as soon as I get it. I never heard of stapedial myoclonus. I goggled it and it sounds like that is what I might have. What kind of doctor gave you that diagnosis? I saw 3 ENT's and was not given a...

As you are describing it, it could be anything. It could eustachian tube pressure, or some middle ear muscle playing up, plus some inflammation. I bet no doctor will be able to tell. Actually, the way middle ear muscles work is not fully understood.

...muscles ablated, which did not stop the clicking and did result in a year of food tasting funny. Have tried Botox for possible palatial myoclonus-without success. Recently had a temporal bone CT scan which showed no evidence of superior semicircular canal dehiscence. I’m considering...

Yes, I had a good talk with the doctor. He confirmed the stapedial myoclonus diagnosis based on my symptoms. He did tell me that the problem usually goes away after some time, so I will just have to deal with it. Not really any way to treat it with drugs. He does the surgery himself if it comes...

I hope you recover soon. That's why I did not get vaccinated...

Sorry to hear your tinnitus is so severe. I had Middle Ear Myoclonus in both ears since 2007 and it would drive me crazy. Episodes would last 14 to 16 hours. It would be off and on but in 2017 it got so bad I could barely stand it. I went to many doctors but got no relief. They prescribed...

Mine gets worse when I eat and when I exercise. Also it gets worse if I have tension in the jaw and neck. I am thinking about doing a Doppler test. Scared about MRI (too noisy).

I dont think you should take it upon yourself to bear the full responsibility for Padraigh. I have found myself to think and say things + react in ways I would not normally do after I got 3+ years in with this nonsensical condition. Lack of sleep over a long, long time and just generally the...

I haven’t looked into that. Thanks for the suggestion. I do have TTTS thumping. Yeah, trying to get help is frustrating hopeless it seems. My surgeon/ENT just seems dismissive and somewhat defensive whenever I’ve brought it up with him. I think he’s worried I’ll try to sue him or something. I...

Hey, this is very interesting. Especially that video from the study. However, that example singer's stapedius only seemed to clench and release only as he was singing, but that doesn't mean there wouldn't be different forms of it. Many of us have had a similar experience with a low...

It's exactly like this. The thing is I also got a medicine induced palatal myoclonus so now it clicks anyway... But prior to that, I felt exactly what you describe.

...and then I hope to worsen the already pathetic questions on the hyperacusis questionnaire, the ones that don't differentiate between myoclonus and hyperacusis, and in all this time couldn't even hypothesise about the involvement of middle ear muscles or a wiggy stapes or compressed nerves and...

...Saturday 6/10, today a massive big fat 10/10. It can change inter day as well. No predictability and different tones. I have Middle Ear Myoclonus as well as ‘normal’ tinnitus. If I lived in a country where it’s available, I’d probably apply for VAD. Last throw of dice is psych hospital and...

I feel the exact same, doctors have done nothing but destroy my mental health ever since I became ill with tinnitus etc... most of the time it is up to us. It is great to hear it is subsiding. I bet it will completely disappear over the next few weeks/months.

...an otologist not an ENT. Option#2: if the sound is like a typewriter in you ear? Then it's tensor tympani muscle spasm aka tensor tympani myoclonus. I had this for months when I was super stressed about my tinnitus. Thinking about your ears causes muscles spasms which sound like a thumping...

Hi, I am new to this forum and would like to share something I've found that temporarily relieves the noise/sensation. Firstly, I have myoclonus in my right ear only. 24/7. I have had days of relief then sudden onset. I am starting a diary to analyse why. BUT I do find looking straight sharply...

...When I get up they are gone. I hear them 1-2 times during the day when I'm awake. Why do I hear them always upon waking up? Is this Pulsating tinnitus or myoclonus ? I really hope it goes away and doesn't get worse. I've been monitoring my blood pressure and it's never above 130/90. Please help

My thoughts and prayers are with you sonicboom2000. If it is myoclonus you have it can go away on its own.If not botox injections can help for a few months and people have had these muscles cut as a last resort. This can lead to hearing your voice a bit louder or being conscious of hearing...

...with @volsung37. My pulsatile tinnitus DID NOT start that way, and has not been like that at all. So, he may be correct that yours is the myoclonus. That seems more likely, and it may go away on its own, since it is intermittent. All my sympathies go out to you, and I totally understand...

...forget about it. We have some members here that feel the same way as you. Maybe reach out to them. My main problem is my heart failure, but I've got a big list of health problems now including stapedial myoclonus and tinnitus. Ive faced death several times and decided I want nothing to do...

@japongus what are your symptoms? I have myoclonus however it was diagnosed based on symptoms because the doctor cant see the muscles unless they cut your eardrum. My spasms are a loud thump that usually comes w every yawn, burp, hiccup or sometimes it can happen by itself. I hear the spasms...

...impact? If external sounds bothered you, what kind of sounds, what sensation did they create in your ear? Did the H cause referred pain elsewhere in the body? Did you have pain after sound or only with sound? If no sound sensitivity, did the myoclonus cause pain elsewhere or delayed pain?

...is bad I can press hard on the tragus of my outer ear, and everything inside clicks, snaps and crunches. When its not there this doesn't happen. The same thing just doesn't occur with my good ear no matter how hard I press. I suspect myoclonus affecting middle-ear ventilation somehow.

I don't have a diagnosis, just advice: Avoid whatever causes myoclonus-like symptoms; you don't want that stuff getting inflamed and hanging around. Talk on speakerphone. If it still happens, silence your phone and don't take calls; text-message your friends instead. Don't mess around with...

...just settles back to baseline for one to three days (four is the most) then it recurs. I can identify no cause and effect that explains it, but I lean toward a version of middle ear myoclonus as a likely culprit. When it happens my ear crackles like someone rolling on bubble wrap when I pop it.

...to hear the sound very well in my left ear, but not so clearly in my right. I'm currently going through what seems to be Stapedial Myoclonus/Dysacusis, which may or may not be because of Conductive Hearing Loss? I tested the sound in both ears, and my left ear definitely hears the static...

Oh I've emailed him but time has passed and I doubt he'll respond. It's been exactly one year since I was sharing myoclonus info and books with PaulBe, I've been that indecisive and it's come to this. It's like frigging Dante's inferno. My biggest fear right now is that another otoneurotologist...

...doesn't sound central. When that sound reaches extreme my whole HF sound spectrum changes and becomes intolerable, and then it lets up for a day or two. Is this stapedial myoclonus? Why does it come and go? The best I've had as far as medical explanations go is "congratulations its a boy".

...saw this, it went to my Spam file. I just saw a new doctor, this one affiliated with Stanford Medical Center, and he suspects middle ear myoclonus as well. This is good news for me, since finding a Botox guy is not going well. I go back for a hearing test and then wait till my insurance...

...will set my mind at ease. My doctor didn't think I would get offered it until around February anyhow. I've also had tinnitus now for over 30 years, and recently started having what I think is MEM (Middle Ear Myoclonus). I too hope that this vaccine doesn't make that worse. It is driving me mad.

...if the muscles are cut? How did they rule out that yours wasn't tensor tympani syndrome? What is the difference between that and middle ear myoclonus? Also have you heard of anybody having the condition resolve itself? Sadly, I cannot find any success stories. I'm so sorry if I'm bothering...

Ive been looking into myoclonus of the middle ear and there is a lot of literature about it and how it can cause tinnitus. I know there is a surgery where they cut the muscle so it cant contract and spasm. I wonder if that would improve some peoples t. A lot of times when this is the cause it...

...before. but today its back to normal again.i think it was because it was very swollen yesterday after extraction, so i think it pushed even more into my ear on my hearing nerve or something...cause the extraction was on the side where all my ear problems are (tinnitus, tensor tympani myoclonus)

I was fine with the first two vaccines. I had the booster vaccine followed by a headache that last many, many weeks. Unsure if the headaches are more frequent now or not, I am predisposed to them due to having TMD and light sensitivity from dry eyes. Tinnitus AFAIR stayed the same, but then my...

...washing dishes and vacuuming). I was so proud of myself for being able to live happily! For almost a year, I also dealt with ear spasms (myoclonus) triggered by burping, yawning, or stretching. Magnesium bisglycinate helped me significantly, and now I experience very few spasms...

I went to see Dr. Bance this year with a private consultation with severe reactive tinnitus but was only given an all clear on myoclonus, a pat on the back and told not much else could be done. No mention of any medication - so if anyone decides to do this, they may need to push a little for the...

In regards to inner ear issues (myoclonus/TTTS) this paper was interesting in terms of diagnostics. https://www.ncbi.nlm.nih.gov/pubmed/24232057 @Tinniger We do have to do everything ourselves including seeking out the right kind of help. The only urgency that exists for this condition is our...

Hi @Audiophile_bg, I’m also in Bulgaria and I just got prescribed Carbamazepine by a neurologist here. I took one dose. My tinnitus seems weird today. I have a buzzing and high pitched tones and I can’t tell exactly what’s going on.

I get waves of bad stuff (in 2020 I had a "regular" spike, a bout of pulsatile tinnitus and a bout of middle ear myoclonus AKA "clicking"). However, between the waves of crap, I also get good periods. Met a sweet girl, had some success with investments. Or just simpler stuff, like back-to-back...

So sorry to hear. I've had clicking off and on too. Not as often. What exactly do you hear? Does it pulsate/rumble the vibrating noise or just a solid low sound like regular tinnitus but just in lower frequency in sound? Mine I can actually feel when it gets back and it's a vibrating type hum...

...swallow and it’s just one pop. Sound like when you pop your ears in a plane or whatever normally swallow. You may have mem or middle ear myoclonus, luckily they can totally fix that if you have that. I myself have mem but only get a few thumps a day not hundreds. If it’s a thump you’ll...

...to be hormonal. I have birth in June and stayed on the diuretics and LDN during pregnancy. Towards the end, I had some MEM (Middle Ear Myoclonus), but that has settled and stopped for about 2 months. I haven’t tried anything else as I’ve been stable. I will read about Singulair though...

...but now it goes into spasms for hours on end and effects both ears. Mine is also set off by a burp or hiccups too ! My ent says it's ear myoclonus. Basically muscle spasm which can be triggered by anxiety! I am on magnesium just now but if that does not work I am going to be given...

Acoustic trauma has been linked to straight up myoclonus in some of the little pathetic literature we have on myoclonus. I believe correct me if I'm wrong that a few of the successful patients from Silverstein are from acoustic trauma. Of course the Silverstein institute isn't asking the...